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Position paper on management of personal data in environment and health research in Europe
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What this work says
Outgoing claims: the papers this work cites, builds on, or argues with.
inferredcites →https://doi.org/10.1007/s10654-020-00662-zopenalex-snapshot
The LifeCycle Project-EU Child Cohort Network: a federated analysis infrastructure and harmonized data of more than 250,000 children and parents
inferredcites →https://doi.org/10.1016/j.csbj.2020.03.027openalex-snapshot
Dynamic-informed consent: A potential solution for ethical dilemmas in population sequencing initiatives
inferredcites →https://doi.org/10.1016/j.ejca.2018.09.032openalex-snapshot
Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate
inferredcites →https://doi.org/10.1016/j.envint.2014.09.013openalex-snapshot
Prenatal exposure to PCB-153, p,p′-DDE and birth outcomes in 9000 mother–child pairs: Exposure–response relationship and effect modifiers
inferredcites →https://doi.org/10.1016/j.ijheh.2021.113809openalex-snapshot
HBM4EU combines and harmonises human biomonitoring data across the EU, building on existing capacity – The HBM4EU survey
inferredcites →https://doi.org/10.1016/j.jaci.2013.12.1082openalex-snapshot
Preterm birth, infant weight gain, and childhood asthma risk: A meta-analysis of 147,000 European children
inferredcites →https://doi.org/10.1016/j.jbi.2020.103421openalex-snapshot
FAIR data sharing: The roles of common data elements and harmonization
inferredcites →https://doi.org/10.1016/j.media.2020.101765openalex-snapshot
Multi-site fMRI analysis using privacy-preserving federated learning and domain adaptation: ABIDE results
inferredcites →https://doi.org/10.1016/j.xgen.2021.100028openalex-snapshot
The Data Use Ontology to streamline responsible access to human biomedical datasets
inferredcites →https://doi.org/10.1016/j.xgen.2021.100029openalex-snapshot
GA4GH: International policies and standards for data sharing across genomic research and healthcare
inferredcites →https://doi.org/10.1038/s41431-018-0115-5openalex-snapshot
RD-Connect, NeurOmics and EURenOmics: collaborative European initiative for rare diseases
inferredcites →https://doi.org/10.1038/s41431-021-00852-7openalex-snapshot
Solving patients with rare diseases through programmatic reanalysis of genome-phenome data
inferredcites →https://doi.org/10.1038/s41431-021-00859-0openalex-snapshot
Solve-RD: systematic pan-European data sharing and collaborative analysis to solve rare diseases
inferredcites →https://doi.org/10.1038/s41587-019-0055-9openalex-snapshot
The International Cancer Genome Consortium Data Portal
inferredcites →https://doi.org/10.1038/sdata.2016.18openalex-snapshot
The FAIR Guiding Principles for scientific data management and stewardship
inferredcites →https://doi.org/10.1089/bio.2016.0088openalex-snapshot
BBMRI-ERIC Directory: 515 Biobanks with Over 60 Million Biological Samples
inferredcites →https://doi.org/10.1089/bio.2017.0110openalex-snapshot
Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health
inferredcites →https://doi.org/10.1093/bioinformatics/bty742openalex-snapshot
MOLGENIS research: advanced bioinformatics data software for non-bioinformaticians
inferredcites →https://doi.org/10.1093/ije/dyu188openalex-snapshot
DataSHIELD: taking the analysis to the data, not the data to the analysis
inferredcites →https://doi.org/10.1093/ije/dyx190openalex-snapshot
Cohort Profile: Pregnancy And Childhood Epigenetics (PACE) Consortium
inferredcites →https://doi.org/10.1093/toxsci/kfz214openalex-snapshot
Deciphering Adverse Outcome Pathway Network Linked to Bisphenol F Using Text Mining and Systems Toxicology Approaches
inferredcites →https://doi.org/10.1097/ede.0000000000000076openalex-snapshot
Long-term Exposure to Air Pollution and Cardiovascular Mortality
inferredcites →https://doi.org/10.1097/ee9.0000000000000162openalex-snapshot
Developing the building blocks to elucidate the impact of the urban exposome on cardiometabolic-pulmonary disease
inferredcites →https://doi.org/10.1097/ee9.0000000000000166openalex-snapshot
Advancing tools for human early lifecourse exposome research and translation (ATHLETE)
inferredcites →https://doi.org/10.1136/bmj.n1904openalex-snapshot
Long term exposure to low level air pollution and mortality in eight European cohorts within the ELAPSE project: pooled analysis
inferredcites →https://doi.org/10.1136/bmjopen-2017-021311openalex-snapshot
Human Early Life Exposome (HELIX) study: a European population-based exposome cohort
inferredcites →https://doi.org/10.1136/jech-2020-214259openalex-snapshot
Overview of retrospective data harmonisation in the MINDMAP project: process and results
inferredcites →https://doi.org/10.1162/dint_a_00032openalex-snapshot
Distributed Analytics on Sensitive Medical Data: The Personal Health Train
inferredcites →https://doi.org/10.1200/cci.19.00047openalex-snapshot
Systematic Review of Privacy-Preserving Distributed Machine Learning From Federated Databases in Health Care
inferredcites →https://doi.org/10.1289/ehp.1103767openalex-snapshot
Birth Weight and Prenatal Exposure to Polychlorinated Biphenyls (PCBs) and Dichlorodiphenyldichloroethylene (DDE): A Meta-analysis within 12 European Birth Cohorts
inferredcites →https://doi.org/10.1289/ehp.1408616openalex-snapshot
First Steps toward Harmonized Human Biomonitoring in Europe: Demonstration Project to Perform Human Biomonitoring on a European Scale
inferredcites →https://doi.org/10.1289/ehp208openalex-snapshot
Occupational Exposure to Endocrine-Disrupting Chemicals and Birth Weight and Length of Gestation: A European Meta-Analysis
inferredcites →https://doi.org/10.1371/journal.pbio.1002165openalex-snapshot
The Economics of Reproducibility in Preclinical Research
inferredcites →https://doi.org/10.1371/journal.pone.0200926openalex-snapshot
Fostering population-based cohort data discovery: The Maelstrom Research cataloguing toolkit
inferredcites →https://doi.org/10.1561/0400000042openalex-snapshot
The Algorithmic Foundations of Differential Privacy
inferredcites →https://doi.org/10.2196/22214openalex-snapshot
The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review
inferredcites →https://doi.org/10.2217/pme-2018-0145openalex-snapshot
Preparing Next-Generation Scientists for Biomedical Big Data: Artificial Intelligence Approaches
inferredcites →https://doi.org/10.3390/s21010167openalex-snapshot
Open-Source Federated Learning Frameworks for IoT: A Comparative Review and Analysis
What points at this work
Incoming claims: where this work appears in other papers’ reference lists and arguments.
inferred← citeshttps://doi.org/10.2139/ssrn.4680185openalex-extracted
Desiderata for Discoverability and Fair Adoption Of Health Data Hubs
inferred← citeshttps://doi.org/10.1007/7854_2024_467openalex-snapshot
Population Neuroscience: Strategies to Promote Data Sharing While Protecting Privacy
inferred← citeshttps://doi.org/10.1007/s00068-023-02240-wopenalex-snapshot
Opportunities and barriers for prehospital emergency medical services research in the Netherlands; results of a mixed-methods consensus study
inferred← citeshttps://doi.org/10.1007/s00146-023-01743-9openalex-snapshot
Beyond federated data: a data commoning proposition for the EU’s citizen-centric digital strategy
inferred← citeshttps://doi.org/10.1007/s11192-024-05227-5openalex-snapshot
The compliance to FAIR principles of shared data in addiction research
inferred← citeshttps://doi.org/10.1016/j.envint.2022.107476openalex-snapshot
Developing human biomonitoring as a 21st century toolbox within the European exposure science strategy 2020–2030
inferred← citeshttps://doi.org/10.1016/j.envint.2024.108931openalex-snapshot
Urinary concentrations of phthalate/DINCH metabolites and body mass index among European children and adolescents in the HBM4EU Aligned Studies: A cross-sectional multi-country study
inferred← citeshttps://doi.org/10.1016/j.envint.2025.109601openalex-snapshot
Guidance on minimum information requirements (MIR) from designing to reporting human biomonitoring (HBM)
inferred← citeshttps://doi.org/10.1016/j.jbi.2024.104700openalex-snapshot
Desiderata for discoverability and FAIR adoption of health data hubs
inferred← citeshttps://doi.org/10.1016/j.neuroscience.2025.06.048openalex-snapshot
Transcriptomic analysis reveals novel targets in benign schwannoma using machine learning
inferred← citeshttps://doi.org/10.1186/s12961-023-01026-1openalex-snapshot
Health data hubs: an analysis of existing data governance features for research
inferred← citeshttps://doi.org/10.2478/jec-2024-0028openalex-snapshot
Systematization of Processes of Value-Creating Activities of Operational Sustainability and Social Responsibility
inferred← citeshttps://doi.org/10.30525/978-9934-26-310-1-18openalex-snapshot
PROTECTION OF PERSONAL DATA IN THE LAW OF UKRAINE: CURRENT STATUS AND RECOMMENDATIONS FOR CHANGES
inferred← citeshttps://doi.org/10.3233/shti230452openalex-snapshot
Desiderata for the Data Governance and FAIR Principles Adoption in Health Data Hubs
inferred← citeshttps://doi.org/10.3389/fcvm.2023.1104699openalex-snapshot
GENERATOR HEART FAILURE DataMart: An integrated framework for heart failure research
inferred← citeshttps://doi.org/10.3389/ftox.2023.1116707openalex-snapshot
FAIR environmental and health registry (FAIREHR)- supporting the science to policy interface and life science research, development and innovation
inferred← citeshttps://doi.org/10.3390/data10070105openalex-snapshot
Expert Experiences in Anonymizing Personal Data and Its Use as Open Data: Qualitative Insights
inferred← citeshttps://doi.org/10.3390/info15010005openalex-snapshot
A Scoping Review on Analysis of the Barriers and Support Factors of Open Data
inferred← citeshttps://doi.org/10.3390/info16121111openalex-snapshot
Experiences Regarding Anonymising and Publishing Personal Data as Open Data in Germany: Results of an Online Survey
inferred← citeshttps://doi.org/10.3390/make5030053openalex-snapshot
Artificial Intelligence Ethics and Challenges in Healthcare Applications: A Comprehensive Review in the Context of the European GDPR Mandate
inferred← citeshttps://doi.org/10.34185/1562-9945-5-148-2023-06openalex-snapshot
Design of software system architecture for medical-biological objects digital twins creating
inferred← citeshttps://doi.org/10.5772/intechopen.1015851openalex-snapshot
Ethics, Privacy and Biological Data: Challenges, Risks and Governance in the Era of Genomics and Personalized Medicine
inferred← citeshttps://doi.org/10.6084/m9.figshare.26603194openalex-snapshot
Additional file 1 of Health data hubs: an analysis of existing data governance features for research
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