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Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID

https://doi.org/10.3399/bjgpopen20x101143
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

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Persistent Symptoms in Patients After Acute COVID-19
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Saturation in qualitative research: exploring its conceptualization and operationalization
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Are we facing a crashing wave of neuropsychiatric sequelae of COVID-19? Neuropsychiatric symptoms and potential immunologic mechanisms
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Medically unexplained symptoms in the times of COVID-19 pandemic: A case-report
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Surveillance is underestimating the burden of the COVID-19 pandemic
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Long-term consequences of COVID-19: research needs
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Neurological associations of COVID-19
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Neurological and neuropsychiatric complications of COVID-19 in 153 patients: a UK-wide surveillance study
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Thematic analysis.
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A negative COVID-19 test does not mean recovery
inferredcites →https://doi.org/10.1097/acm.0000000000000388openalex-snapshot
Standards for Reporting Qualitative Research
inferredcites →https://doi.org/10.1111/1467-9566.ep11339939openalex-snapshot
Chronic illness as biographical disruption
inferredcites →https://doi.org/10.1136/bmj.g6680openalex-snapshot
Thinking about the burden of treatment
inferredcites →https://doi.org/10.1136/bmj.m1985openalex-snapshot
Features of 20 133 UK patients in hospital with covid-19 using the ISARIC WHO Clinical Characterisation Protocol: prospective observational cohort study
inferredcites →https://doi.org/10.1136/bmj.m2490openalex-snapshot
Helen Salisbury: When will we be well again?
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NICE cautions against using graded exercise therapy for patients recovering from covid-19
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Long term respiratory complications of covid-19
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Management of post-acute covid-19 in primary care
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COVID-19 and the Heart
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Synthesising qualitative and quantitative evidence: A review of possible methods
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Chronic widespread musculoskeletal pain, fatigue, depression and disordered sleep in chronic post-SARS syndrome; a case-controlled study
inferredcites →https://doi.org/10.12688/wellcomeopenres.16307.1openalex-snapshot
Why the Patient-Made Term 'Long Covid' is needed
inferredcites →https://doi.org/10.1371/journal.pone.0240784openalex-snapshot
Persistent fatigue following SARS-CoV-2 infection is common and independent of severity of initial infection
inferredcites →https://doi.org/10.3399/bjgp17x689473openalex-snapshot
Medically unexplained symptoms: continuing challenges for primary care
inferredcites →https://doi.org/10.4135/9781483384436openalex-snapshot
Applied Thematic Analysis
inferredcites →https://doi.org/10.5860/choice.47-0901openalex-snapshot
Qualitative methods for health research

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

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More than 50 Long-Term Effects of COVID-19: A Systematic Review and Meta-Analysis
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Unexplained Symptoms
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Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients
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Neurological long-COVID: Associations among fatigue, dysautonomia, depression, and subjective memory complaints
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Deficient GABABergic and glutamatergic excitability in the motor cortex of patients with long-COVID and cognitive impairment
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Patient-provider relationships and long COVID: A cross-sectional survey about impact on quality of life
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Prevalence and risk factors for long COVID among adults in Scotland using electronic health records: a national, retrospective, observational cohort study
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Managing long COVID symptoms and accessing health services in Brazil: A grounded theory analysis
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Unravelling general practitioners' barriers to deal with long COVID: Experiences from Malta
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“I'm staying as informed as I can and trying to make nutritional & lifestyle amendments”: COVID long-haulers’ strategies for managing uncertainty and assessing the trustworthiness of COVID-19-related information
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Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions
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Medical invalidation is associated with structural barriers in postacute immune mediated syndromes based on patient perspectives in Germany
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Conceptualising the Episodic Nature of Disability among Adults Living with Long COVID: A Qualitative Study
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Perceptions and experiences of different Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals
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Effects of Six Weeks of Supervised Telerehabilitation on Pulmonary Function, Functional Capacity, and Dyspnoea among individuals with Long COVID
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Results
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Young adults’ experiences of biographical retrogression whilst living with long COVID
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Holding the hope? Therapist and client perspectives on long COVID recovery: A Q‐methodology
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'Reluctant pioneer': A qualitative study of doctors' experiences as patients with long COVID
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Exploring invisibility and epistemic injustice in Long Covid—A citizen science qualitative analysis of patient stories from an online Covid community
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Creative Long Covid: A qualitative exploration of the experience of Long Covid through the medium of creative narratives
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‘I don't know what to do or where to go’. Experiences of accessing healthcare support from the perspectives of people living with Long Covid and healthcare professionals: A qualitative study in Bradford, UK
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Barriers to healthcare access and experiences of stigma: Findings from a coproduced Long Covid case‐finding study
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Digital Long Covid Communities—Shaping Diagnoses, Treatment Strategies and Modes of Expertise
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Living With Persistent Respiratory Symptoms of Long COVID: Qualitative Study Among Brazilian Adults 12 Months After Acute Infection
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Challenges of Inclusion: A Population‐Based Interview Study of Long Covid
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What Can We Learn Four Years On? A Multi‐Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid
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Vital yet Fragile: Informal Networks of Support Among Young People Navigating Long Covid
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How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease
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‘The body seems to have no life’: The experiences and perceptions of fatigue among patients after COVID‐19
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Implications for long COVID : A systematic review and meta‐aggregation of experience of patients diagnosed with COVID ‐19
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Living with pulmonary sequelae of COVID‐19 and the implications for clinical nursing practice: A qualitative systematised review
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‘I'm still here, I'm alive and breathing’: The experience of Black Americans with long COVID
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The road to addressing Long Covid
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Long covid and disability: a brave new world
inferred← citeshttps://doi.org/10.1136/bmj-2023-075387openalex-snapshot
Cognitive dysfunction after covid-19
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Mental health support through primary care during and after covid-19
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Conceptualising the episodic nature of disability among adults living with Long COVID: a qualitative study
inferred← citeshttps://doi.org/10.1136/bmjopen-2020-047632openalex-snapshot
Long COVID and the role of physical activity: a qualitative study
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Experiences of living with long COVID and of accessing healthcare services: a qualitative systematic review
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‘I can’t cope with multiple inputs’: a qualitative study of the lived experience of ‘brain fog’ after COVID-19
inferred← citeshttps://doi.org/10.1136/bmjopen-2022-067166openalex-snapshot
Social support, distress and well-being in individuals experiencing Long-COVID: a cross-sectional survey study
inferred← citeshttps://doi.org/10.1136/bmjopen-2023-078740openalex-snapshot
Investigating Scottish Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals: a qualitative descriptive study
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What is current care for people with Long COVID in England? A qualitative interview study
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Identifying the needs of people with long COVID: a qualitative study in the UK
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Exploring the perceptions and experiences of community rehabilitation for Long COVID from the perspectives of Scottish general practitioners’ and people living with Long COVID: a qualitative study
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Experiences of physiotherapists working with adults living with Long COVID in Canada: a qualitative study
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Tracking Persistent Symptoms in Scotland (TraPSS): a longitudinal prospective cohort study of COVID-19 recovery after mild acute infection
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Cluster analysis of post-COVID-19 physical and mental health outcomes 3–6 months after SARS-CoV-2 infection: results of the French Prospective ALCOVID Cohort Study
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How can post-COVID care be improved using patient experiences with received care and perceived health? A qualitative study of focus groups with 30 patients having post-COVID in the Netherlands
inferred← citeshttps://doi.org/10.1136/bmjopen-2025-109911openalex-snapshot
Model of care to promote recovery in older people with long COVID: findings from interviews and a co-design workshop
inferred← citeshttps://doi.org/10.1136/bmjpo-2025-004167openalex-snapshot
“It’s sad, and I want to go back to how things were before”: a qualitative study of young people’s experiences of living with long COVID
inferred← citeshttps://doi.org/10.1136/medhum-2022-012415openalex-snapshot
Making space for disability studies within a structurally competent medical curriculum: reflections on long Covid
inferred← citeshttps://doi.org/10.1155/2022/4590154openalex-snapshot
Occupational Therapy-Based Energy Management Education in People with Post-COVID-19 Condition-Related Fatigue: Results from a Focus Group Discussion
inferred← citeshttps://doi.org/10.1155/oti/4676712openalex-snapshot
Experiences of People With Long COVID Accessing Rehabilitation Services: A Qualitative Study
inferred← citeshttps://doi.org/10.1176/appi.ps.20240457openalex-snapshot
Long COVID in Populations With Serious Mental Illness: Clinical and Policy Implications
inferred← citeshttps://doi.org/10.1177/10538135241296773openalex-snapshot
A Systems Neuroscience Approach to Diagnosis and Rehabilitation of Post COVID Neurological Syndrome Based on the Systems Neuroscience Test Battery (SNTB) Study Protocol
inferred← citeshttps://doi.org/10.1177/10547738221078898openalex-snapshot
Lived Experiences of COVID-19 Patients With Pulmonary Involvement: A Hermeneutic Phenomenology
inferred← citeshttps://doi.org/10.1177/13591053221084494openalex-snapshot
Long Covid at the crossroads: Comparisons and lessons from the treatment of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
inferred← citeshttps://doi.org/10.1177/13591053241272233openalex-snapshot
Understanding post-hospitalised patients’ experiences of long COVID – the PELCO study
inferred← citeshttps://doi.org/10.1177/13591053251325112openalex-snapshot
Patients’ experiences of living with Long Covid and their beliefs about the role of psychology in their condition
inferred← citeshttps://doi.org/10.1177/17557380221092790openalex-snapshot
The long-term management of COVID-19 and post COVID-19 syndrome
inferred← citeshttps://doi.org/10.1177/20551029251349409openalex-snapshot
Coping with long-COVID stigma: The role of self-compassion and self-coldness
inferred← citeshttps://doi.org/10.1177/21501319231222364openalex-snapshot
Prevalence and Predictors of Post-Acute COVID-19 Symptoms in Italian Primary Care Patients
inferred← citeshttps://doi.org/10.1177/21501327211041846openalex-snapshot
Patients’ Experiences of “Long COVID” in the Community and Recommendations for Improving Services: A Quality Improvement Survey
inferred← citeshttps://doi.org/10.1177/23743735231151539openalex-snapshot
Patient Experiences with a Tertiary Care Post-COVID-19 Clinic
inferred← citeshttps://doi.org/10.1177/23743735231151770openalex-snapshot
Seeking Care for Long COVID: A Narrative Analysis of Canadian Experiences
inferred← citeshttps://doi.org/10.1177/23743735241230144openalex-snapshot
Different but the Same: Common Themes in Illness Experience Among People With Diverse Long COVID Symptoms and the Potential Benefits of Virtual Group Medical Visits
inferred← citeshttps://doi.org/10.1183/13993003.00653-2022openalex-snapshot
The curious incident of long COVID symptoms, from an imaginary condition to a recognised syndrome: a “small victory”
inferred← citeshttps://doi.org/10.1183/23120541.00565-2022openalex-snapshot
A typology of healthcare pathways after hospital discharge for adults with COVID-19: the evolution of UK services during pandemic conditions
inferred← citeshttps://doi.org/10.1186/s10194-022-01450-8openalex-snapshot
Long COVID headache
inferred← citeshttps://doi.org/10.1186/s12875-022-01736-5openalex-snapshot
Knowing the entire story – a focus group study on patient experiences with chronic Lyme-associated symptoms (chronic Lyme disease)
inferred← citeshttps://doi.org/10.1186/s12875-024-02597-wopenalex-snapshot
Care needs of patients with the post-COVID syndrome in Dutch general practice: an interview study among patients and general practitioners
inferred← citeshttps://doi.org/10.1186/s12875-024-02617-9openalex-snapshot
Caring for Long Covid patients in primary healthcare: a cross-sectional study on general practitioners’ knowledge, perception and experience in Belgium and Malta
inferred← citeshttps://doi.org/10.1186/s12875-026-03376-5openalex-snapshot
“Loops and hurdles”: secondary analysis of patient interview data to explore the experience of patient access to UK general practice
inferred← citeshttps://doi.org/10.1186/s12877-022-02959-yopenalex-snapshot
“This path I must walk alone”. Challenges experienced by older patients while recovering from severe COVID-19 – a qualitative study
inferred← citeshttps://doi.org/10.1186/s12887-025-06173-8openalex-snapshot
Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child’s perspective
inferred← citeshttps://doi.org/10.1186/s12888-022-04497-8openalex-snapshot
The emotional well-being of Long COVID patients in relation to their symptoms, social support and stigmatization in social and health services: a qualitative study
inferred← citeshttps://doi.org/10.1186/s12889-023-16079-8openalex-snapshot
Interventions to support mental health in people with long COVID: a scoping review
inferred← citeshttps://doi.org/10.1186/s12889-024-18267-6openalex-snapshot
An exploration of the experiences and self-generated strategies used when navigating everyday life with Long Covid
inferred← citeshttps://doi.org/10.1186/s12889-024-19300-4openalex-snapshot
Cardiovascular diseases as risk factors of post-COVID syndrome: a systematic review
inferred← citeshttps://doi.org/10.1186/s12889-024-20475-zopenalex-snapshot
“A bit of a cough, tired, not very resilient – is that already Long-COVID?” perceptions and experiences of GPs with Long-COVID in year three of the pandemic. a qualitative interview study in Austria
inferred← citeshttps://doi.org/10.1186/s12906-026-05430-2openalex-snapshot
Perceptions, acceptability and experiences of yoga to support long-COVID: a survey of people living with long-COVID
inferred← citeshttps://doi.org/10.1186/s12913-020-06001-yopenalex-snapshot
Persistent symptoms after Covid-19: qualitative study of 114 “long Covid” patients and draft quality principles for services
inferred← citeshttps://doi.org/10.1186/s12913-022-08384-6openalex-snapshot
Possible long COVID healthcare pathways: a scoping review
inferred← citeshttps://doi.org/10.1186/s12913-023-10091-9openalex-snapshot
Swept under the carpet: a qualitative study of patient perspectives on Long COVID, treatments, services, and mental health
inferred← citeshttps://doi.org/10.1186/s12913-023-10288-yopenalex-snapshot
“None of us are lying”: an interpretive description of the search for legitimacy and the journey to access quality health services by individuals living with Long COVID
inferred← citeshttps://doi.org/10.1186/s12913-024-10891-7openalex-snapshot
“They seemed to be like cogs working in different directions”: a longitudinal qualitative study on Long COVID healthcare services in the United Kingdom from a person-centred lens
inferred← citeshttps://doi.org/10.1186/s12913-024-11283-7openalex-snapshot
Using a novel methodology to map Post-COVID services for children and young people in England: a web-based systematic search
inferred← citeshttps://doi.org/10.1186/s12913-024-11488-wopenalex-snapshot
Self-perceived barriers to healthcare access for patients with post COVID-19 condition
inferred← citeshttps://doi.org/10.1186/s12913-025-12590-3openalex-snapshot
Health and social service provider perspectives on challenges, approaches, and recommendations for treating long COVID: a qualitative study of Canadian provider experiences
inferred← citeshttps://doi.org/10.1186/s12913-025-12677-xopenalex-snapshot
The impact of long COVID on UK healthcare workers and their workplace: a qualitative study of healthcare workers with long COVID, their families, colleagues and managers
inferred← citeshttps://doi.org/10.1186/s12916-023-02897-5openalex-snapshot
Healthcare use attributable to COVID-19: a propensity-matched national electronic health records cohort study of 249,390 people in Wales, UK
inferred← citeshttps://doi.org/10.1186/s12939-024-02302-4openalex-snapshot
Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria
inferred← citeshttps://doi.org/10.1186/s12961-025-01298-9openalex-snapshot
An international comparison of longitudinal health data collected on long COVID in nine high income countries: a qualitative data analysis
inferred← citeshttps://doi.org/10.1186/s12982-025-00822-0openalex-snapshot
Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States
inferred← citeshttps://doi.org/10.1186/s12985-023-02061-8openalex-snapshot
Acute and post-acute sequelae of SARS-CoV-2 infection: a review of risk factors and social determinants
inferred← citeshttps://doi.org/10.1186/s41687-023-00570-2openalex-snapshot
Patients’ lived experience and reflections on long COVID: an interpretive phenomenological analysis within an integrated adult primary care psychology NHS service
inferred← citeshttps://doi.org/10.1192/bjo.2021.63openalex-snapshot
Psychological distress among people with probable COVID-19 infection: analysis of the UK Household Longitudinal Study
inferred← citeshttps://doi.org/10.1192/bjo.2022.38openalex-snapshot
Factors shaping the mental health and well-being of people experiencing persistent COVID-19 symptoms or ‘long COVID’: qualitative study
inferred← citeshttps://doi.org/10.1192/bjp.2022.155openalex-snapshot
Psychological consequences of long COVID: comparing trajectories of depressive and anxiety symptoms before and after contracting SARS-CoV-2 between matched long- and short-COVID groups
inferred← citeshttps://doi.org/10.1370/afm.3145openalex-snapshot
Challenges in Receiving Care for Long COVID: A Qualitative Interview Study Among Primary Care Patients About Expectations and Experiences
inferred← citeshttps://doi.org/10.1371/journal.pgph.0003126openalex-snapshot
A critical analysis of UK media characterisations of Long Covid in children and young people
inferred← citeshttps://doi.org/10.1371/journal.pone.0254642openalex-snapshot
Self-management for chronic widespread pain including fibromyalgia: A systematic review and meta-analysis
inferred← citeshttps://doi.org/10.1371/journal.pone.0257604openalex-snapshot
SARS-CoV-2 pneumonia follow-up and long COVID in primary care: A retrospective observational study in Madrid city
inferred← citeshttps://doi.org/10.1371/journal.pone.0264331openalex-snapshot
Characteristics and impact of Long Covid: Findings from an online survey
inferred← citeshttps://doi.org/10.1371/journal.pone.0275166openalex-snapshot
Exploring the lived experience of Long Covid in black and minority ethnic groups in the UK: Protocol for qualitative interviews and art-based methods
inferred← citeshttps://doi.org/10.1371/journal.pone.0277317openalex-snapshot
Long Covid stigma: Estimating burden and validating scale in a UK-based sample
inferred← citeshttps://doi.org/10.1371/journal.pone.0280943openalex-snapshot
Awareness and perceptions of Long COVID among people in the REACT programme: Early insights from a pilot interview study
inferred← citeshttps://doi.org/10.1371/journal.pone.0281884openalex-snapshot
Living with “long COVID”: A systematic review and meta-synthesis of qualitative evidence
inferred← citeshttps://doi.org/10.1371/journal.pone.0284297openalex-snapshot
Long Covid active case finding study protocol: A co-produced community-based pilot within the STIMULATE-ICP study (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways)
inferred← citeshttps://doi.org/10.1371/journal.pone.0291173openalex-snapshot
Pre-pandemic activity on a myalgic encephalomyelitis/chronic fatigue syndrome support forum is highly associated with later activity on a long COVID support forum for a variety of reasons: A mixed methods study
inferred← citeshttps://doi.org/10.1371/journal.pone.0292630openalex-snapshot
The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping
inferred← citeshttps://doi.org/10.1371/journal.pone.0299743openalex-snapshot
What is the impact of long-term COVID-19 on workers in healthcare settings? A rapid systematic review of current evidence
inferred← citeshttps://doi.org/10.1371/journal.pone.0305187openalex-snapshot
Episodic disability framework in the context of Long COVID: Findings from a community-engaged international qualitative study
inferred← citeshttps://doi.org/10.1371/journal.pone.0306077openalex-snapshot
Enhancing long COVID care in general practice: A qualitative study
inferred← citeshttps://doi.org/10.1371/journal.pone.0314131openalex-snapshot
Fatigue and cognitive dysfunction in previously hospitalized patients with COVID-19: A 1-year follow-up
inferred← citeshttps://doi.org/10.1371/journal.pone.0319874openalex-snapshot
Factors associated with the presence and intensity of ongoing symptoms in Long COVID
inferred← citeshttps://doi.org/10.15619/nzjp.v51i2.288openalex-snapshot
Awareness, knowledge, and management of long COVID amongst a cohort of primary care-based physiotherapists in New Zealand
inferred← citeshttps://doi.org/10.15656/kjcg.2022.23.1.16openalex-snapshot
Residual Neuropsychiatric Sequelae of the Elderly and Neurocognitive Disorder Patients Who Recovered from Coronavirus Infection (COVID-19) : A review
inferred← citeshttps://doi.org/10.1590/s2237-96222025v34e20240220.enopenalex-snapshot
Development and validation of an instrument for tracking and analyzing recovery from symptoms associated with COVID-19
inferred← citeshttps://doi.org/10.1590/s2237-96222025v34e20240220.ptopenalex-snapshot
Elaboração e validação de instrumento para rastreio e análise da recuperação de sintomas associados à covid-19
inferred← citeshttps://doi.org/10.17294/2330-0698.2000openalex-snapshot
“Healing Can Be a Very Jagged Line”: Reflections on Life as a COVID-19 Long Hauler
inferred← citeshttps://doi.org/10.17765/2176-9206.2023v16n3.e11263openalex-snapshot
A experiência da COVID-19 pelo olhar de quem apresentou a doença: um estudo qualitativo
inferred← citeshttps://doi.org/10.17816/cs626503openalex-snapshot
COVID-19 and post-disease features in patients with obesity
inferred← citeshttps://doi.org/10.18203/2319-2003.ijbcp20232569openalex-snapshot
Long-COVID versus adverse event following COVID vaccination among students and staff of tertiary care teaching hospital
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