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Initiatives, Concepts, and Implementation Practices of the Findable, Accessible, Interoperable, and Reusable Data Principles in Health Data Stewardship: Scoping Review
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What this work says
Outgoing claims: the papers this work cites, builds on, or argues with.
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The radiation oncology ontology ( ROO ): Publishing linked data in radiation oncology using semantic web and ontology techniques
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FAIR‐compliant clinical, radiomics and DICOM metadata of RIDER, interobserver, Lung1 and head‐Neck1 TCIA collections
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Characteristics of drugs safety signals that predict safety related product information update
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Principles of Health Interoperability
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Rare Diseases Epidemiology: Update and Overview
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Data Quality in Rare Diseases Registries
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Semantic interoperability in health records standards: a systematic literature review
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An Introduction to Clinical Registries: Types, Uptake and Future Directions
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FAIR, safe and high-quality data: The data infrastructure and accessibility of the YOUth cohort study
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Implementation and relevance of FAIR data principles in biopharmaceutical R&D
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A formal, scalable approach to semantic interoperability
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Data sharing in the era of COVID-19
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Solutions to COVID-19 data sharing
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The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks
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The VODAN IN: support of a FAIR-based infrastructure for COVID-19
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Connecting data, tools and people across Europe: ELIXIR’s response to the COVID-19 pandemic
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Privacy in the age of medical big data
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The FAIR Guiding Principles for scientific data management and stewardship
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DATS, the data tag suite to enable discoverability of datasets
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A reference set of curated biomedical data and metadata from clinical case reports
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Public and Population Health Informatics: The Bridging of Big Data to Benefit Communities
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Scoping studies: towards a methodological framework
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Development of an international data repository and research resource: the Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive
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The Research Data Alliance: globally co‐ordinated action against barriers to data publishing and sharing
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Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health
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Project Tycho 2.0: a repository to improve the integration and reuse of data for global population health
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Anonymising and sharing individual patient data
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SCALEUS‐FD: A FAIR Data Tool for Biomedical Applications
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The Semantic Data Dictionary – An Approach for Describing and Annotating Data
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Exploring the Current Practices, Costs and Benefits of FAIR Implementation in Pharmaceutical Research and Development: A Qualitative Interview Study
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Fair data for next-generation management of multiple sclerosis
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Menoci: lightweight extensible web portal enhancing data management for biomedical research projects
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The French National Registry of patients with Facioscapulohumeral muscular dystrophy
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Rayyan—a web and mobile app for systematic reviews
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Development of an informatics system for accelerating biomedical research.
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FAIR Access to Personal Health Information in Private and Public COVID-19 Health Applications
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OSSE Goes FAIR – Implementation of the FAIR Data Principles for an Open-Source Registry for Rare Diseases
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Impact Analysis of the Policy for Access of Administrative Data in France: A Before-After Study
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German Medical Informatics Initiative
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