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Ethics and biobanks

https://doi.org/10.1038/sj.bjc.6604795
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

inferredcites →https://doi.org/10.1007/978-1-4020-6652-8openalex-snapshot
The Private Sphere: An Emotional Territory and Its Agent
inferredcites →https://doi.org/10.1016/j.shpsc.2006.06.007openalex-snapshot
The consent problem within DNA biobanks
inferredcites →https://doi.org/10.1016/s0065-2660(07)00418-xopenalex-snapshot
Ethical, Legal, and Social Implications of Biobanks for Genetics Research
inferredcites →https://doi.org/10.1016/s1470-2045(06)70618-0openalex-snapshot
Should donors be allowed to give broad consent to future biobank research?
inferredcites →https://doi.org/10.1016/s1470-2045(07)70077-3openalex-snapshot
Consent for childhood cancer tissue banking in the UK: the effect of the Human Tissue Act 2004
inferredcites →https://doi.org/10.1017/cbo9780511495342openalex-snapshot
Genetic Privacy
inferredcites →https://doi.org/10.1017/cbo9780511611087.024openalex-snapshot
The impact of biobanks on ethical frameworks
inferredcites →https://doi.org/10.1017/s1745855208005954openalex-snapshot
Human Tissue and ‘the Public’: The Case of Childhood Cancer Tumour Banking
inferredcites →https://doi.org/10.1038/nbt0907-973bopenalex-snapshot
Ethical framework for previously collected biobank samples
inferredcites →https://doi.org/10.1038/nrg1473openalex-snapshot
The social and ethical issues of post-genomic human biobanks
inferredcites →https://doi.org/10.1038/nrg1505openalex-snapshot
Human genetic research: emerging trends in ethics
inferredcites →https://doi.org/10.1038/sj.ejhg.5201458openalex-snapshot
Potential harms, anonymization, and the right to withdraw consent to biobank research
inferredcites →https://doi.org/10.1038/sj.embor.7400740openalex-snapshot
Consent and anonymization in research involving biobanks
inferredcites →https://doi.org/10.1080/09615768.2007.11427673openalex-snapshot
Governing Genetic Databases: Collection, Storage and Use
inferredcites →https://doi.org/10.1080/09615768.2007.11427674openalex-snapshot
Biobanks and Blanket Consent: The Proper Place of the Public Good and Public Perception Rationales
inferredcites →https://doi.org/10.1080/09615768.2007.11427675openalex-snapshot
The Ethical Challenges of Genetic Databases: Safeguarding Altruism and Trust
inferredcites →https://doi.org/10.1080/09615768.2007.11427678openalex-snapshot
Genomic Databases and International Collaboration
inferredcites →https://doi.org/10.1097/00125817-200301000-00006openalex-snapshot
Consent for genetic research in a general population: The NHANES experience
inferredcites →https://doi.org/10.1111/j.1467-8519.2004.00377.xopenalex-snapshot
Coding and Consent: Moral Challenges of the Database Project in Iceland
inferredcites →https://doi.org/10.1111/j.1748-720x.2008.00266.xopenalex-snapshot
Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
inferredcites →https://doi.org/10.1136/bmj.332.7540.544openalex-snapshot
One-time general consent for research on biological samples
inferredcites →https://doi.org/10.1136/bmj.a337openalex-snapshot
Evidence of support for biobanking practices
inferredcites →https://doi.org/10.1136/jme.2004.009456openalex-snapshot
Building on relationships of trust in biobank research
inferredcites →https://doi.org/10.1136/jme.24.3.182openalex-snapshot
Balancing the quality of consent.
inferredcites →https://doi.org/10.1146/annurev.genom.7.080505.115721openalex-snapshot
The Uneasy Ethical and Legal Underpinnings of Large-Scale Genomic Biobanks
inferredcites →https://doi.org/10.1163/15718099720521896openalex-snapshot
Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine
inferredcites →https://doi.org/10.1183/09031936.00165006openalex-snapshot
Trends in ethical and legal frameworks for the use of human biobanks
inferredcites →https://doi.org/10.1186/1472-6939-4-1openalex-snapshot
DNA databanks and consent: A suggested policy option involving an authorization model
inferredcites →https://doi.org/10.1186/1472-6939-7-4openalex-snapshot
A biobank management model applicable to biomedical research
inferredcites →https://doi.org/10.1201/9781420084498-31openalex-snapshot
Section XXIV. Partition Chromatographs
inferredcites →https://doi.org/10.2307/3563696openalex-snapshot
Untapped Potential: IRB Guidance for the Ethical Research Use of Stored Biological Materials

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

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A Legal Approach to the Use of Human Biological Materials for Research Purposes
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Ethics of the Health-Related Internet of Things: A Narrative Review
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Ethical aspects of participation in the Database of Genotypes and Phenotypes of the National Center for Biotechnology Information
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Genomic testing in cancer: Patient knowledge, attitudes, and expectations
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Participation in biobanks for research by incapacitated adults: review and discussion of current guidelines
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A biorepository for ophthalmic surgical specimens
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The Need to Downregulate: A Minimal Ethical Framework for Biobank Research
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Ethical and Regulation Aspects Relevant to the Study of Reproduction in Wild Species
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What’s Wrong with the Right to Genetic Privacy: Beyond Exceptionalism, Parochialism and Adventitious Ethics
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Human Tissues in the “Public Space”: Beyond the Property/Privacy Dichotomy
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A Participatory Space Beyond the “Autonomy Versus Property” Dichotomy
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The Governance of Biomedical Science (2): Regulation, Biodata, and Big Data
inferred← citeshttps://doi.org/10.1007/978-981-99-6778-0_5openalex-snapshot
Importance of Identifying Consent
inferred← citeshttps://doi.org/10.1007/s00292-013-1752-7openalex-snapshot
Biobanking
inferred← citeshttps://doi.org/10.1007/s00428-026-04490-6openalex-snapshot
Mucosal melanoma: clinicopathological, molecular and prognostic features in a retrospective cohort
inferred← citeshttps://doi.org/10.1007/s10389-021-01504-2openalex-snapshot
History of the largest global biobanks, ethical challenges, registration, and biological samples ownership
inferred← citeshttps://doi.org/10.1007/s10654-009-9413-0openalex-snapshot
Changing defaults in biobank research could save lives too
inferred← citeshttps://doi.org/10.1007/s10676-017-9426-4openalex-snapshot
Ethics of the health-related internet of things: a narrative review
inferred← citeshttps://doi.org/10.1007/s10676-020-09543-1openalex-snapshot
Trust in farm data sharing: reflections on the EU code of conduct for agricultural data sharing
inferred← citeshttps://doi.org/10.1007/s10897-010-9305-1openalex-snapshot
Biobanks: Importance, Implications and Opportunities for Genetic Counselors
inferred← citeshttps://doi.org/10.1007/s11017-012-9229-xopenalex-snapshot
Where should we draw the line between quality of care and other ethical concerns related to medical registries and biobanks?
inferred← citeshttps://doi.org/10.1007/s11019-014-9552-2openalex-snapshot
Gut Health in the era of the Human Gut Microbiota: from metaphor to biovalue
inferred← citeshttps://doi.org/10.1007/s11019-022-10074-3openalex-snapshot
Evaluating models of consent in changing health research environments
inferred← citeshttps://doi.org/10.1007/s11948-015-9652-2openalex-snapshot
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
inferred← citeshttps://doi.org/10.1007/s12687-017-0323-7openalex-snapshot
Consumer attitudes towards the establishment of a national Australian familial cancer research database by the Inherited Cancer Connect (ICCon) Partnership
inferred← citeshttps://doi.org/10.1007/s12687-018-0366-4openalex-snapshot
Property and human genetic information
inferred← citeshttps://doi.org/10.1007/s13347-015-0203-1openalex-snapshot
Consenting to Geoengineering
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Ethically sustainable governance in the biobanking of eggs and embryos for research
inferred← citeshttps://doi.org/10.1007/s41649-019-00086-2openalex-snapshot
Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?
inferred← citeshttps://doi.org/10.1016/b978-0-12-801899-6.00002-4openalex-snapshot
The Importance of Biobanks in Epigenetic Studies
inferred← citeshttps://doi.org/10.1016/b978-0-12-805364-5.00004-4openalex-snapshot
Biobanks as Basis of Individualized Medicine: Challenges Toward Harmonization
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Regulatory and ethical issues in microbiology
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Developments in biospecimen research
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Bioethical Considerations in Developing a Biorepository for the Pneumonia Etiology Research for Child Health Project
inferred← citeshttps://doi.org/10.1093/eurpub/ckw198openalex-snapshot
Written informed consent in health research is outdated
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Consent for Biobanking: Assessing the Understanding and Views of Cancer Patients
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An NCI Perspective on Creating Sustainable Biospecimen Resources
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“It is bad because it limits capacity building here back at home” Genetic and genomic researchers’ perspectives on biological sample sharing in collaborative research
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Biobanking and Privacy Law in Brazil
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EUSTAR biobanking: recommendations for the collection, storage and distribution of biospecimens in scleroderma research
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The return of individual research findings in paediatric genetic research
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Athlome Project Consortium: a concerted effort to discover genomic and other “omic” markers of athletic performance
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Organization of a Tumor Bank: The Experience of the National Cancer Institute of Mexico
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The Immortalisation of Billy Apple®: An Art-Science Collaboration
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The Utility of Collaborative Biobanks for Cardiovascular Research
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Benefit sharing and biobanking in Australia
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Identifying public expectations of genetic biobanks
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Governing International Biobank Collaboration: A Case Study of China Kadoorie Biobank
inferred← citeshttps://doi.org/10.1177/0971721820931995openalex-snapshot
National Biobanking in Qatar and Israel: Tracing how Global Scientific Institutions Mediate Local Ethnic Identities
inferred← citeshttps://doi.org/10.1177/1556264614544277openalex-snapshot
Impact of Non-Welfare Interests on Willingness to Donate to Biobanks
inferred← citeshttps://doi.org/10.1177/1556264619866991openalex-snapshot
Researchers’ Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study
inferred← citeshttps://doi.org/10.1177/15562646231171289openalex-snapshot
Genetic and Genomic Researchers’ Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study
inferred← citeshttps://doi.org/10.1177/172460081002500301openalex-snapshot
Cervical Cytology Biobanking in Europe
inferred← citeshttps://doi.org/10.1177/1747016112454641openalex-snapshot
Clinical biobanks in Italy and Liguria: Ethical and social issues, initiatives at the national, regional and local level
inferred← citeshttps://doi.org/10.1186/1471-2288-10-100openalex-snapshot
New directions in childhood obesity research: how a comprehensive biorepository will allow better prediction of outcomes
inferred← citeshttps://doi.org/10.1186/1472-6939-14-17openalex-snapshot
Biobanking research on oncological residual material: a framework between the rights of the individual and the interest of society
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Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium
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It is not a big deal: a qualitative study of clinical biobank donation experience and motives
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Biobanks in the low- and middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements—a qualitative study involving biobank managers
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Stakeholder views on informed consent models for future use of biological samples in Malawi and South Africa
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Gene mutations responsible for primary immunodeficiency disorders: A report from the first primary immunodeficiency biobank in Iran
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Bio-collections in autism research
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Age-related differences in axon pruning and myelination may alter neural signaling in autism spectrum disorder
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Recommendations for the development of Egyptian human biobanking ethical guidelines
inferred← citeshttps://doi.org/10.13130/schmietow-bettina_phd2014-03-25openalex-snapshot
PROPERTY REDUX. OWNERSHIP OF HUMAN TISSUE AND THE GOVERNANCE OF POST-GENOMIC RESEARCH BIOBANKS
inferred← citeshttps://doi.org/10.1371/journal.pone.0036050openalex-snapshot
Consent for Use of Clinical Leftover Biosample: A Survey among Chinese Patients and the General Public
inferred← citeshttps://doi.org/10.1371/journal.pone.0129893openalex-snapshot
Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking
inferred← citeshttps://doi.org/10.1371/journal.pone.0248401openalex-snapshot
Knowledge, perceptions and attitude of Egyptian physicians towards biobanking issues
inferred← citeshttps://doi.org/10.1373/clinchem.2019.306670openalex-snapshot
Ethics for Laboratory Medicine
inferred← citeshttps://doi.org/10.15168/11572_368904openalex-snapshot
Genetica Umana e Tutela dei Diritti: la Dimensione Relazionale dell'Autonomia del Singolo
inferred← citeshttps://doi.org/10.1542/peds.2011-0134openalex-snapshot
Translational Research in Pediatrics: Tissue Sampling and Biobanking
inferred← citeshttps://doi.org/10.1590/s0034-8910.2013047003804openalex-snapshot
Aspectos eticos em estudos longitudinais: o caso do ELSA-Brasil
inferred← citeshttps://doi.org/10.1590/s0104-42302013000100014openalex-snapshot
Diretrizes nacionais para biorrepositório e biobanco de material biológico humano
inferred← citeshttps://doi.org/10.17759/sps.2019100110openalex-snapshot
Attitudes towards Biobank Donation Among University Community
inferred← citeshttps://doi.org/10.18270/rcb.v5i1.1287openalex-snapshot
Consideraciones éticas y legales de los biobancos para investigación
inferred← citeshttps://doi.org/10.2147/jmdh.s194161openalex-snapshot
Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum
inferred← citeshttps://doi.org/10.2174/187221511797636301openalex-snapshot
Biobanks between Common Good and Private Interest: The Example of Umbilical Cord Blood Private Biobanks
inferred← citeshttps://doi.org/10.2217/bmm.10.104openalex-snapshot
Human Tissue Biobanks as Instruments for Drug Discovery and Development: Impact on Personalized Medicine
inferred← citeshttps://doi.org/10.2217/pme.09.47openalex-snapshot
Taking the Patient‘s Side: The Ethics of Pharmacogenetics
inferred← citeshttps://doi.org/10.2217/pme.10.4openalex-snapshot
Biobank Governance In the Post-Genomic Age
inferred← citeshttps://doi.org/10.2450/2012.0087-11openalex-snapshot
Ethical and deontological issues in Transfusion Medicine.
inferred← citeshttps://doi.org/10.2791/41701openalex-snapshot
Biobanks in Europe: Prospects for Harmonisation and Networking
inferred← citeshttps://doi.org/10.3109/02841860903447069openalex-snapshot
Ensuring quality in studies linking cancer registries and biobanks
inferred← citeshttps://doi.org/10.3109/0284186x.2010.496792openalex-snapshot
The interface of population-based cancer registries and biobanks in etiological and clinical research – current and future perspectives
inferred← citeshttps://doi.org/10.3109/10408363.2014.997930openalex-snapshot
Genomic medicine and risk prediction across the disease spectrum
inferred← citeshttps://doi.org/10.3325/cmj.2011.52.262openalex-snapshot
Ethical aspects of human biobanks: a systematic review
inferred← citeshttps://doi.org/10.3389/fgene.2013.00240openalex-snapshot
Practice variation across consent templates for biobank research. a survey of German biobanks
inferred← citeshttps://doi.org/10.3389/fphar.2021.620043openalex-snapshot
The Urgent Need for Management of Biological Samples and Data Accessibility in Latin America
inferred← citeshttps://doi.org/10.3390/diagnostics10070485openalex-snapshot
Biobanks—A Platform for Scientific and Biomedical Research
inferred← citeshttps://doi.org/10.3390/jpm14070731openalex-snapshot
Biobanks as an Indispensable Tool in the “Era” of Precision Medicine: Key Role in the Management of Complex Diseases, Such as Melanoma
inferred← citeshttps://doi.org/10.3390/jpm4040459openalex-snapshot
Community Engagement for Big Epidemiology: Deliberative Democracy as a Tool
inferred← citeshttps://doi.org/10.3785/j.issn.1008-9292.2016.07.01openalex-snapshot
[Standardization of cancer biobank in precision medicine era].
inferred← citeshttps://doi.org/10.4045/tidsskr.12.0078openalex-snapshot
Should genetic findings from genome research be reported back to the participants?
inferred← citeshttps://doi.org/10.4067/s1726-569x2013000100005openalex-snapshot
Administración biopolítica de la intimidad en los Biobancos
inferred← citeshttps://doi.org/10.4081/oncol.2018.357openalex-snapshot
Cancer oriented biobanks: A comprehensive review
inferred← citeshttps://doi.org/10.4103/picr.picr_92_25openalex-snapshot
Stakeholder perspectives on ethical issues in genetic data reuse within clinical trials
inferred← citeshttps://doi.org/10.4155/bio.12.218openalex-snapshot
Application of Metabolomics Approaches to The Study of Respiratory Diseases
inferred← citeshttps://doi.org/10.4236/ojepi.2019.93016openalex-snapshot
Assessment of Knowledge, Attitudes and Support of Health Professionals towards Biobanks in Eastern Morocco
inferred← citeshttps://doi.org/10.5146/tjpath.2020.01482openalex-snapshot
Pathology and biobanking
inferred← citeshttps://doi.org/10.5334/ojb.38openalex-snapshot
Hospital-integrated Biobanking as a Service – The Interdisciplinary Bank of Biomaterials and Data Wuerzburg (ibdw)
inferred← citeshttps://doi.org/10.57598/r132aopenalex-snapshot
Is Neonatale Screening op Mucoviscidose aangewezen in België?
inferred← citeshttps://doi.org/10.6084/m9.figshare.19091070openalex-snapshot
Additional file 1 of It is not a big deal: a qualitative study of clinical biobank donation experience and motives
inferred← citeshttps://doi.org/10.6084/m9.figshare.20488713openalex-snapshot
Additional file 1 of Biobanks in the low- and middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements—a qualitative study involving biobank managers
inferred← citeshttps://doi.org/10.6084/m9.figshare.26562781openalex-snapshot
Additional file 1 of Stakeholder views on informed consent models for future use of biological samples in Malawi and South Africa
inferred← citeshttps://doi.org/10.70675/68d17c6cze7b2z475azbbb9z4aaaabdf3cc9openalex-snapshot
Development of an integrated Information Technology System for management of laboratory data and next-generation sequencing workflows within a cancer genomics research platform
inferred← citeshttps://doi.org/10.7196/sajbl.204openalex-snapshot
Laws, regulations and guidelines of developed countries, developing countries in Africa, and BRICS regions pertaining to the use of human biological material (HBM) in research
Editorial review for independent work. ICSAC — the Institute for Complexity Science and Advanced Computing — runs a structured editorial panel for researchers publishing outside journals, and publishes on CiteStamp rails. Submission is free and goes through ORCID: icsacinstitute.org/submit.