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Setting up a Governance Framework for Secondary Use of Routine Health Data in Nursing Homes: Development Study Using Qualitative Interviews
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What this work says
Outgoing claims: the papers this work cites, builds on, or argues with.
inferredcites →https://doi.org/10.1002/lrh2.10211openalex-snapshot
Learning health care systems: Highly needed but challenging
inferredcites →https://doi.org/10.1016/j.canep.2018.12.005openalex-snapshot
Bias in survival estimates created by a requirement for consent to enter a clinical breast cancer registry
inferredcites →https://doi.org/10.1016/j.ijinfomgt.2019.07.008openalex-snapshot
Data governance: A conceptual framework, structured review, and research agenda
inferredcites →https://doi.org/10.1080/20502877.2017.1314893openalex-snapshot
Data Sharing and the Idea of Ownership
inferredcites →https://doi.org/10.1093/ageing/afaa018openalex-snapshot
New Horizons in the use of routine data for ageing research
inferredcites →https://doi.org/10.1093/forestry/cpv044openalex-snapshot
The social licence to operate: a critical review
inferredcites →https://doi.org/10.1111/j.1475-6773.2010.01140.xopenalex-snapshot
Data Governance and Stewardship: Designing Data Stewardship Entities and Advancing Data Access
inferredcites →https://doi.org/10.1111/j.1532-5415.1998.tb02477.xopenalex-snapshot
Getting Meaningful Informed Consent from Older Adults: A Structured Literature Review of Empirical Research
inferredcites →https://doi.org/10.1126/scitranslmed.3001456openalex-snapshot
Achieving a Nationwide Learning Health System
inferredcites →https://doi.org/10.1136/amiajnl-2014-002977openalex-snapshot
Toward a science of learning systems: a research agenda for the high-functioning Learning Health System
inferredcites →https://doi.org/10.1136/bmj.b866openalex-snapshot
Written informed consent and selection bias in observational studies using medical records: systematic review
inferredcites →https://doi.org/10.1136/bmjopen-2018-026828openalex-snapshot
Participatory governance over research in an academic research network: the case of Diabetes Action Canada
inferredcites →https://doi.org/10.1136/medethics-2018-105340openalex-snapshot
How should we think about clinical data ownership?
inferredcites →https://doi.org/10.1136/medethics-2019-105651openalex-snapshot
Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
inferredcites →https://doi.org/10.1136/medethics-2020-107020openalex-snapshot
What can data trusts for health research learn from participatory governance in biobanks?
inferredcites →https://doi.org/10.1186/s12961-019-0477-3openalex-snapshot
A framework for value-creating learning health systems
inferredcites →https://doi.org/10.1186/s13643-021-01663-zopenalex-snapshot
A systematic literature review of attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on consent
inferredcites →https://doi.org/10.1186/s40246-018-0154-6openalex-snapshot
Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure
inferredcites →https://doi.org/10.1197/jamia.m2273openalex-snapshot
Toward a National Framework for the Secondary Use of Health Data: An American Medical Informatics Association White Paper
inferredcites →https://doi.org/10.1542/peds.2012-3786hopenalex-snapshot
Collaborative Networks for Both Improvement and Research
inferredcites →https://doi.org/10.2105/ajph.2013.301220openalex-snapshot
Electronic Health Records and US Public Health: Current Realities and Future Promise
inferredcites →https://doi.org/10.2196/17026openalex-snapshot
An Analysis of the Learning Health System in Its First Decade in Practice: Scoping Review
inferredcites →https://doi.org/10.2196/22214openalex-snapshot
The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review
inferredcites →https://doi.org/10.23889/ijpds.v4i1.586openalex-snapshot
Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research
inferredcites →https://doi.org/10.23889/ijpds.v5i4.1391openalex-snapshot
Closing the UK care home data gap – methodological challenges and solutions
inferredcites →https://doi.org/10.3928/19404921-20090428-03openalex-snapshot
Informed Consent to Research in Long-Term Care Settings
inferredcites →https://doi.org/10.5334/egems.288openalex-snapshot
Willingness to Participate in Health Information Networks with Diverse Data Use: Evaluating Public Perspectives
What points at this work
Incoming claims: where this work appears in other papers’ reference lists and arguments.
inferred← citeshttps://doi.org/10.1007/s11301-025-00545-1openalex-snapshot
Systematic analysis of data governance frameworks and their relevance to data trusts
inferred← citeshttps://doi.org/10.1016/j.jpainsymman.2025.07.022openalex-snapshot
Timely Documentation of CPR Codes and Medical Treatment Preferences in the EHRs of Nursing Homes
inferred← citeshttps://doi.org/10.1016/j.zefq.2025.09.003openalex-snapshot
Umsetzung des Widerrufrechtes bei der Verarbeitung von Gesundheitsdaten in Forschungsprojekten
inferred← citeshttps://doi.org/10.1136/bmjoq-2025-003309openalex-snapshot
Ethical and legal considerations governing use of health data for quality improvement and performance management: a scoping review of the perspectives of health professionals and administrators
inferred← citeshttps://doi.org/10.1177/21582440251369322openalex-snapshot
Information Technology Governance Implementation Challenges in Healthcare Facilities: A Systematic Literature Review
inferred← citeshttps://doi.org/10.1186/s12961-026-01490-5openalex-snapshot
Available guidance for ethical challenges in learning health systems: an integrative literature review
inferred← citeshttps://doi.org/10.21203/rs.3.rs-10145976/v1openalex-snapshot
The association between fidelity enactment and intervention effectiveness of the Support Healthcare Improvement through Facilitated Training (SHIFT) intervention: A pragmatic convergent mixed methods study
inferred← citeshttps://doi.org/10.2196/73625openalex-snapshot
Exploring Literature on Data Governance in the Health Care of Older Persons: Scoping Review
inferred← citeshttps://doi.org/10.2196/preprints.51285openalex-snapshot
Health Organizations Challenges in Health Data Governance Implementation: A Systematic Review (Preprint)
inferred← citeshttps://doi.org/10.2196/preprints.73625openalex-snapshot
Exploring Literature on Data Governance in the Healthcare of Older Persons: A Scoping Review (Preprint)
inferred← citeshttps://doi.org/10.2196/preprints.95546openalex-snapshot
A Data Strategy for Secondary Use of Nursing Real World Data: Feasibility Study of the NuDaK Framework (Preprint)
inferred← citeshttps://doi.org/10.24294/jipd.v8i6.3892openalex-snapshot
Health organization challenges in health data governance implementation: A systematic review
inferred← citeshttps://doi.org/10.3389/fpubh.2024.1369790openalex-snapshot
Policy instruments for the governance of the social drivers of health data in clinical and research settings: a policy mapping brief
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