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The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review

https://doi.org/10.2196/22214
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

inferredcites →https://doi.org/10.1001/jama.2009.389openalex-snapshot
Ownership of Medical Information
inferredcites →https://doi.org/10.1001/jama.2013.393openalex-snapshot
The Inevitable Application of Big Data to Health Care
inferredcites →https://doi.org/10.1001/jama.2017.12145openalex-snapshot
The Pathway to Patient Data Ownership and Better Health
inferredcites →https://doi.org/10.1001/jama.2017.18391openalex-snapshot
Big Data and Machine Learning in Health Care
inferredcites →https://doi.org/10.1001/virtualmentor.2012.14.9.pfor1-1209openalex-snapshot
Would Patient Ownership of Health Data Improve Confidentiality?
inferredcites →https://doi.org/10.1007/978-1-4842-0040-7_1openalex-snapshot
Big Data
inferredcites →https://doi.org/10.1007/978-3-030-03553-2openalex-snapshot
Personalized Psychiatry
inferredcites →https://doi.org/10.1007/978-3-030-03553-2_9openalex-snapshot
Ethics in the Era of Big Data
inferredcites →https://doi.org/10.1007/978-3-319-06245-7openalex-snapshot
Big Data
inferredcites →https://doi.org/10.1007/978-3-319-20765-0_23openalex-snapshot
The Role of Big Data and Analytics in Health Payer Transformation to Consumer-Centricity
inferredcites →https://doi.org/10.1007/978-3-319-44805-3openalex-snapshot
Technology and Intimacy: Choice or Coercion
inferredcites →https://doi.org/10.1007/978-3-642-81046-6openalex-snapshot
Mathematical Demography
inferredcites →https://doi.org/10.1007/978-3-642-81046-6_2openalex-snapshot
Natural and Political Observations Mentioned in a Following Index, and Made Upon the Bills of Mortality
inferredcites →https://doi.org/10.1007/s10916-016-0574-6openalex-snapshot
Healthcare Data Gateways: Found Healthcare Intelligence on Blockchain with Novel Privacy Risk Control
inferredcites →https://doi.org/10.1007/s11606-013-2455-8openalex-snapshot
Bringing Big Data to Personalized Healthcare: A Patient-Centered Framework
inferredcites →https://doi.org/10.1007/s11673-017-9809-6openalex-snapshot
Biomedical Big Data: New Models of Control Over Access, Use and Governance
inferredcites →https://doi.org/10.1007/s11948-015-9652-2openalex-snapshot
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
inferredcites →https://doi.org/10.1007/s40273-017-0513-5openalex-snapshot
Evaluation of Healthcare Interventions and Big Data: Review of Associated Data Issues
inferredcites →https://doi.org/10.1007/s40319-019-00873-2openalex-snapshot
Towards a Paradigm Shift in Governing Data Access and Related Intellectual Property Rights in Big Data and Health-Related Research
inferredcites →https://doi.org/10.1007/s40558-015-0027-yopenalex-snapshot
Big data related technologies, challenges and future prospects
inferredcites →https://doi.org/10.1007/s41649-019-00097-zopenalex-snapshot
Openness in Big Data and Data Repositories
inferredcites →https://doi.org/10.1007/s41649-019-00100-7openalex-snapshot
Big Data and Public-Private Partnerships in Healthcare and Research
inferredcites →https://doi.org/10.1016/b978-0-12-803843-7.00053-3openalex-snapshot
Privacy-Enhancing Technologies
inferredcites →https://doi.org/10.1016/j.drudis.2013.10.012openalex-snapshot
Big data in biomedicine
inferredcites →https://doi.org/10.1016/j.future.2013.07.014openalex-snapshot
Intelligent services for Big Data science
inferredcites →https://doi.org/10.1016/j.genhosppsych.2013.03.008openalex-snapshot
Behavioral Intervention Technologies: Evidence review and recommendations for future research in mental health
inferredcites →https://doi.org/10.1016/j.ijmedinf.2019.06.015openalex-snapshot
Passive data collection and use in healthcare: A systematic review of ethical issues
inferredcites →https://doi.org/10.1016/j.ijrobp.2015.10.060openalex-snapshot
Impending Challenges for the Use of Big Data
inferredcites →https://doi.org/10.1016/j.jacr.2017.11.035openalex-snapshot
Protecting Your Patients’ Interests in the Era of Big Data, Artificial Intelligence, and Predictive Analytics
inferredcites →https://doi.org/10.1016/j.jbi.2013.07.001openalex-snapshot
‘Big data’, Hadoop and cloud computing in genomics
inferredcites →https://doi.org/10.1016/j.jclinepi.2014.03.013openalex-snapshot
Scoping reviews: time for clarity in definition, methods, and reporting
inferredcites →https://doi.org/10.1016/j.jclinepi.2017.10.014openalex-snapshot
Same family, different species: methodological conduct and quality varies according to purpose for five types of knowledge synthesis
inferredcites →https://doi.org/10.1016/j.jdent.2018.04.024openalex-snapshot
The ethics of mHealth: Moving forward
inferredcites →https://doi.org/10.1016/j.oraloncology.2019.09.003openalex-snapshot
The potential use of big data in oncology
inferredcites →https://doi.org/10.1016/s0140-6736(16)30078-2openalex-snapshot
A step forward for data protection and biomedical research
inferredcites →https://doi.org/10.1016/s0140-6736(96)91562-7openalex-snapshot
Lessons from John Graunt
inferredcites →https://doi.org/10.1017/cbo9780511607882openalex-snapshot
An Approach to Political Philosophy
inferredcites →https://doi.org/10.1017/cbo9780511607882.012openalex-snapshot
Ideas in context
inferredcites →https://doi.org/10.1017/s0963180114000589openalex-snapshot
Selling health data: de-identification, privacy, and speech.
inferredcites →https://doi.org/10.1017/s0963180115000614openalex-snapshot
How Should Health Data Be Used?
inferredcites →https://doi.org/10.1038/nbt.3340openalex-snapshot
Unpatients—why patients should own their medical data
inferredcites →https://doi.org/10.1038/nrg.2016.86openalex-snapshot
Towards precision medicine
inferredcites →https://doi.org/10.1038/s41366-018-0153-7openalex-snapshot
How has big data contributed to obesity research? A review of the literature
inferredcites →https://doi.org/10.1053/j.semnuclmed.2018.11.010openalex-snapshot
Emergence of “Big Data” and Its Potential and Current Limitations in Medical Imaging
inferredcites →https://doi.org/10.1063/1.4907823openalex-snapshot
What is big data? A consensual definition and a review of key research topics
inferredcites →https://doi.org/10.1080/1364557032000119616openalex-snapshot
Scoping studies: towards a methodological framework
inferredcites →https://doi.org/10.1093/acref/9780198802525.001.0001openalex-snapshot
A Dictionary of Law
inferredcites →https://doi.org/10.1093/jamia/ocv118openalex-snapshot
Opportunities and challenges in the use of personal health data for health research
inferredcites →https://doi.org/10.1093/jlb/lsw061openalex-snapshot
Clinical genomics, big data, and electronic medical records: reconciling patient rights with research when privacy and science collide
inferredcites →https://doi.org/10.1093/oxfordhb/9780198717133.013.42openalex-snapshot
C. B. Macpherson, The Political Theory of Possessive Individualism: Hobbes to Locke
inferredcites →https://doi.org/10.1097/xeb.0000000000000050openalex-snapshot
Guidance for conducting systematic scoping reviews
inferredcites →https://doi.org/10.1108/jices-06-2014-0029openalex-snapshot
The concept of Datenherrschaft of patient information from a Lockean perspective
inferredcites →https://doi.org/10.1108/lr-06-2015-0061openalex-snapshot
A formal definition of Big Data based on its essential features
inferredcites →https://doi.org/10.1109/cesys.2016.7889917openalex-snapshot
A study of big data characteristics
inferredcites →https://doi.org/10.1109/cts.2013.6567202openalex-snapshot
Big data: A review
inferredcites →https://doi.org/10.1109/jbhi.2015.2406883openalex-snapshot
Big Data, Big Knowledge: Big Data for Personalized Healthcare
inferredcites →https://doi.org/10.1109/jbhi.2015.2450362openalex-snapshot
Big Data for Health
inferredcites →https://doi.org/10.1109/obd.2016.11openalex-snapshot
MedRec: Using Blockchain for Medical Data Access and Permission Management
inferredcites →https://doi.org/10.1111/1467-9760.00141openalex-snapshot
Self‐Ownership and Property in the Person: Democratization and a Tale of Two Concepts
inferredcites →https://doi.org/10.1111/dpr.12142openalex-snapshot
Big Data for Development: A Review of Promises and Challenges
inferredcites →https://doi.org/10.1177/009885881003600403openalex-snapshot
Patient Data: Property, Privacy & the Public Interest
inferredcites →https://doi.org/10.1186/1748-5908-5-69openalex-snapshot
Scoping studies: advancing the methodology
inferredcites →https://doi.org/10.1186/s12874-016-0116-4openalex-snapshot
A scoping review on the conduct and reporting of scoping reviews
inferredcites →https://doi.org/10.1186/s12874-018-0611-xopenalex-snapshot
Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach
inferredcites →https://doi.org/10.1186/s12916-015-0465-6openalex-snapshot
A scoping review of rapid review methods
inferredcites →https://doi.org/10.1186/s13643-015-0163-7openalex-snapshot
All in the Family: systematic reviews, rapid reviews, scoping reviews, realist reviews, and more
inferredcites →https://doi.org/10.1201/9780203904510.ax12openalex-snapshot
Technical Report
inferredcites →https://doi.org/10.1201/b17548-8openalex-snapshot
HIPAA Privacy Rule
inferredcites →https://doi.org/10.1353/sor.2002.0016openalex-snapshot
Privacy as Property
inferredcites →https://doi.org/10.1371/journal.pcbi.1003904openalex-snapshot
Ethical Challenges of Big Data in Public Health
inferredcites →https://doi.org/10.1371/journal.pone.0204937openalex-snapshot
Considerations for ethics review of big data health research: A scoping review
inferredcites →https://doi.org/10.1377/hlthaff.16.3.146openalex-snapshot
From The Field: The Politics Of The Health Insurance Portability And Accountability Act
inferredcites →https://doi.org/10.1377/hlthaff.2014.0771openalex-snapshot
Developing Public Policy To Advance The Use Of Big Data In Health Care
inferredcites →https://doi.org/10.15252/embr.201642917openalex-snapshot
The big health data sale
inferredcites →https://doi.org/10.18632/oncotarget.22345openalex-snapshot
Converging blockchain and next-generation artificial intelligence technologies to decentralize and accelerate biomedical research and healthcare
inferredcites →https://doi.org/10.20368/1971-8829/929openalex-snapshot
Exploiting Big Data for Improving Healthcare Services
inferredcites →https://doi.org/10.2139/ssrn.1334963openalex-snapshot
Property, Privacy and the Pursuit of Integrated Electronic Medical Records
inferredcites →https://doi.org/10.2139/ssrn.1599192openalex-snapshot
Patient Data: Property, Privacy & the Public Interest
inferredcites →https://doi.org/10.2188/jea.je20140182openalex-snapshot
Utilization and Application of Public Health Data in Descriptive Epidemiology
inferredcites →https://doi.org/10.2196/12439openalex-snapshot
Implementing Blockchains for Efficient Health Care: Systematic Review
inferredcites →https://doi.org/10.2196/14184openalex-snapshot
The Potential of Blockchain Technology for Health Information Exchange: Experimental Study From Patients’ Perspectives
inferredcites →https://doi.org/10.2196/jmir.5876openalex-snapshot
Personal Health Records: A Systematic Literature Review
inferredcites →https://doi.org/10.2196/medinform.5359openalex-snapshot
Challenges and Opportunities of Big Data in Health Care: A Systematic Review
inferredcites →https://doi.org/10.2307/1228541openalex-snapshot
Property and Personhood
inferredcites →https://doi.org/10.2307/1847061openalex-snapshot
The Political Theory of Possessive Individualism: Hobbes to Locke
inferredcites →https://doi.org/10.2501/ija-33-1-181-183openalex-snapshot
Big Data: A Revolution That Will Transform How We Live, Work, and Think
inferredcites →https://doi.org/10.3389/fmed.2019.00034openalex-snapshot
From Big Data to Precision Medicine
inferredcites →https://doi.org/10.3389/fpubh.2016.00007openalex-snapshot
Who Owns the Data? Open Data for Healthcare
inferredcites →https://doi.org/10.3390/sym10100470openalex-snapshot
A Systematic Review of the Use of Blockchain in Healthcare
inferredcites →https://doi.org/10.4137/bii.s31559openalex-snapshot
Big Data Application in Biomedical Research and Health Care: A Literature Review
inferredcites →https://doi.org/10.4258/hir.2013.19.2.79openalex-snapshot
Potentiality of Big Data in the Medical Sector: Focus on How to Reshape the Healthcare System
inferredcites →https://doi.org/10.4324/9781003589020-20openalex-snapshot
Second Treatise Of Civil Government
inferredcites →https://doi.org/10.7326/m18-0850openalex-snapshot
PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation

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Additional file 3 of Opportunities and challenges of a dynamic consent-based application: personalized options for personal health data sharing and utilization
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