On the public citation graph
The ethical and legal landscape of brain data governance
0 signed · 142 inferred · view as graph
Inferred edges come from two machine sources: sweeps of open repository metadata (mostly SSRN and Zenodo), and a bulk OpenAlex citation snapshot. Every row below is labelled with the one it came from. Neither is a complete citation index — absence here is not evidence of absence.
Is this your work? Sign in with ORCID and put your name on the
claims that are yours.
Reference health. See whether every reference in this work resolves to a
known work and none has been retracted — and get a dated CiteStamped
badge you can embed.
What this work says
Outgoing claims: the papers this work cites, builds on, or argues with.
inferredcites →https://doi.org/10.1002/asi.24367openalex-snapshot
“The dearest of our possessions”: Applying Floridi's information privacy concept in models of information behavior and information literacy
inferredcites →https://doi.org/10.1007/s00401-008-0360-8openalex-snapshot
Management of a twenty-first century brain bank: experience in the BrainNet Europe consortium
inferredcites →https://doi.org/10.1007/s00439-014-1432-6openalex-snapshot
A human rights approach to an international code of conduct for genomic and clinical data sharing
inferredcites →https://doi.org/10.1007/s10730-019-09377-5openalex-snapshot
Transformation of the Doctor–Patient Relationship: Big Data, Accountable Care, and Predictive Health Analytics
inferredcites →https://doi.org/10.1007/s11673-017-9809-6openalex-snapshot
Biomedical Big Data: New Models of Control Over Access, Use and Governance
inferredcites →https://doi.org/10.1007/s11920-017-0822-6openalex-snapshot
VA’s National PTSD Brain Bank: a National Resource for Research
inferredcites →https://doi.org/10.1007/s11948-015-9652-2openalex-snapshot
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
inferredcites →https://doi.org/10.1007/s11948-020-00249-7openalex-snapshot
Limits of Neural Computation in Humans and Machines
inferredcites →https://doi.org/10.1007/s12152-018-9371-xopenalex-snapshot
Big Brain Data: On the Responsible Use of Brain Data from Clinical and Consumer-Directed Neurotechnological Devices
inferredcites →https://doi.org/10.1007/s12152-022-09481-3openalex-snapshot
Novel Neurorights: From Nonsense to Substance
inferredcites →https://doi.org/10.1007/s13347-017-0288-9openalex-snapshot
Trust and Justice in Big Data Analytics: Bringing the Philosophical Literature on Trust to Bear on the Ethics of Consent
inferredcites →https://doi.org/10.1007/s41649-019-00100-7openalex-snapshot
Big Data and Public-Private Partnerships in Healthcare and Research
inferredcites →https://doi.org/10.1016/j.alcohol.2016.02.005openalex-snapshot
The NSW brain tissue resource centre: Banking for alcohol and major neuropsychiatric disorders research
inferredcites →https://doi.org/10.1016/j.clsr.2020.105412openalex-snapshot
Data Protection, Scientific Research, and the Role of Information
inferredcites →https://doi.org/10.1016/j.clsr.2020.105431openalex-snapshot
Data protection and research: A vital challenge in the era of COVID-19 pandemic
inferredcites →https://doi.org/10.1016/j.cortex.2011.04.016openalex-snapshot
Privacy and governance implications of wider societal uses of brain imaging data
inferredcites →https://doi.org/10.1016/j.ejca.2008.03.011openalex-snapshot
Obstacles to European research projects with data and tissue: Solutions and further challenges
inferredcites →https://doi.org/10.1016/j.ijinfomgt.2019.07.008openalex-snapshot
Data governance: A conceptual framework, structured review, and research agenda
inferredcites →https://doi.org/10.1016/j.ijmedinf.2019.02.006openalex-snapshot
EMIF Catalogue: A collaborative platform for sharing and reusing biomedical data
inferredcites →https://doi.org/10.1016/j.isci.2020.101134openalex-snapshot
Privacy Challenges to the Democratization of Brain Data
inferredcites →https://doi.org/10.1016/j.jbi.2017.03.017openalex-snapshot
Envisioning the future of ‘big data’ biomedicine
inferredcites →https://doi.org/10.1016/j.nbt.2018.10.001openalex-snapshot
Transnational access to large prospective cohorts in Europe: Current trends and unmet needs
inferredcites →https://doi.org/10.1016/j.neuron.2015.10.025openalex-snapshot
Neurodata Without Borders: Creating a Common Data Format for Neurophysiology
inferredcites →https://doi.org/10.1016/j.neuron.2018.09.021openalex-snapshot
Neuroethics Questions to Guide Ethical Research in the International Brain Initiatives
inferredcites →https://doi.org/10.1016/j.neuron.2020.02.022openalex-snapshot
International Brain Initiative: An Innovative Framework for Coordinated Global Brain Research Efforts
inferredcites →https://doi.org/10.1016/j.neuron.2021.11.017openalex-snapshot
International data governance for neuroscience
inferredcites →https://doi.org/10.1016/j.oraloncology.2019.09.003openalex-snapshot
The potential use of big data in oncology
inferredcites →https://doi.org/10.1016/j.puhe.2019.03.026openalex-snapshot
Indigenous data and health: critical approaches to ‘race’/ethnicity and Indigenous data governance
inferredcites →https://doi.org/10.1016/j.socscimed.2016.06.028openalex-snapshot
Understanding public reactions to commercialization of biobanks and use of biobank resources
inferredcites →https://doi.org/10.1016/j.tins.2006.07.002openalex-snapshot
Neuroethics: a modern context for ethics in neuroscience
inferredcites →https://doi.org/10.1016/s0140-6736(13)62297-7openalex-snapshot
Increasing value and reducing waste in biomedical research regulation and management
inferredcites →https://doi.org/10.1016/s0896-6273(02)00763-8openalex-snapshot
Neuroethics for the New Millenium
inferredcites →https://doi.org/10.1016/s2589-2959(19)30019-0openalex-snapshot
Developments in Neuroethics and Bioethics
inferredcites →https://doi.org/10.1017/cbo9781139226578openalex-snapshot
The Politics and Ethics of Identity
inferredcites →https://doi.org/10.1017/s0963180118000087openalex-snapshot
The New Ethics of Neuroethics
inferredcites →https://doi.org/10.1021/pr200824aopenalex-snapshot
Standard Guidelines for the Chromosome-Centric Human Proteome Project
inferredcites →https://doi.org/10.1038/s41431-018-0228-xopenalex-snapshot
Current practices for access, compensation, and prioritization in biobanks. Results from an interview study
inferredcites →https://doi.org/10.1038/s41431-020-0646-4openalex-snapshot
Future-proofing biobanks’ governance
inferredcites →https://doi.org/10.1038/s41436-018-0299-7openalex-snapshot
Sharing data for future research'engaging participants' views about data governance beyond the original project: a DIRECT Study
inferredcites →https://doi.org/10.1055/s-0037-1606482openalex-snapshot
Findings from the 2017 Yearbook Section on Health Information Management
inferredcites →https://doi.org/10.1055/s-0038-1641218openalex-snapshot
Findings from 2017 on Consumer Health Informatics and Education: Health Data Access and Sharing
inferredcites →https://doi.org/10.1055/s-0040-1709158openalex-snapshot
Applying FAIRness: Redesigning a Biomedical Informatics Research Data Management Pipeline
inferredcites →https://doi.org/10.1080/0144929x.2011.624633openalex-snapshot
Beyond synthesis: re-presenting heterogeneous research literature
inferredcites →https://doi.org/10.1080/09615768.2007.11427678openalex-snapshot
Genomic Databases and International Collaboration
inferredcites →https://doi.org/10.1080/13645579.2014.924169openalex-snapshot
On ethical principles for social research
inferredcites →https://doi.org/10.1080/21507740.2019.1632972openalex-snapshot
The Need for a Conceptual Expansion of Neuroethics
inferredcites →https://doi.org/10.1089/bio.2015.0123openalex-snapshot
Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project
inferredcites →https://doi.org/10.1089/bio.2016.0005openalex-snapshot
An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health
inferredcites →https://doi.org/10.1089/neu.2013.2896openalex-snapshot
Toward an International Initiative for Traumatic Brain Injury Research
inferredcites →https://doi.org/10.1089/omi.2019.0038openalex-snapshot
Integrating Artificial and Human Intelligence: A Partnership for Responsible Innovation in Biomedical Engineering and Medicine
inferredcites →https://doi.org/10.1093/bib/bbaa418openalex-snapshot
Health informatics and EHR to support clinical research in the COVID-19 pandemic: an overview
inferredcites →https://doi.org/10.1093/gigascience/gix110openalex-snapshot
Taiwan Biobank: making cross-database convergence possible in the Big Data era
inferredcites →https://doi.org/10.1093/jamia/ocy040openalex-snapshot
The role of ethics in data governance of large neuro-ICT projects
inferredcites →https://doi.org/10.1093/medlaw/fwz016openalex-snapshot
Big Data Governance Needs More Collective Responsibility: The Role of Harm Mitigation in the Governance of Data Use in Medicine and Beyond
inferredcites →https://doi.org/10.1097/mlr.0b013e318259becdopenalex-snapshot
Building the Informatics Infrastructure for Comparative Effectiveness Research (CER)
inferredcites →https://doi.org/10.1108/jeim-01-2017-0007openalex-snapshot
Data governance activities: a comparison between scientific and practice-oriented literature
inferredcites →https://doi.org/10.1111/j.1471-1842.2009.00848.xopenalex-snapshot
A typology of reviews: an analysis of 14 review types and associated methodologies
inferredcites →https://doi.org/10.1111/j.1748-121x.2007.00045.xopenalex-snapshot
Are UK genetic databases governed adequately? A comparative legal analysis
inferredcites →https://doi.org/10.1111/jlme.12311openalex-snapshot
Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework
inferredcites →https://doi.org/10.1136/amiajnl-2013-002308openalex-snapshot
Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders
inferredcites →https://doi.org/10.1136/amiajnl-2013-002370openalex-snapshot
Clinical research data warehouse governance for distributed research networks in the USA: a systematic review of the literature
inferredcites →https://doi.org/10.1136/bmj.n71openalex-snapshot
The PRISMA 2020 statement: an updated guideline for reporting systematic reviews
inferredcites →https://doi.org/10.1136/bmjopen-2018-026828openalex-snapshot
Participatory governance over research in an academic research network: the case of Diabetes Action Canada
inferredcites →https://doi.org/10.1136/jamia.2009.002691openalex-snapshot
The Enterprise Data Trust at Mayo Clinic: a semantically integrated warehouse of biomedical data
inferredcites →https://doi.org/10.1136/medethics-2020-106530openalex-snapshot
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions
inferredcites →https://doi.org/10.1145/1515693.1515696openalex-snapshot
One Size Does Not Fit All---A Contingency Approach to Data Governance
inferredcites →https://doi.org/10.1145/3448302openalex-snapshot
Dimensionality Reduction Methods for Brain Imaging Data Analysis
inferredcites →https://doi.org/10.1146/annurev-biodatasci-080917-013416openalex-snapshot
Privacy Policy and Technology in Biomedical Data Science
inferredcites →https://doi.org/10.1163/22112596-02102005openalex-snapshot
Alternative Rule-Making within European Bioethics – Necessary and Therefore Legitimate?
inferredcites →https://doi.org/10.1163/22134514-00103003openalex-snapshot
Genomics Governance in the United States and the United Kingdom
inferredcites →https://doi.org/10.1177/0306312716681210openalex-snapshot
Controlling new knowledge: Genomic science, governance and the politics of bioinformatics
inferredcites →https://doi.org/10.1177/0306312718804875openalex-snapshot
Concealment and discovery: The role of information security in biomedical data re-use
inferredcites →https://doi.org/10.1177/1073110519840483openalex-snapshot
What is a Medical Information Commons?
inferredcites →https://doi.org/10.1177/2053951716688490openalex-snapshot
Understanding the care.data conundrum: New information flows for economic growth
inferredcites →https://doi.org/10.1177/2053951719853858openalex-snapshot
Assessing the consequences of decentralizing biomedical research
inferredcites →https://doi.org/10.1186/1472-6939-7-4openalex-snapshot
A biobank management model applicable to biomedical research
inferredcites →https://doi.org/10.1186/1472-6947-9-31openalex-snapshot
Security and privacy requirements for a multi-institutional cancer research data grid: an interview-based study
inferredcites →https://doi.org/10.1186/gm503openalex-snapshot
An ethics safe harbor for international genomics research?
inferredcites →https://doi.org/10.1186/s12910-016-0117-1openalex-snapshot
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
inferredcites →https://doi.org/10.1186/s12910-017-0240-7openalex-snapshot
Balancing the local and the universal in maintaining ethical access to a genomics biobank
inferredcites →https://doi.org/10.1186/s12910-018-0261-xopenalex-snapshot
Patient data and patient rights: Swiss healthcare stakeholders’ ethical awareness regarding large patient data sets – a qualitative study
inferredcites →https://doi.org/10.1186/s12911-019-0799-7openalex-snapshot
Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research
inferredcites →https://doi.org/10.1186/s12911-020-01177-zopenalex-snapshot
Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies
inferredcites →https://doi.org/10.1186/s13195-020-0584-yopenalex-snapshot
We need to think about data governance for dementia research in a digital era
inferredcites →https://doi.org/10.1186/s40246-018-0143-9openalex-snapshot
Including all voices in international data-sharing governance
inferredcites →https://doi.org/10.1186/s40246-018-0147-5openalex-snapshot
The development of large-scale de-identified biomedical databases in the age of genomics—principles and challenges
inferredcites →https://doi.org/10.1186/s40246-018-0154-6openalex-snapshot
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure
inferredcites →https://doi.org/10.1186/s40504-020-00109-zopenalex-snapshot
Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe
inferredcites →https://doi.org/10.12688/wellcomeopenres.13531.1openalex-snapshot
“Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland
inferredcites →https://doi.org/10.12688/wellcomeopenres.13531.2openalex-snapshot
“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland
inferredcites →https://doi.org/10.1371/journal.pone.0229044openalex-snapshot
Evolving public views on the value of one’s DNA and expectations for genomic database governance: Results from a national survey
inferredcites →https://doi.org/10.1515/1941-6008.1178openalex-snapshot
The Politics of Representation in the Governance of Emergent 'Secondary Use' Biobanks: The Case of Dried Blood Spot Cards in the Netherlands
inferredcites →https://doi.org/10.15252/msb.202110229openalex-snapshot
The Data Governance Act and the EU's move towards facilitating data sharing
inferredcites →https://doi.org/10.15265/iy-2014-0009openalex-snapshot
Clinical Research Informatics and Electronic Health Record Data
inferredcites →https://doi.org/10.17705/1cais.02903openalex-snapshot
Organizing Data Governance: Findings from the Telecommunications Industry and Consequences for Large Service Providers
inferredcites →https://doi.org/10.2307/41409971openalex-snapshot
Privacy in the Digital Age: a Review of Information Privacy Research in Information Systems1
inferredcites →https://doi.org/10.2471/blt.19.234732openalex-snapshot
Ensuring trustworthy use of artificial intelligence and big data analytics in health insurance
inferredcites →https://doi.org/10.31222/osf.io/v7gm2openalex-snapshot
The PRISMA 2020 statement: an updated guideline for reporting systematic reviews
inferredcites →https://doi.org/10.31234/osf.io/esz9bopenalex-snapshot
International Data Governance for Neuroscience
inferredcites →https://doi.org/10.3233/978-1-61499-858-7-196openalex-snapshot
Clinical Knowledge Governance Framework for Nationwide Data Infrastructure Projects
inferredcites →https://doi.org/10.3233/shti190231openalex-snapshot
Provenance Solutions for Medical Research in Heterogeneous IT-Infrastructure: An Implementation Roadmap
inferredcites →https://doi.org/10.3389/fdata.2019.00040openalex-snapshot
Challenges and Legal Gaps of Genetic Profiling in the Era of Big Data
inferredcites →https://doi.org/10.3389/fgene.2018.00190openalex-snapshot
The Public’s Awareness of and Attitude Toward Research Biobanks – A Regional German Survey
inferredcites →https://doi.org/10.3389/fgene.2019.00191openalex-snapshot
Big Data Needs Big Governance: Best Practices From Brain-CODE, the Ontario-Brain Institute’s Neuroinformatics Platform
inferredcites →https://doi.org/10.3389/fgene.2019.00611openalex-snapshot
Enabling Global Clinical Collaborations on Identifiable Patient Data: The Minerva Initiative
inferredcites →https://doi.org/10.3389/fninf.2019.00028openalex-snapshot
Responsible Data Governance of Neuroscience Big Data
inferredcites →https://doi.org/10.3390/data4020054openalex-snapshot
DiiS: A Biomedical Data Access Framework for Aiding Data Driven Research Supporting FAIR Principles
inferredcites →https://doi.org/10.3414/me17-02-0025openalex-snapshot
MIRACUM: Medical Informatics in Research and Care in University Medicine
inferredcites →https://doi.org/10.3414/me18-02-0002openalex-snapshot
HiGHmed – An Open Platform Approach to Enhance Care and Research across Institutional Boundaries
inferredcites →https://doi.org/10.4414/smw.2014.14033openalex-snapshot
The Lausanne Institutional Biobank: A new resource to catalyse research in personalised medicine and pharmaceutical sciences
inferredcites →https://doi.org/10.4414/smw.2018.14571openalex-snapshot
Digital health: meeting the ethical and policy challenges
inferredcites →https://doi.org/10.5334/dsj-2017-021openalex-snapshot
DataSHIELD – New Directions and Dimensions
inferredcites →https://doi.org/10.7326/m18-0850openalex-snapshot
PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation
What points at this work
Incoming claims: where this work appears in other papers’ reference lists and arguments.
inferred← citeshttps://doi.org/10.2139/ssrn.4680185openalex-extracted
Desiderata for Discoverability and Fair Adoption Of Health Data Hubs
inferred← citeshttps://doi.org/10.1007/978-3-031-83771-5_9openalex-snapshot
Neuroscientific Evidence in Legal Proceedings
inferred← citeshttps://doi.org/10.1007/978-3-032-11596-6_14openalex-snapshot
Institutional Models for Scientific Integrity in Neuroscience Research
inferred← citeshttps://doi.org/10.1007/s00429-026-03182-wopenalex-snapshot
Predicting big five personality traits from resting-state EEG connectivity: a connectome predictive modeling study
inferred← citeshttps://doi.org/10.1007/s11673-025-10440-9openalex-snapshot
Ethical Governance Strategies for the Responsible Innovation of Neurotechnologies: A Scoping Review
inferred← citeshttps://doi.org/10.1007/s12152-024-09558-1openalex-snapshot
Perceptions on the Ethical and Legal Principles that Influence Global Brain Data Governance
inferred← citeshttps://doi.org/10.1007/s12152-025-09609-1openalex-snapshot
Privacy in Perspective: Research Participants’ Priorities and Concerns Related to Sharing Data Generated in Human Neuroscience Studies
inferred← citeshttps://doi.org/10.1016/b978-0-443-21598-8.00013-0openalex-snapshot
Impact of digital health on main stakeholders in the healthcare industry
inferred← citeshttps://doi.org/10.1016/b978-0-443-27722-1.00012-2openalex-snapshot
Bridging scales in brain health: Explainable artificial intelligence and multimodal imaging for integrated, regenerative neuro‑care
inferred← citeshttps://doi.org/10.1016/j.arr.2023.102180openalex-snapshot
Pangenomics: A new era in the field of neurodegenerative diseases
inferred← citeshttps://doi.org/10.1016/j.jbi.2024.104700openalex-snapshot
Desiderata for discoverability and FAIR adoption of health data hubs
inferred← citeshttps://doi.org/10.1016/j.neuron.2024.09.004openalex-snapshot
Beyond neural data: Cognitive biometrics and mental privacy
inferred← citeshttps://doi.org/10.1016/j.tins.2026.09.003openalex-snapshot
When minds become data: brain–computer interfaces and the future of mental privacy
inferred← citeshttps://doi.org/10.1016/j.ymeth.2026.01.002openalex-snapshot
Navigating the frontier of human microglia isolation—standardization and translational insight
inferred← citeshttps://doi.org/10.1038/s41593-026-02468-wopenalex-snapshot
Reconciling global collaboration and data sovereignty in neuroscience
inferred← citeshttps://doi.org/10.1038/s41597-025-04743-0openalex-snapshot
A labeled Clinical-MRI dataset of Nigerian brains
inferred← citeshttps://doi.org/10.1111/dewb.70033openalex-snapshot
Contextualising Mental Privacy in South Africa: Legal, Ethical, and Socio‐Cultural Considerations With Policy Recommendations
inferred← citeshttps://doi.org/10.1177/20552076251326123openalex-snapshot
Regulating neural data processing in the age of BCIs: Ethical concerns and legal approaches
inferred← citeshttps://doi.org/10.21203/rs.3.rs-2917446/v1openalex-snapshot
Towards an understanding of global brain data governance: perceptions on the ethical and legal principles that influence brain data governance
inferred← citeshttps://doi.org/10.21203/rs.3.rs-2917446/v2openalex-snapshot
Towards an understanding of global brain data governance: perceptions on the ethical and legal principles that influence brain data governance
inferred← citeshttps://doi.org/10.3389/fdata.2023.1240660openalex-snapshot
Towards an understanding of global brain data governance: ethical positions that underpin global brain data governance discourse
inferred← citeshttps://doi.org/10.3389/fninf.2023.1233121openalex-snapshot
Time to consider animal data governance: perspectives from neuroscience
inferred← citeshttps://doi.org/10.4018/979-8-3373-3987-0.ch008openalex-snapshot
Gen Alpha and Continuous Learning to Strengthen Organizational Culture in Digitally Converged Corporate Environments
inferred← citeshttps://doi.org/10.56238/revgeov17n3-158openalex-snapshot
GESTÃO DO CONHECIMENTO E GOVERNANÇA DE DADOS: ANÁLISE DE ELEMENTOS CORRELACIONÁVEIS
Editorial review for independent work. ICSAC — the Institute for Complexity
Science and Advanced Computing — runs a structured editorial panel for researchers
publishing outside journals, and publishes on CiteStamp rails. Submission is free
and goes through ORCID: icsacinstitute.org/submit.