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Understanding public reactions to commercialization of biobanks and use of biobank resources

https://doi.org/10.1016/j.socscimed.2016.06.028
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

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The Impact of Commercialisation on Public Perceptions of Stem Cell Research: Exploring Differences Across the Use of Induced Pluripotent Cells, Human and Animal Embryos
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Toward a roadmap in global biobanking for health
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Biobanking, Consent, and Control: A Survey of Albertans on Key Research Ethics Issues
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A Framework for Biobank Sustainability
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Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
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A review of the key issues associated with the commercialization of biobanks
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The Influence of Trust and Perceptions of Risks and Benefits on the Acceptance of Gene Technology
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Genetic eye research in Tasmania: a historical overview
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Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing
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The Impact of Commercialisation and Genetic Data Sharing Arrangements on Public Trust and the Intention to Participate in Biobank Research
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Multiple imputation: a primer
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Public opinion and trust in scientists: the role of the research context, and the perceived motivation of stem cell researchers
inferredcites →https://doi.org/10.1177/0963662508097626openalex-snapshot
Recruiting for representation in public deliberation on the ethics of biobanks
inferredcites →https://doi.org/10.1177/0963662509346910openalex-snapshot
Understanding the impact of commercialization on public support for scientific research: Is it about the funding source or the organization conducting the research?
inferredcites →https://doi.org/10.1177/0963662511402425openalex-snapshot
Benefit sharing and biobanking in Australia
inferredcites →https://doi.org/10.1177/0963662515623925openalex-snapshot
Identifying public expectations of genetic biobanks
inferredcites →https://doi.org/10.1177/160940690600500107openalex-snapshot
Demonstrating Rigor Using Thematic Analysis: A Hybrid Approach of Inductive and Deductive Coding and Theme Development
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Cancer patient perceptions on the ethical and legal issues related to biobanking
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Characterizing biobank organizations in the U.S.: results from a national survey
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Public Trust, Intellectual Property and Human Genetic Databanks: The Need to Take Benefit Sharing Seriously
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Creation and Governance of Human Genetic Research Databases
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Standards for Biobank Access and Intellectual Property
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Governing Biobanks : Understanding the Interplay between Law and Practice

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

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An agenda-setting paper on data sharing platforms: euCanSHare workshop
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Recommendation: Points to consider in the development of national human genome editing policy — R0/PR4
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Decision: Points to consider in the development of national human genome editing policy — R0/PR5
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Author comment: Points to consider in the development of national human genome editing policy — R1/PR6
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Review: Points to consider in the development of national human genome editing policy — R1/PR7
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Recommendation: Points to consider in the development of national human genome editing policy — R1/PR8
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Decision: Points to consider in the development of national human genome editing policy — R1/PR9
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Attitudes of blood donors to their sample and data donation for biobanking
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Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands
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Motives for withdrawal of participation in biobanking and participants’ willingness to allow linkages of their data
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Race, Trust in Doctors, Privacy Concerns, and Consent Preferences for Biobanks
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Assessing Researcher Needs for a Virtual Biobank
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Biobank donation in search of public benefits and the potential impact of intellectual property rights over access to health-technologies developed: A focus on the bioethical implications
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Genetic and Genomics Research
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Trans-border transfer of human biological materials in collaborative biobanking research: Perceptions and experiences of researchers in Uganda
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Market‐driven production of biospecimens and the role of NHS hospital‐led biobanks
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Organoids as hybrids: ethical implications for the exchange of human tissues
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Multiple Stakeholder Views on Data Sharing in a Biobank in an Integrated Healthcare Delivery System: Implications for Biobank Governance
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Translational Science, DNA Commercialization, and Informed Consent: The Need for Specific Terminology, Insights from a Review of H3Africa Projects
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Toward Patient Involvement and Representation in the Governance of Genomic Data Archives: Deliberative Forums with Patients in Germany
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A systematic literature review of the ‘commercialisation effect’ on public attitudes towards biobank and genomic data repositories
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Towards a trusted genomics repository: Identifying commercialisation fears and preferred forms of governance across segments of the community
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Biobank Participants’ Attitudes Toward Data Sharing and Privacy: The Role of Trust in Reducing Perceived Risks
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Jordanian Undergraduate Students’ Views of Participation in Clinical Trials: The COVID-19 Example
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Determinants of the willingness to participate in biobanking among Malaysian stakeholders in the Klang Valley
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Biobanking in Israel 2016–17; expressed perceptions versus real life enrollment
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What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues
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Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
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Motives of contributing personal data for health research: (non-)participation in a Dutch biobank
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Public trust and global biobank networks
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Biobanks in the low- and middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements—a qualitative study involving biobank managers
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Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents
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Opportunities for a national genomic data governance framework in Australia: a systematic review
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The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
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Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
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Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance
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Recommendations for the development of Egyptian human biobanking ethical guidelines
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Public trust and genomic medicine in Canada and the UK
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Public trust and genomic medicine in Canada and the UK
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Italian public’s views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study
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Knowledge, perceptions and attitude of Egyptian physicians towards biobanking issues
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The ethical and legal landscape of brain data governance
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Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear
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Sostenibilidad financiera de los biobancos en Colombia: alternativas jurídicas y éticas
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Biobank sustainability: current status and future prospects
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Effective and sustainable patient participation
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Values of trust and participation in scientific data repositories
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Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members
inferred← citeshttps://doi.org/10.3389/fgene.2026.1778236openalex-snapshot
When genomics companies act as biobanks: governance challenges in an era of genomic assetization
inferred← citeshttps://doi.org/10.3389/fgene.2026.1778587openalex-snapshot
Navigating tensions between scientific advancement and ethical practice in biobanking: a qualitative study in Japan
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Commercialisation fears and preferred forms of governance: a mixed methods investigation to identify a trusted Australian genomics repository
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Establishing Adaptive Governance in NFDI Consortia:
inferred← citeshttps://doi.org/10.6084/m9.figshare.12813561openalex-snapshot
Additional file 1 of Public trust and global biobank networks
inferred← citeshttps://doi.org/10.6084/m9.figshare.14677154openalex-snapshot
Additional file 1 of Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
inferred← citeshttps://doi.org/10.6084/m9.figshare.20488713openalex-snapshot
Additional file 1 of Biobanks in the low- and middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements—a qualitative study involving biobank managers
inferred← citeshttps://doi.org/10.6084/m9.figshare.23983500openalex-snapshot
Additional file 1 of The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
inferred← citeshttps://doi.org/10.6084/m9.figshare.23983503openalex-snapshot
Additional file 2 of The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
inferred← citeshttps://doi.org/10.6084/m9.figshare.23983509openalex-snapshot
Additional file 3 of The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
inferred← citeshttps://doi.org/10.6084/m9.figshare.23983512openalex-snapshot
Additional file 4 of The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
inferred← citeshttps://doi.org/10.6084/m9.figshare.23983515openalex-snapshot
Additional file 5 of The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
inferred← citeshttps://doi.org/10.6084/m9.figshare.23983518openalex-snapshot
Additional file 6 of The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579825openalex-snapshot
Additional file 1 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579828openalex-snapshot
Additional file 2 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579831openalex-snapshot
Additional file 3 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579834openalex-snapshot
Additional file 4 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579837openalex-snapshot
Additional file 5 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
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