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Recruiting Persons with Dementia and Caregivers in a Clinical Trial: Dyads Perceptions

https://doi.org/10.1177/01939459211008563
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

inferredcites →https://doi.org/10.1002/(sici)1099-1166(199906)14:6<481::aid-gps959>3.0.co;2-5openalex-snapshot
Rates of dementia in three ethnoracial groups
inferredcites →https://doi.org/10.1002/alz.12068openalex-snapshot
2020 Alzheimer's disease facts and figures
inferredcites →https://doi.org/10.1002/nur.20466openalex-snapshot
Recruitment and enrollment of caregivers for a lifestyle physical activity clinical trial
inferredcites →https://doi.org/10.1002/nur.21768openalex-snapshot
Characteristics of Qualitative Descriptive Studies: A Systematic Review
inferredcites →https://doi.org/10.1002/trc2.12076openalex-snapshot
Framework for creating storytelling materials to promote African American/Black adult enrollment in research on Alzheimer's disease and related disorders
inferredcites →https://doi.org/10.1007/s10900-016-0279-2openalex-snapshot
Needs, Priorities, and Recommendations for Engaging Underrepresented Populations in Clinical Research: A Community Perspective
inferredcites →https://doi.org/10.1007/s12603-012-0046-8openalex-snapshot
Recruitment strategies for preventive trials. The MAPT study (Multidomain Alzheimer Preventive Trial)
inferredcites →https://doi.org/10.1007/s40520-017-0771-2openalex-snapshot
Motivators for Alzheimer’s disease clinical trial participation
inferredcites →https://doi.org/10.1016/0147-1767(85)90062-8openalex-snapshot
Naturalistic inquiry
inferredcites →https://doi.org/10.1016/0749-5978(91)90020-topenalex-snapshot
The theory of planned behavior
inferredcites →https://doi.org/10.1016/j.gerinurse.2016.11.003openalex-snapshot
Why older adults may decline offers of post-acute care services: A qualitative descriptive study
inferredcites →https://doi.org/10.1016/j.ijotn.2015.05.002openalex-snapshot
Understanding involvement in surgical orthopaedic randomized controlled trials: A qualitative study of patient and health professional views and experiences
inferredcites →https://doi.org/10.1016/j.jagp.2018.10.016openalex-snapshot
A Preliminary Study of Clinical Trial Enrollment Decisions Among People With Mild Cognitive Impairment and Their Study Partners
inferredcites →https://doi.org/10.1016/j.jalz.2009.04.1234openalex-snapshot
Cognitive performance and informant reports in the diagnosis of cognitive impairment and dementia in African Americans and whites
inferredcites →https://doi.org/10.1016/j.jalz.2016.10.001openalex-snapshot
The crisis in recruitment for clinical trials in Alzheimer's and dementia: An action plan for solutions
inferredcites →https://doi.org/10.1016/j.jalz.2018.07.216openalex-snapshot
Prevalence and incidence of clinically diagnosed Alzheimer's disease dementia from 1994 to 2012 in a population study
inferredcites →https://doi.org/10.1016/j.jpainsymman.2016.12.327openalex-snapshot
Family Caregiver Participation in Palliative Care Research: Challenging the Myth
inferredcites →https://doi.org/10.1016/j.socscimed.2009.02.023openalex-snapshot
It's not just what you say, it's also how you say it: Opening the ‘black box’ of informed consent appointments in randomised controlled trials
inferredcites →https://doi.org/10.1016/j.trci.2016.09.004openalex-snapshot
African Americans are less likely to enroll in preclinical Alzheimer's disease clinical trials
inferredcites →https://doi.org/10.1016/j.trci.2017.02.004openalex-snapshot
Recruiting to preclinical Alzheimer's disease clinical trials through registries
inferredcites →https://doi.org/10.1093/geront/gnq063openalex-snapshot
Perceptions, Knowledge, Incentives, and Barriers of Brain Donation Among African American Elders Enrolled in an Alzheimer's Research Program
inferredcites →https://doi.org/10.1097/wad.0000000000000016openalex-snapshot
Facilitating Alzheimer Disease Research Recruitment
inferredcites →https://doi.org/10.1097/wad.0000000000000047openalex-snapshot
Why are Spousal Caregivers More Prevalent than Nonspousal Caregivers as Study Partners in AD Dementia Clinical Trials?
inferredcites →https://doi.org/10.1097/wad.0000000000000258openalex-snapshot
Participant Satisfaction With Learning Alzheimer Disease Clinical Trial Results
inferredcites →https://doi.org/10.1097/wad.0b013e3181f14a14openalex-snapshot
Barriers and Facilitators of African American Participation in Alzheimer Disease Biomarker Research
inferredcites →https://doi.org/10.1111/hex.12012openalex-snapshot
Involving service users in the development of the S upport at H ome: I nterventions to E nhance L ife in D ementia C arer S upporter P rogramme for family carers of people with dementia
inferredcites →https://doi.org/10.1111/j.1365-2648.2007.04569.xopenalex-snapshot
The qualitative content analysis process
inferredcites →https://doi.org/10.1111/j.1752-8062.2011.00349.xopenalex-snapshot
Assessing Research Participants’ Perceptions of their Clinical Research Experiences
inferredcites →https://doi.org/10.1177/0733464811416812openalex-snapshot
Intervention Research With Minority Older Adults
inferredcites →https://doi.org/10.1177/0733464814532012openalex-snapshot
Recruiting Community-Based Dementia Patients and Caregivers in a Nonpharmacologic Randomized Trial
inferredcites →https://doi.org/10.1177/1049732315575708openalex-snapshot
The Symbolic Value and Limitations of Racial Concordance in Minority Research Engagement
inferredcites →https://doi.org/10.1177/1471301216659608openalex-snapshot
Recruitment challenges and strategies: Lessons learned from an early-stage dyadic intervention (innovative practice)
inferredcites →https://doi.org/10.1177/1471301218789292openalex-snapshot
Patient engagement in research related to dementia: A scoping review
inferredcites →https://doi.org/10.1177/1471301219827709openalex-snapshot
“If it helps someone, then I want to do it”: Perspectives of persons living with dementia on research registry participation
inferredcites →https://doi.org/10.1186/1745-6215-12-78openalex-snapshot
Key issues in recruitment to randomised controlled trials with very different interventions: a qualitative investigation of recruitment to the SPARE trial (CRUK/07/011)
inferredcites →https://doi.org/10.1186/alzrt58openalex-snapshot
Addressing the challenges to successful recruitment and retention in Alzheimer's disease clinical trials
inferredcites →https://doi.org/10.1186/s12874-019-0679-yopenalex-snapshot
Strategies for recruitment and retention of underrepresented populations with chronic obstructive pulmonary disease for a clinical trial
inferredcites →https://doi.org/10.1186/s12874-019-0683-2openalex-snapshot
Barriers and recruitment strategies for precarious status migrants in Montreal, Canada
inferredcites →https://doi.org/10.1186/s13063-016-1391-4openalex-snapshot
Optimising recruitment and informed consent in randomised controlled trials: the development and implementation of the Quintet Recruitment Intervention (QRI)
inferredcites →https://doi.org/10.1186/s13195-017-0311-5openalex-snapshot
Attitudes toward clinical trials across the Alzheimer’s disease spectrum
inferredcites →https://doi.org/10.1186/s13195-017-0327-xopenalex-snapshot
Study partners should be required in preclinical Alzheimer’s disease trials
inferredcites →https://doi.org/10.1186/s13195-018-0425-4openalex-snapshot
Study partners: essential collaborators in discovering treatments for Alzheimer’s disease
inferredcites →https://doi.org/10.1212/01.wnl.0000336652.05779.eaopenalex-snapshot
How redesigning AD clinical trials might increase study partners’ willingness to participate
inferredcites →https://doi.org/10.1212/wnl.0b013e31827debfeopenalex-snapshot
Effect of study partner on the conduct of Alzheimer disease clinical trials
inferredcites →https://doi.org/10.1212/wnl.43.11.2412-aopenalex-snapshot
The Clinical Dementia Rating (CDR)
inferredcites →https://doi.org/10.1377/hlthaff.2013.1314openalex-snapshot
Obstacles And Opportunities In Alzheimer’s Clinical Trial Recruitment
inferredcites →https://doi.org/10.18865/ed.30.s2.705openalex-snapshot
Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer’s and Related Dementias Clinical Research
inferredcites →https://doi.org/10.3233/jad-190146openalex-snapshot
Challenges to and Facilitators of Recruitment to an Alzheimer’s Disease Clinical Trial: A Qualitative Interview Study

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

inferred← citeshttps://doi.org/10.2139/ssrn.4197650openalex-extracted
The Feasibility of an Adaptive Riding Program and Acceptability to Dementia Care Partners: 'Your Spirits are Lifted'
inferred← citeshttps://doi.org/10.1016/j.ahr.2025.100236openalex-snapshot
Insights from recruiting individuals with mild dementia and care partners for a multi-site oral hygiene intervention
inferred← citeshttps://doi.org/10.1016/j.ctim.2022.102897openalex-snapshot
Feasibility of an adaptive riding pilot study and acceptability to dementia care partners: “Your spirits are lifted”
inferred← citeshttps://doi.org/10.1016/j.jagp.2023.08.005openalex-snapshot
“And Does That Necessarily Mean Absolutely Alzheimer's?” An Analysis of Questions Raised Following Amyloid PET Results Disclosure
inferred← citeshttps://doi.org/10.1075/ps.23065.davopenalex-snapshot
Learning from initial reviews of multilingual graphics illustrating dementia caregiving
inferred← citeshttps://doi.org/10.1097/njh.0000000000001140openalex-snapshot
Benefits and Burdens of Research Participation: A Mixed Methods Systematic Review in Palliative and End-of-Life Care
inferred← citeshttps://doi.org/10.1101/2025.11.19.25340565openalex-snapshot
“Like taking part in Star Wars”: A thematic analysis of acceptability and experiences of older adults participating in remote longitudinal sleep and dementia research
inferred← citeshttps://doi.org/10.1177/14713012241289471openalex-snapshot
Exploring perceived helpfulness of health services in men and women with dementia and care partners: A cross-sectional analysis
inferred← citeshttps://doi.org/10.1177/15333175231186728openalex-snapshot
Tailored Music Listening in Persons With Dementia: A Feasibility Randomized Clinical Trial
inferred← citeshttps://doi.org/10.1177/15333175241276443openalex-snapshot
Recruiting Persons With Dementia: A Systematic Review of Facilitators, Barriers, and Strategies
inferred← citeshttps://doi.org/10.2196/88094openalex-snapshot
“Like Taking Part in Star Wars”: Qualitative Study Using Thematic Analysis to Explore the Acceptability and Experiences of Older Adults Participating in Remote Longitudinal Sleep and Dementia Research
inferred← citeshttps://doi.org/10.3390/healthcare11152125openalex-snapshot
Designing Inclusive Qualitative Research with Carers of People Living with Dementia: Methodological Insights
inferred← citeshttps://doi.org/10.3928/00989134-20230816-01openalex-snapshot
Effects of Yin Yoga on Burden and Self-Compassion in Caregivers of Persons With Dementia: A Pilot Study
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