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"We are half-doctors": Family Caregivers as Boundary Actors in Chronic Disease Management
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What this work says
Outgoing claims: the papers this work cites, builds on, or argues with.
inferredcites →https://doi.org/10.1001/jamanetworkopen.2019.0404openalex-snapshot
Chronic Diseases in India—Ubiquitous Across the Socioeconomic Spectrum
inferredcites →https://doi.org/10.1016/j.apme.2014.07.014openalex-snapshot
Telehealth in India: The Apollo Contribution and An Overview
inferredcites →https://doi.org/10.1016/j.archger.2008.07.002openalex-snapshot
The experience of burnout among home caregivers of patients with dementia: Relations to depression and quality of life
inferredcites →https://doi.org/10.1016/j.canep.2013.09.018openalex-snapshot
Patient navigation pathway and barriers to treatment seeking in cancer in India: A qualitative inquiry
inferredcites →https://doi.org/10.1016/j.gerinurse.2009.09.010openalex-snapshot
Empirically Based Treatments for Family Caregiver Distress: What Works and Where Do We Go from Here?
inferredcites →https://doi.org/10.1080/0144929x.2017.1405073openalex-snapshot
Awareness and handoffs in home care: coordination among informal caregivers
inferredcites →https://doi.org/10.1080/17483107.2017.1373151openalex-snapshot
Benefits and burdens: family caregivers’ experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD)
inferredcites →https://doi.org/10.1097/01.naj.0000336406.45248.4copenalex-snapshot
Physical and Mental Health Effects of Family Caregiving
inferredcites →https://doi.org/10.1109/mprv.2004.1316814openalex-snapshot
Technology for care networks of elders
inferredcites →https://doi.org/10.1111/j.1945-1474.2002.tb00463.xopenalex-snapshot
Crossing the Quality Chasm: A New Health System for the 21st Century
inferredcites →https://doi.org/10.1136/bmjopen-2020-044944openalex-snapshot
Improving pathways to care through interventions cocreated with communities: a qualitative investigation of men’s barriers to tuberculosis care-seeking in an informal settlement in Blantyre, Malawi
inferredcites →https://doi.org/10.1145/1753326.1753718openalex-snapshot
Intermediated technology use in developing communities
inferredcites →https://doi.org/10.1145/2470654.2481365openalex-snapshot
Understanding the conflicting demands of family caregivers caring for depressed family members
inferredcites →https://doi.org/10.1145/2517899.2517934openalex-snapshot
Doctor-patient interaction in telemedicine
inferredcites →https://doi.org/10.1145/2556288.2557372openalex-snapshot
Understanding quantified-selfers' practices in collecting and exploring personal data
inferredcites →https://doi.org/10.1145/2702123.2702563openalex-snapshot
Looking for Respite and Support
inferredcites →https://doi.org/10.1145/2818048.2819926openalex-snapshot
Boundary Negotiating Artifacts in Personal Informatics
inferredcites →https://doi.org/10.1145/2818048.2819999openalex-snapshot
Designing for Those who are Overlooked
inferredcites →https://doi.org/10.1145/2909609.2909664openalex-snapshot
Leveraging Intermediated Interactions to Support Utilization of Persuasive Personal Health Informatics
inferredcites →https://doi.org/10.1145/2998181.2998362openalex-snapshot
From Personal Informatics to Family Informatics
inferredcites →https://doi.org/10.1145/3025453.3025747openalex-snapshot
When Personal Tracking Becomes Social
inferredcites →https://doi.org/10.1145/3025453.3025754openalex-snapshot
Supporting Families in Reviewing and Communicating about Radiology Imaging Studies
inferredcites →https://doi.org/10.1145/3025453.3025804openalex-snapshot
Enhancing Personal Informatics Through Social Sensemaking
inferredcites →https://doi.org/10.1145/3173574.3173796openalex-snapshot
How Information Sharing about Care Recipients by Family Caregivers Impacts Family Communication
inferredcites →https://doi.org/10.1145/3173574.3173958openalex-snapshot
Stitching Infrastructures to Facilitate Telemedicine for Low-Resource Environments
inferredcites →https://doi.org/10.1145/3173574.3174224openalex-snapshot
Supporting Collaborative Health Tracking in the Hospital
inferredcites →https://doi.org/10.1145/3274330openalex-snapshot
Navigating the Healthcare Service "Black Box"
inferredcites →https://doi.org/10.1145/3274344openalex-snapshot
Bridging Disconnected Knowledges for Community Health
inferredcites →https://doi.org/10.1145/3274396openalex-snapshot
Personal Informatics in Interpersonal Contexts
inferredcites →https://doi.org/10.1145/3290605.3300688openalex-snapshot
Making Healthcare Infrastructure Work
inferredcites →https://doi.org/10.1145/3290607.3299021openalex-snapshot
Unpacking the Infrastructuring Work of Patients and Caregivers around the World
inferredcites →https://doi.org/10.1145/3297121.3297130openalex-snapshot
Towards Enhancing Everyday Pregnancy Care
inferredcites →https://doi.org/10.1145/3313831.3376154openalex-snapshot
TalkingBoogie: Collaborative Mobile AAC System for Non-verbal Children with Developmental Disabilities and Their Caregivers
inferredcites →https://doi.org/10.1145/3313831.3376166openalex-snapshot
Making Chat at Home in the Hospital: Exploring Chat Use by Nurses
inferredcites →https://doi.org/10.1145/3313831.3376170openalex-snapshot
Understanding the Care Ecologies of Veterans with PTSD
inferredcites →https://doi.org/10.1145/3313831.3376607openalex-snapshot
"You Cannot Offer Such a Suggestion"
inferredcites →https://doi.org/10.1145/3313831.3376648openalex-snapshot
Social Technology Appropriation in Dementia: Investigating the Role of Caregivers in Engaging People with Dementia with a Videogame-based Training System
inferredcites →https://doi.org/10.1145/3314344.3332487openalex-snapshot
Technology, home health care, and heart failure
inferredcites →https://doi.org/10.1145/3319374openalex-snapshot
From medicalized to mundane self-care technologies
inferredcites →https://doi.org/10.1145/3322276.3322330openalex-snapshot
Workshops as Boundary Objects for Data Infrastructure Literacy and Design
inferredcites →https://doi.org/10.1145/3359255openalex-snapshot
Balancing Tensions between Caregiving and Parenting Responsibilities in Pediatric Patient Care
inferredcites →https://doi.org/10.1145/3359261openalex-snapshot
"I think we know more than our doctors"
inferredcites →https://doi.org/10.1145/3392843openalex-snapshot
Parallel Journeys of Patients with Cancer and Depression: Challenges and Opportunities for Technology-Enabled Collaborative Care
inferredcites →https://doi.org/10.1145/3411763.3443435openalex-snapshot
Onboarding Materials as Cross-functional Boundary Objects for Developing AI Assistants
inferredcites →https://doi.org/10.1145/3411764.3445410openalex-snapshot
“Can I Not Be Suicidal on a Sunday?”: Understanding Technology-Mediated Pathways to Mental Health Support
inferredcites →https://doi.org/10.1145/3411764.3445413openalex-snapshot
Isolation in Coordination: Challenges of Caregivers in the USA
inferredcites →https://doi.org/10.1145/3415200openalex-snapshot
Sociocultural Dimensions of Tracking Health and Taking Care
inferredcites →https://doi.org/10.1145/3421937.3421988openalex-snapshot
Design Space Analysis of Health Technologies for Families
inferredcites →https://doi.org/10.1145/3429290.3429294openalex-snapshot
Design Opportunities for Supporting Elderly in India in Managing their Health and Fitness Post-COVID-19
inferredcites →https://doi.org/10.1145/3449212openalex-snapshot
Individually Vulnerable, Collectively Safe
inferredcites →https://doi.org/10.1145/3462204.3481734openalex-snapshot
The Future of Care Work: Towards a Radical Politics of Care in CSCW Research and Practice
inferredcites →https://doi.org/10.1145/3462741.3466649openalex-snapshot
Assisted Telemedicine Model for Rural Healthcare Ecosystem
inferredcites →https://doi.org/10.1145/3476064openalex-snapshot
Infrastructuring Telehealth in (In)Formal Patient-Doctor Contexts
inferredcites →https://doi.org/10.1145/3479560openalex-snapshot
Every Cloud Has a Silver Lining: Exploring Experiential Knowledge and Assets of Family Caregivers
inferredcites →https://doi.org/10.1177/014572179101700108openalex-snapshot
Empowerment: An Idea Whose Time Has Come in Diabetes Education
inferredcites →https://doi.org/10.1177/030631289019003001openalex-snapshot
Institutional Ecology, `Translations' and Boundary Objects: Amateurs and Professionals in Berkeley's Museum of Vertebrate Zoology, 1907-39
inferredcites →https://doi.org/10.1177/1049732308315432openalex-snapshot
Circuit Breaking: Pathways of Treatment Seeking for Women With Endometriosis in Australia
inferredcites →https://doi.org/10.1177/1471301214532263openalex-snapshot
Tracing the successful incorporation of assistive technology into everyday life for younger people with dementia and family carers
inferredcites →https://doi.org/10.1177/1476750309335206openalex-snapshot
Constructing interorganizational collaboration
inferredcites →https://doi.org/10.1258/jtt.2009.080605openalex-snapshot
A systematic review of the use of telehealth in Asian countries
inferredcites →https://doi.org/10.1371/journal.pone.0203353openalex-snapshot
Is India ready for mental health apps (MHApps)? A quantitative-qualitative exploration of caregivers’ perspective on smartphone-based solutions for managing severe mental illnesses in low resource settings
inferredcites →https://doi.org/10.1371/journal.pone.0209924openalex-snapshot
Such a long journey: What health seeking pathways of patients with drug resistant tuberculosis in Mumbai tell us
inferredcites →https://doi.org/10.1371/journal.pone.0253927openalex-snapshot
Where will it end? Pathways to care and catastrophic costs following negative TB evaluation in Uganda
inferredcites →https://doi.org/10.31887/dcns.2009.11.2/hbrodatyopenalex-snapshot
Family caregivers of people with dementia
inferredcites →https://doi.org/10.4017/gt.2014.13.02.391.00openalex-snapshot
Awareness and attitudes of geriatric patients towards telemedicine in India
inferredcites →https://doi.org/10.4103/jfmpc.jfmpc_264_19openalex-snapshot
Telemedicine in India: Where do we stand?
inferredcites →https://doi.org/10.4324/9781315081397-2openalex-snapshot
The Ecology of Human Development
inferredcites →https://doi.org/10.7326/0003-4819-104-2-291_2openalex-snapshot
Social Organization of Medical Work.
What points at this work
Incoming claims: where this work appears in other papers’ reference lists and arguments.
inferred← citeshttps://doi.org/10.1002/ajmg.c.32074openalex-snapshot
Health care satisfaction and medical literacy habits among caregivers of individuals with Down syndrome
inferred← citeshttps://doi.org/10.1002/bsa3.70090openalex-snapshot
Re‐investigating the psychometric properties of the Caregiver–Provider Relationship Assessment
inferred← citeshttps://doi.org/10.1007/978-3-032-30424-7_9openalex-snapshot
Design Strategies for Optimizing Information Service Systems in Community-Embedded Elderly Care
inferred← citeshttps://doi.org/10.1007/s42452-026-08823-7openalex-snapshot
Design and evaluation of an interactive physiotherapy motion-assessment system using HCI and LSTM networks
inferred← citeshttps://doi.org/10.1080/23337486.2026.2642446openalex-snapshot
Towards a greener shade of Khaki? Boundary work between the German Green party and the Bundeswehr
inferred← citeshttps://doi.org/10.1109/bigdata66926.2025.11402577openalex-snapshot
Voices of Care: Actor-Centric LLM-Assisted Analysis of Alzheimer's and Dementia Discourse on Reddit
inferred← citeshttps://doi.org/10.1145/3544548.3580653openalex-snapshot
Towards Intermediated Workflows for Hybrid Telemedicine
inferred← citeshttps://doi.org/10.1145/3613904.3641961openalex-snapshot
A case for "little English" in Nurse Notes from the Telehealth Intervention Program for Seniors: Implications for Future Design and Research
inferred← citeshttps://doi.org/10.1145/3613904.3642214openalex-snapshot
Designing for Caregiver-facing Values Elicitation Tools
inferred← citeshttps://doi.org/10.1145/3613904.3642504openalex-snapshot
“I know I have this till my Last Breath”: Unmasking the Gaps in Chronic Obstructive Pulmonary Disease (COPD) Care in India
inferred← citeshttps://doi.org/10.1145/3613904.3642652openalex-snapshot
Unpacking the Lived Experience of Collaborative Pregnancy Tracking
inferred← citeshttps://doi.org/10.1145/3613904.3642728openalex-snapshot
Dancing with the Roles: Towards Designing Technology that Supports the Multifaceted Roles of Caregivers for Older Adults
inferred← citeshttps://doi.org/10.1145/3637325openalex-snapshot
Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With Dementia
inferred← citeshttps://doi.org/10.1145/3637421openalex-snapshot
Understanding the Technology-Mediated Home Phlebotomy Ecosystem in India
inferred← citeshttps://doi.org/10.1145/3663548.3675630openalex-snapshot
Accessibility through Awareness of Noise Sensitivity Management and Regulation Practices
inferred← citeshttps://doi.org/10.1145/3678884.3681901openalex-snapshot
Designing for Resilient Caregiving Coordination Journeys: Prioritizing Features Across Families and Phases
inferred← citeshttps://doi.org/10.1145/3686956openalex-snapshot
Transitioning Together: Collaborative Work in Adolescent Chronic Illness Management
inferred← citeshttps://doi.org/10.1145/3701187openalex-snapshot
Community Support for Aging in Place: A Computational Thematic Analysis of Discussions about Informal Care on Reddit
inferred← citeshttps://doi.org/10.1145/3701200openalex-snapshot
Meeting People Where They Are: Building Community-Centered Care with Smartphone-Facilitated Response to Overdoses
inferred← citeshttps://doi.org/10.1145/3706598.3713404openalex-snapshot
Peerspective: A Study on Reciprocal Tracking for Self-awareness and Relational Insight
inferred← citeshttps://doi.org/10.1145/3706598.3714240openalex-snapshot
Deploying and Examining Beacon for At-Home Patient Self-Monitoring with Critical Flicker Frequency
inferred← citeshttps://doi.org/10.1145/3706599.3720259openalex-snapshot
"Count on Me": Enabling Collaboration Through Active Support for Primary Family Caregivers in Chronic Illness Care
inferred← citeshttps://doi.org/10.1145/3710935openalex-snapshot
Beyond "Vulnerable Populations": A Unified Understanding of Vulnerability From A Socio-Ecological Perspective
inferred← citeshttps://doi.org/10.1145/3710951openalex-snapshot
Context-Driven Collaborative Care: An Afro-Centred Perspective on Technology and Design Opportunities for Managing Type 2 Diabetes in Nigeria
inferred← citeshttps://doi.org/10.1145/3710983openalex-snapshot
Faster Information for Effective Long-Term Discharge: A Field Study in Adult Foster Care
inferred← citeshttps://doi.org/10.1145/3711060openalex-snapshot
SCOPE: Examining Technology-Enhanced Collaborative Care Management of Depression in the Cancer Setting
inferred← citeshttps://doi.org/10.1145/3715070.3748278openalex-snapshot
Behind the Scenes: A SIG on Researcher Care and the Invisible Care Work
inferred← citeshttps://doi.org/10.1145/3715336.3735779openalex-snapshot
The Benefits and Risks of LLMs for Facilitating Medical Decision-Making Among Laypersons
inferred← citeshttps://doi.org/10.1145/3719347openalex-snapshot
Reconceptualizing Technology for Chronic Disease Management Activities in the Family: Supporting Collective Routines
inferred← citeshttps://doi.org/10.1145/3729176.3729181openalex-snapshot
"Being a nanny isn't just caregiving": An Analysis of How Nannies Seek Support in Online Communities like /r/Nanny
inferred← citeshttps://doi.org/10.1145/3757407openalex-snapshot
'Fatherhood is a Unique Experience': Visibilizing and Contextualizing Paternal Care Work
inferred← citeshttps://doi.org/10.1145/3757453openalex-snapshot
A Relationship-Centered Perspective On Home Care Work
inferred← citeshttps://doi.org/10.1145/3757555openalex-snapshot
Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer's and Dementia Caregivers
inferred← citeshttps://doi.org/10.1145/3757605openalex-snapshot
From Regulation to Support: Centering Humans in Technology-Mediated Emotion Intervention in Care Contexts
inferred← citeshttps://doi.org/10.1145/3757623openalex-snapshot
Less Supervising, More Caring: Design Recommendations for Informal Caregivers' Co-Participation in Cardiac Telerehabilitation
inferred← citeshttps://doi.org/10.1145/3772318.3790392openalex-snapshot
A Blessing and a Challenge: Unpacking Boundary Ambiguities Experienced by Caregivers of Older Adults
inferred← citeshttps://doi.org/10.1145/3772318.3790873openalex-snapshot
Growing With the Condition: Co-Designing Pediatric Technologies that Adapt Across Developmental Stages
inferred← citeshttps://doi.org/10.1145/3772318.3791116openalex-snapshot
Sharing the Care: Investigating How Conversational AI Might Facilitate Coordination Among Home Care Workers and Family Caregivers
inferred← citeshttps://doi.org/10.1145/3772318.3791609openalex-snapshot
“I’ll Just Do It”: Designing for the Hidden Work of Collaborative Family Caregiving
inferred← citeshttps://doi.org/10.1145/3785651.3831542openalex-snapshot
Beyond Risk Scores: Data Practices and Organizational Tensions in a Strengths-Based Poverty Assessment Platform
inferred← citeshttps://doi.org/10.1145/3786579.3804909openalex-snapshot
On the Role of Human-Precision Medicine Interaction in HCI-for-Health
inferred← citeshttps://doi.org/10.1145/3786579.3804926openalex-snapshot
"It’s Like an Oxygen Mask": A Self-Care Tool Addressing Family Caregivers’ Unmet Needs in Colorectal Cancer Care
inferred← citeshttps://doi.org/10.1145/3788056openalex-snapshot
In the Meantime of Informal Care: Navigating Temporal Tensions in Timebanking CSCW020
inferred← citeshttps://doi.org/10.1145/3816980openalex-snapshot
One Question, Four Voices: How Advice for Alzheimer's Caregiving Differs Between Caregivers, Clinicians, and Large Language Models
inferred← citeshttps://doi.org/10.1145/3816992openalex-snapshot
Rethinking Objectivity in Clinical AI: A Qualitative Study of Concussion Evaluators
inferred← citeshttps://doi.org/10.1145/3831972openalex-snapshot
Negotiating Autonomy, Control, and Privacy in Always-On Home IoT Technology-Mediated Care Relationships with Older Adults
inferred← citeshttps://doi.org/10.1177/10848223251324598openalex-snapshot
Remote Monitoring Acceptance in Elderly Neurological Patients: Examining Sociodemographic Factors in the Pre-Implementation Phase
inferred← citeshttps://doi.org/10.1177/13634593241303607openalex-snapshot
Boundary-work of primary care physicians using telemedicine technologies for communication
inferred← citeshttps://doi.org/10.2196/62986openalex-snapshot
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