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Straight from the horse's mouth: Increasing self‐report in mental health assessment in individuals with intellectual disability
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What this work says
Outgoing claims: the papers this work cites, builds on, or argues with.
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Best Estimate of Lifetime Psychiatric Diagnosis
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The Assessment of Affective Disorders in Children and Adolescents by Semistructured Interview
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A Conversation Analysis of the ‘Acquiescence’ of People with Learning Disabilities
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Interviewing People with Intellectual Disabilities
inferredcites →https://doi.org/10.1002/9781119945925openalex-snapshot
Psychiatry of Intellectual Disability
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Validation of diagnoses of distress disorders in the US National Comorbidity Survey Replication Adolescent Supplement (NCS‐A)
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A comparison of the prevalence of psychiatric disorders in Puerto Rico with the United States and the Puerto Rican population of the United States
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Survey of AAC Needs for Adults with Intellectual Disability in New Zealand
inferredcites →https://doi.org/10.1016/0010-440x(83)90032-9openalex-snapshot
Psychiatric diagnosis: Are clinicians still necessary?
inferredcites →https://doi.org/10.1016/j.apmr.2017.03.011openalex-snapshot
Reducing Barriers to Patient-Reported Outcome Measures for People With Cognitive Impairments
inferredcites →https://doi.org/10.1016/j.jad.2014.08.048openalex-snapshot
Inter-informant agreement and prevalence estimates for mood syndromes: Direct interview vs. family history method
inferredcites →https://doi.org/10.1016/j.ridd.2004.05.001openalex-snapshot
Measurement of mood in adolescents with intellectual disability
inferredcites →https://doi.org/10.1016/j.ridd.2011.10.019openalex-snapshot
An examination of specific communication deficits in adults with profound intellectual disabilities
inferredcites →https://doi.org/10.1016/j.ridd.2014.01.010openalex-snapshot
Carer-led health interventions to monitor, promote and improve the health of adults with intellectual disabilities in the community: A systematic review
inferredcites →https://doi.org/10.1016/s0074-7750(05)31004-4openalex-snapshot
Individual Differences in Interpersonal Relationships for Persons with Mental Retardation
inferredcites →https://doi.org/10.1017/s0954579413000096openalex-snapshot
Strategic objectives for improving understanding of informant discrepancies in developmental psychopathology research
inferredcites →https://doi.org/10.1037//1040-3590.13.3.319openalex-snapshot
Methodological issues in interviewing and using self-report questionnaires with people with mental retardation.
inferredcites →https://doi.org/10.1037/a0038498openalex-snapshot
The validity of the multi-informant approach to assessing child and adolescent mental health.
inferredcites →https://doi.org/10.1080/0156655970440102openalex-snapshot
An Initial Evaluation of the Comprehensive Quality of Life Scale‐‐Intellectual Disability
inferredcites →https://doi.org/10.1080/02687038.2018.1428282openalex-snapshot
Communication partner training in aphasia: reflections on communication accommodation theory
inferredcites →https://doi.org/10.1080/07263869100034231openalex-snapshot
Residential satisfaction of persons with an intellectual disability living in an institution or in the community
inferredcites →https://doi.org/10.1080/07434618.2018.1556731openalex-snapshot
Building capacity in AAC: A person-centred approach to supporting participation by people with complex communication needs
inferredcites →https://doi.org/10.1080/11038128.2018.1502344openalex-snapshot
Development of the Pediatric Disability Inventory-Patient Reported Outcome (PEDI-PRO) measurement conceptual framework and item candidates
inferredcites →https://doi.org/10.1080/14992020600920812openalex-snapshot
Prevalence of hearing loss in 1598 adults with an intellectual disability: Cross-sectional population based study
inferredcites →https://doi.org/10.1080/19315864.2018.1431746openalex-snapshot
Comparison of Self- and Proxy Report of Mental Health Symptoms in People With Intellectual Disabilities
inferredcites →https://doi.org/10.1097/00004583-199608000-00019openalex-snapshot
Integrating Assessment Data from Multiple Informants
inferredcites →https://doi.org/10.1097/00004583-200001000-00014openalex-snapshot
NIMH Diagnostic Interview Schedule for Children Version IV (NIMH DISC-IV): Description, Differences From Previous Versions, and Reliability of Some Common Diagnoses
inferredcites →https://doi.org/10.1108/02683949810369138openalex-snapshot
Sensitive questions and response effects: an evaluation
inferredcites →https://doi.org/10.1111/bld.12261openalex-snapshot
The process of developing self‐report measures in intellectual disability: A case study of a complicated grief scale
inferredcites →https://doi.org/10.1111/j.1365-2788.2006.00844.xopenalex-snapshot
A review of the reliability and validity of Likert‐type scales for people with intellectual disability
inferredcites →https://doi.org/10.1111/j.1365-2788.2008.01053.xopenalex-snapshot
The psychometric properties of the hospital anxiety and depressions scale adapted for use with people with intellectual disabilities
inferredcites →https://doi.org/10.1111/j.1468-3148.2005.00243.xopenalex-snapshot
The Development of a Health Status Measure for Self‐report by People with Intellectual Disabilities
inferredcites →https://doi.org/10.1111/j.1468-3148.2007.00380.xopenalex-snapshot
The Beck Depression Inventory II and the Beck Anxiety Inventory in People with Intellectual Disabilities: Factor Analyses and Group Data
inferredcites →https://doi.org/10.1111/j.1468-3148.2009.00513.xopenalex-snapshot
Caregiver Perceptions of the Understanding of Death and Need for Bereavement Support in Adults with Intellectual Disabilities
inferredcites →https://doi.org/10.1111/j.1468-3148.2011.00662.xopenalex-snapshot
Mental Health Needs in Adolescents with Intellectual Disabilities: Cross‐Sectional Survey of a Service Sample
inferredcites →https://doi.org/10.1111/j.1741-1130.2008.00182.xopenalex-snapshot
A Comprehensive Guide to Intellectual and Developmental Disabilities
inferredcites →https://doi.org/10.1111/jar.12232openalex-snapshot
The Mental Health of British Adults with Intellectual Impairments Living in General Households
inferredcites →https://doi.org/10.1111/jar.12399openalex-snapshot
Self‐ and proxy‐rated needs in adults with mild to moderate intellectual disabilities: Perspective matters
inferredcites →https://doi.org/10.1111/jar.12654openalex-snapshot
Prevalence of co‐occurring psychiatric disorders in adults and adolescents with intellectual disability: A systematic review and meta‐analysis
inferredcites →https://doi.org/10.1111/jir.12024openalex-snapshot
Responsiveness to self‐report questions about loneliness: a comparison of mainstream and intellectual disability‐specific instruments
inferredcites →https://doi.org/10.1111/jir.12091openalex-snapshot
Where are persons with intellectual disabilities in medical research? A survey of published clinical trials
inferredcites →https://doi.org/10.1111/jppi.12074openalex-snapshot
Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?
inferredcites →https://doi.org/10.1177/152574019401600110openalex-snapshot
Augmentative and Alternative Communication
inferredcites →https://doi.org/10.1177/1540796916686564openalex-snapshot
Contributing Meaning to Research in Developmental Disabilities
inferredcites →https://doi.org/10.1192/bjp.bp.106.022483openalex-snapshot
Mental ill-health in adults with intellectual disabilities: prevalence and associated factors
inferredcites →https://doi.org/10.1352/0047-6765(2002)040<0014:aiiwpw>2.0.co;2openalex-snapshot
Acquiescence in Interviews With People Who Have Mental Retardation
inferredcites →https://doi.org/10.1352/0047-6765(2002)040<0445:saoqol>2.0.co;2openalex-snapshot
Subjective and Objective Quality of Life Assessment: Responsiveness, Response Bias, and Resident:Proxy Concordance
inferredcites →https://doi.org/10.1352/0895-8017(2005)110[469:peoasm]2.0.co;2openalex-snapshot
Psychometric Evaluation of a Self-Report Measure of Depression for Individuals With Mental Retardation
inferredcites →https://doi.org/10.1352/1934-9556-50.4.352openalex-snapshot
Self-Reported Health of People with Intellectual Disability
inferredcites →https://doi.org/10.1352/1934-9556-51.5.333openalex-snapshot
Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities
inferredcites →https://doi.org/10.1353/cpr.2015.0037openalex-snapshot
Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities
inferredcites →https://doi.org/10.2105/ajph.2013.301286openalex-snapshot
Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research
inferredcites →https://doi.org/10.2105/ajph.90.8.1248openalex-snapshot
Bias in proxies' reports of disability: data from the National Health Interview Survey on disability
inferredcites →https://doi.org/10.4278/ajhp.090303-cit-94openalex-snapshot
Guidelines and Criteria for the Implementation of Community-Based Health Promotion Programs for Individuals with Disabilities
What points at this work
Incoming claims: where this work appears in other papers’ reference lists and arguments.
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Addressing suicidality in autistic youth: Implications for school mental health professionals
inferred← citeshttps://doi.org/10.1007/978-3-031-66902-6_6openalex-snapshot
Post-Traumatic Stress Disorder (PTSD) and Abuse
inferred← citeshttps://doi.org/10.1007/978-3-031-66932-3_11openalex-snapshot
Mental Health in People with Intellectual and Developmental Disabilities
inferred← citeshttps://doi.org/10.1007/s10803-025-06732-zopenalex-snapshot
Longitudinal Trajectories of Maternal Stress for Mothers with Intellectual Disabilities and Borderline Intellectual Functioning: Evidence from the Future of Families and Child Wellbeing Study
inferred← citeshttps://doi.org/10.1007/s10803-026-07363-8openalex-snapshot
Factor Structure and Longitudinal Measurement Invariance of the Psychopathology in Autism Checklist
inferred← citeshttps://doi.org/10.1007/s10882-025-10036-6openalex-snapshot
Current Methods and Future Prospects in the Detection of Mental Distress in Individuals with Profound Intellectual and Multiple Disabilities
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The School-to-Guardian Pipeline: Understanding the Medical and Social Implications for Individuals with Significant Disabilities
inferred← citeshttps://doi.org/10.1007/s12671-025-02568-xopenalex-snapshot
Assessing Mindfulness in Adolescents: A Polish Validation of the Child and Adolescent Mindfulness Measurement (CAMM)
inferred← citeshttps://doi.org/10.1016/bs.irrdd.2023.08.001openalex-snapshot
The interaction between social and communication skills in individuals with intellectual disability
inferred← citeshttps://doi.org/10.1016/j.heliyon.2024.e31048openalex-snapshot
Assessment of adaptive behavior in people with intellectual disabilities: Design and development of a new test battery
inferred← citeshttps://doi.org/10.1016/j.ijchp.2025.100601openalex-snapshot
Conceptualising good mental health for people with intellectual disabilities: An inclusive delphi study
inferred← citeshttps://doi.org/10.1016/j.metip.2022.100102openalex-snapshot
Assisting children and youth with completing self-report instruments introduces bias: A mixed-method study that includes children and young people's views
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Assessment of anxiety and behavior disorders among autistic children and youths with intellectual and developmental disabilities
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Does adapting a self-report instrument to improve its cognitive accessibility for people with intellectual disability result in a better measure? − A cognitive interview study
inferred← citeshttps://doi.org/10.1080/09638288.2026.2657254openalex-snapshot
Convergent and known-groups validity of the Pediatric Evaluation of Disability Inventory – Patient-Reported Outcome (PEDI-PRO)
inferred← citeshttps://doi.org/10.1080/17437199.2024.2398021openalex-snapshot
Good mental health in people with intellectual disabilities: a systematic review
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Communication access in low-and middle-income countries: A scoping review
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Developing the Diagnostic Interview for Adolescents and Adults with Mild/Moderate Intellectual Disabilities: An Interview Schedule of Mental Disorders (DIAAID)
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Extending the Age-Range of the Diagnostic Interview for Adolescents and Adults with Intellectual Disability (DIAAID): An Interview Schedule of Mental Disorders
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Unheard Voices: A Systematic Literature Review of Studies Using Self-Report Methods to Gather the Perspectives of Autistic Adults with Intellectual Disability
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The Lived Experience of People With Intellectual Disability in Community Settings: A Comparison of Self‐Reports and Staff Reports
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Psychometric properties of the Pediatric Evaluation of Disability Inventory – Patient Reported Outcome: A cognitively accessible measure of functional performance
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Proxy‐report in individuals with intellectual disability: A scoping review
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Preliminary feasibility study of a cognitive stimulation therapy programme for older adults with an intellectual disability
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Mental Health Services for Adults With Intellectual Disabilities: A Qualitative Study of Patient Characteristics, Associated Factors and Consequent Needs for Adaptation in Assessment and Treatment
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Instruments in Spanish to Assess the Mental Health of Adults With Intellectual Disabilities. A Systematic Review
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Preliminary Psychometric Findings and Feasibility of the Diagnostic Interview for Adolescents and Adults With Intellectual Disability ( DIAAID ): An Interview Schedule of Mental Disorders
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Bias in assessment of co-occurring mental disorder in individuals with intellectual disabilities: Theoretical perspectives and implications for clinical practice
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Self-injurious behaviours and mental health in autistic adults with severe intellectual disabilities: An explorative clinical study
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Good mental health for people with intellectual disabilities: a participatory focus group study
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Construction and metric properties of a new instrument to measure adaptive behaviour in people with intellectual disabilities. Peruvian context.
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A Digital System to Assess Mental Health in People With Intellectual Disability (MENTALSED): Protocol for a Development and Pilot Study
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Development and content validity of the Person Experiences Interview Survey (PEIS): a measure of the mental health services experiences of people with developmental disabilities
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