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Genetic Privacy

https://doi.org/10.1017/cbo9780511495342
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inferred← citeshttps://doi.org/10.2139/ssrn.1282167openalex-extracted
Assessing the Status of Medical Information in the Light of the UK Data Protection Act 1998
inferred← citeshttps://doi.org/10.2139/ssrn.1946258openalex-extracted
Information Governance of Use of Health-Related Data in Medical Research in Scotland: Current Practices and Future Scenarios
inferred← citeshttps://doi.org/10.2139/ssrn.1946728openalex-extracted
Information Governance of Use of Health-Related Data in Medical Research in Scotland: Current Practices and Future Scenarios
inferred← citeshttps://doi.org/10.2139/ssrn.2220754openalex-extracted
Data Protection in the Online Age
inferred← citeshttps://doi.org/10.2139/ssrn.2302568openalex-extracted
Through the Thicket and Across the Divide: Successfully Navigating the Regulatory Landscape in Life Sciences Research
inferred← citeshttps://doi.org/10.2139/ssrn.3137176openalex-extracted
Collection and Protection of Personal Health Data
inferred← citeshttps://doi.org/10.1002/9780470015902.a0005656openalex-snapshot
Stored Genetic Material: Use in Research
inferred← citeshttps://doi.org/10.1002/9780470015902.a0005656.pub2openalex-snapshot
Stored Genetic Material: Use in Research in the United Kingdom
inferred← citeshttps://doi.org/10.1002/9780470015902.a0005656.pub3openalex-snapshot
Stored Human Bodily Material: Use in Research in the United Kingdom
inferred← citeshttps://doi.org/10.1002/9780470015902.a0022083openalex-snapshot
Biobanking: Social, Political and Ethical Aspects
inferred← citeshttps://doi.org/10.1002/9781119487845.ch19openalex-snapshot
Ethical Issues in Statistical Genetics
inferred← citeshttps://doi.org/10.1002/9781444355666.ch9openalex-snapshot
Genetics
inferred← citeshttps://doi.org/10.1007/978-0-387-93872-1_19openalex-snapshot
Legal Challenges and Strategies in the Regulation of Research Biobanking
inferred← citeshttps://doi.org/10.1007/978-1-4020-6914-7_16openalex-snapshot
Knowing Me, Knowing You – Profiling, Privacy and the Public Interest
inferred← citeshttps://doi.org/10.1007/978-1-4020-9498-9_4openalex-snapshot
Consent in Data Protection Law: Privacy, Fair Processing and Confidentiality
inferred← citeshttps://doi.org/10.1007/978-3-030-43699-5_12openalex-snapshot
Regulating the Use of Genetic Testing by Insurers and Employers in the Province of Quebec: Is the Genetic Non-Discrimination Act Really Necessary?
inferred← citeshttps://doi.org/10.1007/978-3-030-60208-6_5openalex-snapshot
Body Ownership
inferred← citeshttps://doi.org/10.1007/978-3-031-94690-5_15openalex-snapshot
Surveillance Capitalism and the Right to Medical Privacy
inferred← citeshttps://doi.org/10.1007/978-3-319-46608-8_10openalex-snapshot
Genetic Classes and Genetic Categories: Protecting Genetic Groups Through Data Protection Law
inferred← citeshttps://doi.org/10.1007/978-3-319-50796-5_8openalex-snapshot
Dangers from Within? Looking Inwards at the Role of Maladministration as the Leading Cause of Health Data Breaches in the UK
inferred← citeshttps://doi.org/10.1007/978-3-319-55120-3_6openalex-snapshot
Population Biobanks and the Principle of Reciprocity
inferred← citeshttps://doi.org/10.1007/978-3-319-66249-7_6openalex-snapshot
The “Me Molecule”
inferred← citeshttps://doi.org/10.1007/978-3-540-69861-6_3openalex-snapshot
Ethical Aspects of Information Security and Privacy
inferred← citeshttps://doi.org/10.1007/978-3-642-33116-9_9openalex-snapshot
Informed Consent and Research Biobanks: A Challenge in Three Dimensions
inferred← citeshttps://doi.org/10.1007/978-90-481-8721-8_5openalex-snapshot
Between Legislation and Bioethics: The European Convention on Human Rights and Biomedicine
inferred← citeshttps://doi.org/10.1007/978-90-481-9784-2_5openalex-snapshot
Legal Ambiguities Concerning Medical Genetics in Poland – Searching For a Common Ground
inferred← citeshttps://doi.org/10.1007/978-94-007-1673-5_14openalex-snapshot
Anonymity and Privacy in Biobanking
inferred← citeshttps://doi.org/10.1007/978-94-007-1673-5_6openalex-snapshot
One Sample, One Share! A Proposal to Redress an Inequity with Equity
inferred← citeshttps://doi.org/10.1007/978-94-007-5264-1_1openalex-snapshot
Introduction
inferred← citeshttps://doi.org/10.1007/978-94-007-6374-6_10openalex-snapshot
Cancer Screening, Risk Stratification and the Ethics of Apt Categorisation: A Case Study
inferred← citeshttps://doi.org/10.1007/978-981-10-0317-2_2openalex-snapshot
Philosophical Foundations of Privacy
inferred← citeshttps://doi.org/10.1007/978-981-15-7728-4_7openalex-snapshot
Data Mining in Systems Medicine and the Project of Solidarity: The Interface of Genomics and Society Revisited
inferred← citeshttps://doi.org/10.1007/978-981-97-9983-1_1openalex-snapshot
A Multidisciplinary Perspective on Cross-Border Health Data Transfers: Privacy, Risks and Solutions
inferred← citeshttps://doi.org/10.1007/s00103-009-0875-8openalex-snapshot
Public Health Genomics
inferred← citeshttps://doi.org/10.1007/s00439-018-1921-0openalex-snapshot
United Kingdom: transfers of genomic data to third countries
inferred← citeshttps://doi.org/10.1007/s00481-025-00885-2openalex-snapshot
Towards genomic newborn screening, part II: outlining a normative framework
inferred← citeshttps://doi.org/10.1007/s10676-025-09843-4openalex-snapshot
A critique of current approaches to privacy in machine learning
inferred← citeshttps://doi.org/10.1007/s10689-009-9268-2openalex-snapshot
Genetic testing of children for familial cancers: a comparative legal perspective on consent, communication of information and confidentiality
inferred← citeshttps://doi.org/10.1007/s10728-021-00435-zopenalex-snapshot
From ‘Consent or Anonymise’ to ‘Share and Protect’: Facilitating Access to Surplus Tissue for Research Whilst Safeguarding Donor Interests
inferred← citeshttps://doi.org/10.1007/s10730-010-9138-1openalex-snapshot
Privacy and Property in the Biobank Context
inferred← citeshttps://doi.org/10.1007/s10805-007-9029-5openalex-snapshot
Being, Doing, and Knowing: Developing Ethical Competence in Health Care
inferred← citeshttps://doi.org/10.1007/s11019-004-4020-zopenalex-snapshot
Democracy and genetic privacy: The value of bodily integrity
inferred← citeshttps://doi.org/10.1007/s11019-005-0978-4openalex-snapshot
Children, Longitudinal Studies, and Informed Consent
inferred← citeshttps://doi.org/10.1007/s11019-024-10211-0openalex-snapshot
A contextual integrity approach to genomic information: what bioethics can learn from big data ethics
inferred← citeshttps://doi.org/10.1007/s11673-007-9055-4openalex-snapshot
Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint
inferred← citeshttps://doi.org/10.1007/s11673-007-9056-3openalex-snapshot
Legal Rights in Human Bodies, Body Parts and Tissue
inferred← citeshttps://doi.org/10.1007/s11673-015-9690-0openalex-snapshot
Defining Ourselves: Personal Bioinformation as a Tool of Narrative Self-Conception
inferred← citeshttps://doi.org/10.1007/s11948-021-00282-0openalex-snapshot
Ethical Issues in Consent for the Reuse of Data in Health Data Platforms
inferred← citeshttps://doi.org/10.1007/s12687-012-0078-0openalex-snapshot
Genetic testing legislation in Western Europe—a fluctuating regulatory target
inferred← citeshttps://doi.org/10.1007/s12687-012-0132-yopenalex-snapshot
Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider
inferred← citeshttps://doi.org/10.1007/s44206-023-00051-5openalex-snapshot
The Group Right to Mutual Privacy
inferred← citeshttps://doi.org/10.1017/9781108590600openalex-snapshot
Personalised Medicine, Individual Choice and the Common Good
inferred← citeshttps://doi.org/10.1017/9781108590600.001openalex-snapshot
Introduction
inferred← citeshttps://doi.org/10.1017/9781108590600.002openalex-snapshot
Personalised Medicine and the Politics of Human Nuclear Genome Transfer
inferred← citeshttps://doi.org/10.1017/9781108590600.003openalex-snapshot
Stem Cell-Derived Gametes and Uterus Transplants
inferred← citeshttps://doi.org/10.1017/9781108590600.004openalex-snapshot
Personalising Future Health Risk through ‘Biological Insurance’
inferred← citeshttps://doi.org/10.1017/9781108590600.005openalex-snapshot
Combating the Trade in Organs
inferred← citeshttps://doi.org/10.1017/9781108590600.006openalex-snapshot
When There Is No Cure
inferred← citeshttps://doi.org/10.1017/9781108590600.007openalex-snapshot
Lost and Found
inferred← citeshttps://doi.org/10.1017/9781108590600.008openalex-snapshot
Presuming the Promotion of the Common Good by Large-Scale Health Research: The Cases Of Care Data 2 0 And The 100 000 Genomes Project In The UK
inferred← citeshttps://doi.org/10.1017/9781108590600.009openalex-snapshot
My Genome, My Right
inferred← citeshttps://doi.org/10.1017/9781108590600.010openalex-snapshot
‘The Best Me I Can Possibly Be’
inferred← citeshttps://doi.org/10.1017/9781108590600.011openalex-snapshot
I Run, You Run, We Run
inferred← citeshttps://doi.org/10.1017/9781108590600.012openalex-snapshot
The Molecularised Me
inferred← citeshttps://doi.org/10.1017/9781108590600.013openalex-snapshot
Bibliography
inferred← citeshttps://doi.org/10.1017/9781108590600.014openalex-snapshot
Index
inferred← citeshttps://doi.org/10.1017/9781108590600.015openalex-snapshot
inferred← citeshttps://doi.org/10.1017/9781316412336.003openalex-snapshot
Ethical Issues, Legal Issues and Public Policy Concerns in a New Genomic Era
inferred← citeshttps://doi.org/10.1017/9781316412336.005openalex-snapshot
Mode of Regulation and Choice of Regulatory Frameworks in Legal Theory
inferred← citeshttps://doi.org/10.1017/cbo9780511543555.013openalex-snapshot
Contemporary ethico-legal issues in genetics
inferred← citeshttps://doi.org/10.1017/cbo9780511614514openalex-snapshot
Kinship, Law and the Unexpected
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.001openalex-snapshot
Preface
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.002openalex-snapshot
Introduction: Divided Origins
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.003openalex-snapshot
Relatives Are Always a Surprise: Biotechnology in an Age of Individualism
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.004openalex-snapshot
Embedded Science
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.005openalex-snapshot
Emergent Properties
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.006openalex-snapshot
Introduction: The Arithmetic of Ownership
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.007openalex-snapshot
The Patent and the Malanggan
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.008openalex-snapshot
Losing (out on) Intellectual Resources
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.009openalex-snapshot
Divided Origins and the Arithmetic of Ownership
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.010openalex-snapshot
Notes
inferred← citeshttps://doi.org/10.1017/cbo9780511614514.011openalex-snapshot
References
inferred← citeshttps://doi.org/10.1017/cbo9780511617553openalex-snapshot
Health Law and the European Union
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.001openalex-snapshot
Introduction
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.002openalex-snapshot
Historical, legal and institutional contexts
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.003openalex-snapshot
Community competence in the field of health
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.004openalex-snapshot
Access to health care services
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.005openalex-snapshot
Data protection and health information privacy
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.006openalex-snapshot
Regulation of health care professionals
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.007openalex-snapshot
The regulation of clinical research
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.008openalex-snapshot
Regulating pharmaceuticals: risk, choice and compensation
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.009openalex-snapshot
Public health law
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.010openalex-snapshot
Conclusions and future prospects
inferred← citeshttps://doi.org/10.1017/cbo9780511617553.011openalex-snapshot
Bibliography
inferred← citeshttps://doi.org/10.1017/cbo9780511618895openalex-snapshot
Genetics, Health Care and Public Policy
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.001openalex-snapshot
Foreword
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.002openalex-snapshot
Introduction
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.003openalex-snapshot
Genetic science and technology
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.004openalex-snapshot
Fundamentals of genetic epidemiology
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.005openalex-snapshot
Genetics in medicine
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.006openalex-snapshot
Genetics in health services
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.007openalex-snapshot
Ethical, legal and social implications of genetics
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.008openalex-snapshot
Policy implications
inferred← citeshttps://doi.org/10.1017/cbo9780511618895.009openalex-snapshot
Further reading
inferred← citeshttps://doi.org/10.1017/cbo9780511910128.004openalex-snapshot
Privacy
inferred← citeshttps://doi.org/10.1017/cbo9781139109376.006openalex-snapshot
Getting mixed up in crime: doctors, disease transmission, confidentiality and thecriminal process
inferred← citeshttps://doi.org/10.1017/cbo9781139195652.004openalex-snapshot
Introduction
inferred← citeshttps://doi.org/10.1017/cbo9781139195652.005openalex-snapshot
Human biological materials
inferred← citeshttps://doi.org/10.1017/cbo9781139195652.012openalex-snapshot
Property in human material
inferred← citeshttps://doi.org/10.1017/cbo9781139195652.013openalex-snapshot
Conclusion
inferred← citeshttps://doi.org/10.1017/cbo9781139875981.005openalex-snapshot
Privacy and the right not to know: a plea for conceptual clarity
inferred← citeshttps://doi.org/10.1017/cbo9781316402467.007openalex-snapshot
Media intrusion into grief: lessons from the Pike River mining disaster
inferred← citeshttps://doi.org/10.1017/s0963180110000642openalex-snapshot
Does Informed Consent Have an Expiry Date? A Critical Reappraisal of Informed Consent as a Process
inferred← citeshttps://doi.org/10.1017/s0963180111000466openalex-snapshot
“Please Don’t Tell Me”
inferred← citeshttps://doi.org/10.1017/s0963180114000474openalex-snapshot
Philosophical Feminist Bioethics
inferred← citeshttps://doi.org/10.1017/s1744552319000314openalex-snapshot
Regulation of bodily parts: understanding bodily parts as a duplex
inferred← citeshttps://doi.org/10.1017/s1745855208005954openalex-snapshot
Human Tissue and ‘the Public’: The Case of Childhood Cancer Tumour Banking
inferred← citeshttps://doi.org/10.1038/ejhg.2008.37openalex-snapshot
Patenting and licensing in genetic testing: ethical, legal and social issues
inferred← citeshttps://doi.org/10.1038/ejhg.2015.239openalex-snapshot
Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach
inferred← citeshttps://doi.org/10.1038/nbt0805-929openalex-snapshot
Whose tissue is it anyway?
inferred← citeshttps://doi.org/10.1038/nbt0907-973bopenalex-snapshot
Ethical framework for previously collected biobank samples
inferred← citeshttps://doi.org/10.1038/nrg1145openalex-snapshot
'DNA theft': new crime in the UK
inferred← citeshttps://doi.org/10.1038/sj.bjc.6604795openalex-snapshot
Ethics and biobanks
inferred← citeshttps://doi.org/10.1038/sj.bjc.6605339openalex-snapshot
A trial of consent procedures for future research with clinically derived biological samples
inferred← citeshttps://doi.org/10.1038/sj.ejhg.5201530openalex-snapshot
Do we need a uniform regulatory system for biobanks across Europe?
inferred← citeshttps://doi.org/10.1038/sj.ejhg.5201786openalex-snapshot
Concern, pressure and lack of knowledge affect choice of not wanting to know high-risk status
inferred← citeshttps://doi.org/10.1057/9780230307513_6openalex-snapshot
Nobody’s Thing? Consent, Ownership, and the Politics of Tissue Culture
inferred← citeshttps://doi.org/10.1057/9781137302922_6openalex-snapshot
The Proactionary Manifesto
inferred← citeshttps://doi.org/10.1080/01459740590905642openalex-snapshot
The Role of Ethics in Commercial Genetic Research: Notes on the Notion of Commodification
inferred← citeshttps://doi.org/10.1080/09505430600708036openalex-snapshot
Contested bodies: Property models and the commodification of human biological artefacts
inferred← citeshttps://doi.org/10.1080/09581590500523376openalex-snapshot
Capital, trust & consultation: Databanks and regulation in Australia
inferred← citeshttps://doi.org/10.1080/09581590701824086openalex-snapshot
Generation Scotland: consulting publics and specialists at an early stage in a genetic database's development
inferred← citeshttps://doi.org/10.1080/09615768.2007.11427679openalex-snapshot
Consent and Autonomy in the Human Tissue Act 2004
inferred← citeshttps://doi.org/10.1080/10410236.2014.989384openalex-snapshot
Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results
inferred← citeshttps://doi.org/10.1080/14636778.2012.687135openalex-snapshot
Disclosure of genetic information to relatives in Israel: between privacy and familial responsibility
inferred← citeshttps://doi.org/10.1080/14636778.2020.1755639openalex-snapshot
Facing legal barriers regarding disclosure of genetic information to relatives
inferred← citeshttps://doi.org/10.1080/15265161.2020.1863516openalex-snapshot
Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases
inferred← citeshttps://doi.org/10.1089/bio.2013.1163openalex-snapshot
Commercialization of Tissue-Based Research: Time to Move Beyond the Gift/Market Dichotomy
inferred← citeshttps://doi.org/10.1093/hmg/ddab164openalex-snapshot
Three decades of genetic privacy: a metaphoric journey
inferred← citeshttps://doi.org/10.1093/lawfam/ebv015openalex-snapshot
The Passive Patient and Disclosure of Genetic Information: Can English Tort Law Protect the Relatives’ Right to Know?
inferred← citeshttps://doi.org/10.1109/icce.2018.8326149openalex-snapshot
On the successful deployment of community policing services the TRILLION project case
inferred← citeshttps://doi.org/10.1111/j.1365-2354.2006.00660.xopenalex-snapshot
When legal worlds collide: from research to treatment in hereditary cancer prevention
inferred← citeshttps://doi.org/10.1111/j.1748-121x.2010.00168.xopenalex-snapshot
Keeping the secrets of the dead? An evaluation of the statutory framework for access to information about deceased persons
inferred← citeshttps://doi.org/10.1111/j.1748-720x.2004.tb01977.xopenalex-snapshot
Law and Clinical Research — From Rights to Regulation? An English Perspective
inferred← citeshttps://doi.org/10.1111/jlme.12118openalex-snapshot
Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications
inferred← citeshttps://doi.org/10.1111/lest.12080openalex-snapshot
Requiring genetic knowledge: a principled case for support
inferred← citeshttps://doi.org/10.1111/lest.12108openalex-snapshot
Proprietary interests in organs in limbo
inferred← citeshttps://doi.org/10.1136/bmj.k1409openalex-snapshot
Alerting relatives about heritable risks: the limits of confidentiality
inferred← citeshttps://doi.org/10.1136/jcp.2008.061069openalex-snapshot
Opt-out plus, the patients’ choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment
inferred← citeshttps://doi.org/10.1136/jme.2002.001578openalex-snapshot
The right not to know: an autonomy based approach
inferred← citeshttps://doi.org/10.1136/jme.2003.007260openalex-snapshot
COMMENTARY
inferred← citeshttps://doi.org/10.1136/jme.2004.009456openalex-snapshot
Building on relationships of trust in biobank research
inferred← citeshttps://doi.org/10.1136/jme.2006.017467openalex-snapshot
Communicating genetic information in the family: the familial relationship as the forgotten factor
inferred← citeshttps://doi.org/10.1136/jme.2006.020016openalex-snapshot
Views on data use, confidentiality and consent in a predictive screening involving children: Table 1
inferred← citeshttps://doi.org/10.1136/jme.2007.024034openalex-snapshot
Is it ethical to deny genetic research participants individualised results?
inferred← citeshttps://doi.org/10.1136/jme.2009.032367openalex-snapshot
Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study
inferred← citeshttps://doi.org/10.1136/jme.2009.034041openalex-snapshot
Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-making: Table 1
inferred← citeshttps://doi.org/10.1136/medethics-2012-101067openalex-snapshot
Disclosure ‘downunder’: misadventures in Australian genetic privacy law
inferred← citeshttps://doi.org/10.1136/medethics-2018-105229openalex-snapshot
Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
inferred← citeshttps://doi.org/10.1136/medethics-2020-106133openalex-snapshot
Accessing medical biobanks to solve crimes: ethical considerations
inferred← citeshttps://doi.org/10.1177/0162243916648220openalex-snapshot
An “Ethical Moment” in Data Sharing
inferred← citeshttps://doi.org/10.1177/0269758018814601openalex-snapshot
To know or not to know: Should crimes regarding photographs of their child sexual abuse be disclosed to now-adult, unknowing victims?
inferred← citeshttps://doi.org/10.1177/0891241607312484openalex-snapshot
Can Bioethics Be Global and Local, or Must It Be Both?
inferred← citeshttps://doi.org/10.1177/0952695117729119copenalex-snapshot
In search of a post-genomic bioethics
inferred← citeshttps://doi.org/10.1177/09710973251328785openalex-snapshot
Beyond Consent: Ensuring Meaningful Protection of Genetic Data Under India’s Digital Personal Data Protection Act, 2023
inferred← citeshttps://doi.org/10.1177/1477750915591293openalex-snapshot
The decline of medical confidentiality medical information management: The illusion of patient choice
inferred← citeshttps://doi.org/10.1177/1742395307085337openalex-snapshot
Towards a new era of tissue-based diagnosis and research
inferred← citeshttps://doi.org/10.1186/1472-6939-11-21openalex-snapshot
Caught you: threats to confidentiality due to the public release of large-scale genetic data sets
inferred← citeshttps://doi.org/10.1186/1472-6939-15-39openalex-snapshot
Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey
inferred← citeshttps://doi.org/10.1186/1472-6939-9-17openalex-snapshot
Who's minding the shop? The role of Canadian research ethics boards in the creation and uses of registries and biobanks
inferred← citeshttps://doi.org/10.1186/2195-7819-9-6openalex-snapshot
Review of “Reframing Rights: Bioconstitutionalism in the Genetic Age” byS. Jasanoff (ed.)
inferred← citeshttps://doi.org/10.1186/s40504-014-0020-9openalex-snapshot
Open consent, biobanking and data protection law: can open consent be ‘informed’ under the forthcoming data protection regulation?
inferred← citeshttps://doi.org/10.1186/s40504-019-0096-3openalex-snapshot
Broad consent under the GDPR: an optimistic perspective on a bright future
inferred← citeshttps://doi.org/10.1191/0969733004ne710oaopenalex-snapshot
Privacy and Confidentiality Issues in Primary Care: views of advanced practice nurses and their patients
inferred← citeshttps://doi.org/10.1258/ce.2007.007054openalex-snapshot
Ethical and governance challenges in human fetal tissue research
inferred← citeshttps://doi.org/10.1258/ce.2008.008025openalex-snapshot
Owning information – anonymity, confidentiality and human rights
inferred← citeshttps://doi.org/10.18633/biotecnia.v26.2374openalex-snapshot
Cells, Genes and Data: Biobanks as Common Goods
inferred← citeshttps://doi.org/10.2105/ajph.2008.136614openalex-snapshot
Questioning the Consensus: Managing Carrier Status Results Generated by Newborn Screening
inferred← citeshttps://doi.org/10.2196/15739openalex-snapshot
Exploring the Use of Genomic and Routinely Collected Data: Narrative Literature Review and Interview Study
inferred← citeshttps://doi.org/10.2217/pme.09.47openalex-snapshot
Taking the Patient‘s Side: The Ethics of Pharmacogenetics
inferred← citeshttps://doi.org/10.3390/laws4040771openalex-snapshot
Bioethics and Human Rights in the Constitutional Formation of Global Health
inferred← citeshttps://doi.org/10.3390/laws5030036openalex-snapshot
Precision Medicine and Advancing Genetic Technologies—Disability and Human Rights Perspectives
inferred← citeshttps://doi.org/10.4018/978-1-60960-083-9.ch007openalex-snapshot
Genetic Privacy
inferred← citeshttps://doi.org/10.4236/oalib.1113066openalex-snapshot
How Information and Communication Technologies Expose Our Deep Personal Privacy
inferred← citeshttps://doi.org/10.4236/oalib.1113554openalex-snapshot
A Metric for Calculating the Extent of Non-Knowledge (Level) of Personal Privacy
inferred← citeshttps://doi.org/10.47107/inifedergi.1150606openalex-snapshot
SOSYAL MEDYADA MAHREMİYETİN YİTİMİ: TikTok ÖRNEĞİ
inferred← citeshttps://doi.org/10.48161/qpj.v4n4a39openalex-snapshot
The Human Genome Editing and Criminal Law; A Comparative Legal Analysis of Selected Jurisdiction
inferred← citeshttps://doi.org/10.5772/intechopen.75952openalex-snapshot
Aligning a Cybersecurity Strategy with Communication Management in Organizations
inferred← citeshttps://doi.org/10.64030/3065-9078.04.02.13openalex-snapshot
Beyond Disclosure: Reframing Privacy as Inference Impedance in Large Language Models
inferred← citeshttps://doi.org/10.70675/a0621823zfb2fz4cb5z9f5az0838b39e97e0openalex-snapshot
La recherche en génétique du comportement et la protection des droits fondamentaux
inferred← citeshttps://doi.org/10.70675/fb0edee4z4762z4e7cza343z998e737e38c7openalex-snapshot
Les données personnelles sensibles : contribution à l'évolution du droit fondamental à la protection des données personnelles : étude comparée : Union Européenne, Allemagne, France, Grèce, Royaume-Uni
Editorial review for independent work. ICSAC — the Institute for Complexity Science and Advanced Computing — runs a structured editorial panel for researchers publishing outside journals, and publishes on CiteStamp rails. Submission is free and goes through ORCID: icsacinstitute.org/submit.