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Recommendations for services for people living with chronic breathlessness in advanced disease: Results of a transparent expert consultation

https://doi.org/10.1177/1479973118816448
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

inferredcites →https://doi.org/10.1002/14651858.cd003331.pub4openalex-snapshot
Exercise-based rehabilitation for heart failure
inferredcites →https://doi.org/10.1002/14651858.cd003793.pub3openalex-snapshot
Pulmonary rehabilitation for chronic obstructive pulmonary disease
inferredcites →https://doi.org/10.1016/j.im.2003.11.002openalex-snapshot
The Delphi method as a research tool: an example, design considerations and applications
inferredcites →https://doi.org/10.1016/j.jpainsymman.2005.06.007openalex-snapshot
A Comparison of Symptom Prevalence in Far Advanced Cancer, AIDS, Heart Disease, Chronic Obstructive Pulmonary Disease and Renal Disease
inferredcites →https://doi.org/10.1016/j.jpainsymman.2007.11.008openalex-snapshot
Access to Services for Patients with Chronic Obstructive Pulmonary Disease: The Invisibility of Breathlessness
inferredcites →https://doi.org/10.1016/j.jpainsymman.2015.12.341openalex-snapshot
What Are the Key Elements of Educational Interventions for Lay Carers of Patients With Advanced Disease? A Systematic Literature Search and Narrative Review of Structural Components, Processes and Modes of Delivery
inferredcites →https://doi.org/10.1016/j.rmed.2018.02.021openalex-snapshot
Rate of, and barriers and enablers to, pulmonary rehabilitation referral in COPD: A systematic scoping review
inferredcites →https://doi.org/10.1016/s0140-6736(17)32127-xopenalex-snapshot
Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease
inferredcites →https://doi.org/10.1023/b:ququ.0000019394.78970.dfopenalex-snapshot
``Is There Anything Else You Would Like to Tell Us'' – Methodological Issues in the Use of Free-Text Comments from Postal Surveys
inferredcites →https://doi.org/10.1089/jpm.2010.0068openalex-snapshot
Understanding Breathlessness: Cross-Sectional Comparison of Symptom Burden and Palliative Care Needs in Chronic Obstructive Pulmonary Disease and Cancer
inferredcites →https://doi.org/10.1089/jpm.2010.0479openalex-snapshot
Symptoms, Comorbidities, and Health Care in Advanced Chronic Obstructive Pulmonary Disease or Chronic Heart Failure
inferredcites →https://doi.org/10.1089/jpm.2012.0572openalex-snapshot
Mixed Methods Research in the Development and Evaluation of Complex Interventions in Palliative and End-of-Life Care: Report on the MORECare Consensus Exercise
inferredcites →https://doi.org/10.1097/spc.0000000000000281openalex-snapshot
Carers and breathlessness
inferredcites →https://doi.org/10.1136/bmj.331.7517.631openalex-snapshot
Developing clinical guidelines: a challenge to current methods
inferredcites →https://doi.org/10.1136/bmj.h1258openalex-snapshot
Process evaluation of complex interventions: Medical Research Council guidance
inferredcites →https://doi.org/10.1136/bmjspcare-2014-000654.117openalex-snapshot
THE PALLIATIVE AND END OF LIFE CARE PRIORITY SETTING PARTNERSHIP (PEOLCPSP): DETERMINING EVIDENCE UNCERTAINTIES FROM THE PERSPECTIVE OF THE END USER OF RESEARCH
inferredcites →https://doi.org/10.1136/qshc.2006.019802openalex-snapshot
Recommendations for promoting the engagement of older people in activities to prevent falls
inferredcites →https://doi.org/10.1136/thoraxjnl-2016-208460openalex-snapshot
Physical frailty and pulmonary rehabilitation in COPD: a prospective cohort study
inferredcites →https://doi.org/10.1136/thoraxjnl-2018-211589openalex-snapshot
Holistic services for people with advanced disease and chronic breathlessness: a systematic review and meta-analysis
inferredcites →https://doi.org/10.1177/0269216310368452openalex-snapshot
Defining priorities in prognostication research: results of a consensus workshop
inferredcites →https://doi.org/10.1177/0269216312467489openalex-snapshot
‘Best practice’ in developing and evaluating palliative and end-of-life care services: A meta-synthesis of research methods for the MORECare project
inferredcites →https://doi.org/10.1177/0269216313486952openalex-snapshot
Recommendations for managing missing data, attrition and response shift in palliative and end-of-life care research: Part of the MORECare research method guidance on statistical issues
inferredcites →https://doi.org/10.1177/0269216313488018openalex-snapshot
MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research
inferredcites →https://doi.org/10.1177/0269216313488812openalex-snapshot
Living with breathlessness: A survey of caregivers of breathless patients with lung cancer or heart failure
inferredcites →https://doi.org/10.1177/0269216317690994openalex-snapshot
Variations in the cost of formal and informal health care for patients with advanced chronic disease and refractory breathlessness: A cross-sectional secondary analysis
inferredcites →https://doi.org/10.1177/1479972316642363openalex-snapshot
Building consensus for provision of breathlessness rehabilitation for patients with chronic obstructive pulmonary disease and chronic heart failure
inferredcites →https://doi.org/10.1177/1479972317719086openalex-snapshot
Assessing carer needs in chronic obstructive pulmonary disease
inferredcites →https://doi.org/10.1183/13993003.02277-2016openalex-snapshot
Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness
inferredcites →https://doi.org/10.1186/1472-684x-10-15openalex-snapshot
The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND
inferredcites →https://doi.org/10.1186/1741-7015-11-111openalex-snapshot
Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
inferredcites →https://doi.org/10.1186/s12889-017-4695-8openalex-snapshot
Development of a framework for the co-production and prototyping of public health interventions
inferredcites →https://doi.org/10.1371/journal.pone.0177081openalex-snapshot
Six key topics informal carers of patients with breathlessness in advanced disease want to learn about and why: MRC phase I study to inform an educational intervention

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

inferred← citeshttps://doi.org/10.2139/ssrn.3796121openalex-extracted
Better Breathlessness Services for Older People with Advanced Diseases: A Multicentre Discrete Choice Experiment and Economic Modelling (OPRBreathe)
inferred← citeshttps://doi.org/10.1016/j.jpainsymman.2019.10.012openalex-snapshot
Chronic Breathlessness Explanations and Research Priorities: Findings From an International Delphi Survey
inferred← citeshttps://doi.org/10.1038/s41533-021-00237-9openalex-snapshot
Cutting through complexity: the Breathing, Thinking, Functioning clinical model is an educational tool that facilitates chronic breathlessness management
inferred← citeshttps://doi.org/10.1097/spc.0000000000000435openalex-snapshot
Interdisciplinary management of chronic breathlessness
inferred← citeshttps://doi.org/10.1097/spc.0000000000000678openalex-snapshot
Patient education about breathlessness
inferred← citeshttps://doi.org/10.1136/thoraxjnl-2021-218251openalex-snapshot
Optimising breathlessness triggered services for older people with advanced diseases: a multicentre economic study (OPTBreathe)
inferred← citeshttps://doi.org/10.1177/1479973119872506openalex-snapshot
Reviewing and applying qualitative research to inform management of chronic obstructive pulmonary disease
inferred← citeshttps://doi.org/10.1183/16000617.0170-2022openalex-snapshot
Nonpharmacological management of psychological distress in people with COPD
inferred← citeshttps://doi.org/10.1183/23120541.00228-2020openalex-snapshot
BreathEase: rationale, design and recruitment of a randomised trial and embedded mixed-methods study of a multiprofessional breathlessness service in early palliative care
inferred← citeshttps://doi.org/10.1186/s12904-025-01670-0openalex-snapshot
BreathCarer: Informal carers of patients with chronic breathlessness: a mixed-methods systematic review of burden, needs, coping, and support interventions
inferred← citeshttps://doi.org/10.1186/s12909-020-02006-7openalex-snapshot
Attitude change and increased confidence with management of chronic breathlessness following a health professional training workshop: a survey evaluation
inferred← citeshttps://doi.org/10.12688/hrbopenres.13535.1openalex-snapshot
Music and Movement for Health: Protocol for a pragmatic cluster-randomised feasibility pilot trial of an arts-based programme for the health and wellbeing of older adults
inferred← citeshttps://doi.org/10.12688/hrbopenres.13535.2openalex-snapshot
Music and Movement for Health: Protocol for a pragmatic cluster-randomised feasibility pilot trial of an arts-based programme for the health and wellbeing of older adults
inferred← citeshttps://doi.org/10.3310/hsdr07220openalex-snapshot
Holistic services for people with advanced disease and chronic or refractory breathlessness: a mixed-methods evidence synthesis
inferred← citeshttps://doi.org/10.33448/rsd-v14i11.49973openalex-snapshot
A pesquisa em saúde e o uso da estratégia de Envolvimento de Pacientes e Público (EPP): Revisão de literatura
inferred← citeshttps://doi.org/10.3390/app11199028openalex-snapshot
Comparison of Palliative Care Models in Idiopathic Pulmonary Fibrosis
inferred← citeshttps://doi.org/10.3390/healthcare12181813openalex-snapshot
Explain Breathlessness: Could ‘Usual’ Explanations Contribute to Maladaptive Beliefs of People Living with Breathlessness?
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