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Supporting self‐determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study

https://doi.org/10.1111/jar.13267
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48/48 checkable references clean · checked 2026-07-22

Every reference with a DOI in the deposited reference list resolved to a known work in Crossref or DataCite at the dated check, and none carried a retraction, withdrawal, or removal notice.

3 without a DOI — not checked. A reference deposited without a DOI is never matched by title or guessed at; it stays outside the checked set, and this line discloses that.

The 48 checked references that resolve
resolves10.3109/13668250.2017.1310813
Perceptions of staff and family of the quality of life of people with severe to profound intellectual disability
resolves10.1352/1934-9556-59.4.315
Family Role in the Development of Self-Determination for Youth With Intellectual and Developmental Disabilities: A Scoping Review
resolves10.1007/978-1-4899-2271-7
Intrinsic Motivation and Self-Determination in Human Behavior
resolves10.1080/13682820110089362
Using an interdisciplinary approach to training to develop the quality of communication with adults with profound learning disabilities by care staff
resolves10.1016/bs.irrdd.2023.08.003
Valuing experiential knowledge to complement professional and scientific knowledge within care and support for people with intellectual disabilities
resolves10.1111/jar.12519
Restraint interventions in people with moderate to profound intellectual disabilities: Perspectives of support staff and family members
resolves10.3390/ijerph18063175
Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention
resolves10.1352/1944-7558-123.1.33
Autonomy Support, Need Satisfaction, and Motivation for Support Among Adults With Intellectual Disability: Testing a Self-Determination Theory Model
resolves10.1177/1744629516644380
You and me: The structural basis for the interaction of people with severe and profound intellectual disability and others
resolves10.1080/1034912X.2016.1213376
Intervening to Improve Teachers’ Need-supportive Behaviour Using Self-Determination Theory: Its Effects on Teachers and on the Motivation of Students with Deafblindness
resolves10.1016/j.ridd.2018.08.012
Participation of adults with visual and severe or profound intellectual disabilities: Analysis of individual support plans
resolves10.1111/jar.13134
Tacit knowledge in dyads of persons with profound intellectual and multiple disabilities and their caregivers: An interpretative literature study
resolves10.3109/13668250903285648
Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review
resolves10.3109/13668250.2013.798400
Interaction with a person with profound intellectual and multiple disabilities: A case study in dialogue with an experienced staff member
resolves10.1111/j.1365-2214.2012.01381.x
What parents find important in the support of a child with profound intellectual and multiple disabilities
resolves10.4135/9781412983730
Concept Mapping for Planning and Evaluation
resolves10.1080/20473869.2023.2216033
Incoming professionals’ perspectives on the application of new knowledge in care organisations for people with intellectual disabilities: a concept mapping study
resolves10.1111/jar.13185
‘What if I'm no longer around?’: An evaluative description of a structured group conversation about the care for persons with profound intellectual and multiple disabilities when they outlive their parents
resolves10.1111/jar.12740
Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis
resolves10.1080/20473869.2020.1827213
Persons with intellectual and multiple disabilities activate via non-verbal responses a smartphone’s Google Assistant to access preferred stimulation
resolves10.1111/jar.13023
Setting up a new team of support staff for people with mild intellectual disability or borderline intellectual functioning and severe challenging behaviour: A concept mapping study
resolves10.1111/jppi.12019
How Parents Experience the Quality of Support: A Survey in Residential Care
resolves10.1111/jar.12803
Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities
resolves10.1186/s12913-022-07641-y
Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden
resolves10.16993/sjdr.590
‘He Is, After All, a Young Man’: Claiming Ordinary Lives for Young Adults with Profound Intellectual Disabilities
resolves10.1111/j.1741-1130.2007.00104.x
A Need for a Taxonomy for Profound Intellectual and Multiple Disabilities
resolves10.1080/09638288.2022.2104941
Self-determination and co-operation in supported mealtimes involving people with severe intellectual disabilities
resolves10.3109/13668250.2019.1580117
Physicians’ perceptions on Quality of Life of persons with profound intellectual and multiple disabilities: A qualitative study
resolves10.3109/13668250.2022.2147053
Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study
resolves10.1016/j.evalprogplan.2017.02.005
Concept mapping internal validity: A case of misconceived mapping?
resolves10.1111/jar.13019
Meaningful moments of interaction with people with profound intellectual disabilities: Reflections from direct support staff
resolves10.1111/jar.13181
From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs
resolves10.1016/j.evalprogplan.2011.10.003
Quality and rigor of the concept mapping methodology: A pooled study analysis
resolves10.1521/978.14625/28806
Self-Determination Theory: Basic Psychological Needs in Motivation, Development, and Wellness
resolves10.1080/20479700.2023.2200604
Organizational strategies in promoting person-centered primary care: A participatory concept mapping study
resolves10.1007/978-3-030-35683-5_2
Self-Determination, Preference, and Choice
resolves10.1177/15407969231153579
Holding and Professional Care: On Self-Determination for Persons With Profound Intellectual and Multiple Disabilities
resolves10.16993/sjdr.830
Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities?
resolves10.1016/j.evalprogplan.2016.10.006
Introduction to a special issue on concept mapping
resolves10.3390/disabilities2020024
Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives
resolves10.1080/1034912X.2022.2060950
A Tailored Approach to Supporting Parent-Child Attachment in Families with Children with Severe Disabilities: Matching Interventions to Needs
resolves10.16993/bbl
Narrowed Lives: Meaning, Moral Value, and Profound Intellectual Disability
resolves10.1111/jar.12930
Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the <scp>COVID</scp>‐19 pandemic
resolves10.3109/13668250.2023.2254942
The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings; a continuing puzzle
resolves10.1080/17549507.2023.2187331
Stretching beyond our perceived boundaries: The role of speech-language pathology in realising autonomy through supported decision-making
resolves10.1177/1540796919879701
Placing the Preferences of People with Profound Intellectual and Multiple Disabilities At the Center of End-of-Life Decision Making Through Storytelling
resolves10.1080/19315864.2023.2240732
Basic Psychological Needs and Mental Health in Adolescents with a Mild to Borderline Intellectual Disability
resolves10.1177/0046958021991301
Family Members of Adults with Intellectual Disability Living in Residential Settings: Roles and Collaboration with Professionals. A Review of the Literature
The 3 references without a DOI — listed, not checked
no DOI — not checkedMental disorders and disabilities among low‐income children
no DOI — not checkedThe concept system® Global MAX™ (Build 2022.273.21) [Web‐based Platform]. (2022).Ithaca NY. Available fromwww.conceptsystemglobal.com
no DOI — not checkedThe reliability of concept mapping
What this badge says. CiteStamped means the CHECKABLE references of this work were clean at the dated check: each resolved to a known work in a public registry, and none carried a retraction notice at that time. It says nothing about the quality, findings, or importance of the work itself, and nothing about references deposited without a DOI.

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