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Benefit sharing and biobanking in Australia

https://doi.org/10.1177/0963662511402425
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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

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Trust, Reciprocity, and Social History
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Do people trust too much or too little?
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Efficiency versus fairness: The evaluation of labor market policies by economists and laypeople
inferredcites →https://doi.org/10.1016/s0065-2601(08)60025-8openalex-snapshot
Social Norms, Feelings, and Other Factors Affecting Helping and Altruism
inferredcites →https://doi.org/10.1016/s1090-5138(98)00015-4openalex-snapshot
The Moral Economy of Communities
inferredcites →https://doi.org/10.1017/s1745855208005954openalex-snapshot
Human Tissue and ‘the Public’: The Case of Childhood Cancer Tumour Banking
inferredcites →https://doi.org/10.1037/0022-3514.67.5.850openalex-snapshot
Psychological models of the justice motive: Antecedents of distributive and procedural justice.
inferredcites →https://doi.org/10.1038/sj.bjc.6604795openalex-snapshot
Ethics and biobanks
inferredcites →https://doi.org/10.1046/j.1365-2796.2002.00949.xopenalex-snapshot
Attitudes towards clinical research amongst participants and nonparticipants
inferredcites →https://doi.org/10.1080/09615768.2007.11427674openalex-snapshot
Biobanks and Blanket Consent: The Proper Place of the Public Good and Public Perception Rationales
inferredcites →https://doi.org/10.1080/09615768.2007.11427675openalex-snapshot
The Ethical Challenges of Genetic Databases: Safeguarding Altruism and Trust
inferredcites →https://doi.org/10.1093/biomet/61.2.215openalex-snapshot
Exploratory Latent Structure Analysis Using Both Identifiable and Unidentifiable Models
inferredcites →https://doi.org/10.1093/eurpub/cki135openalex-snapshot
New wine in new bottles
inferredcites →https://doi.org/10.1093/eurpub/ckp218openalex-snapshot
A Dutch voice in a European tale
inferredcites →https://doi.org/10.1097/00125817-200301000-00006openalex-snapshot
Consent for genetic research in a general population: The NHANES experience
inferredcites →https://doi.org/10.1111/j.1468-2451.2005.00592.xopenalex-snapshot
The Universal Declaration on Bioethics and Human Rights
inferredcites →https://doi.org/10.1111/j.1540-4560.1975.tb00999.xopenalex-snapshot
The Justice of Need and the Activation of Humanitarian Norms
inferredcites →https://doi.org/10.1163/157180904323042399openalex-snapshot
International Declaration on Human Genetic Data
inferredcites →https://doi.org/10.1177/0963662506070162openalex-snapshot
Public opinion and trust in scientists: the role of the research context, and the perceived motivation of stem cell researchers
inferredcites →https://doi.org/10.1177/0963662509346910openalex-snapshot
Understanding the impact of commercialization on public support for scientific research: Is it about the funding source or the organization conducting the research?
inferredcites →https://doi.org/10.1257/jep.14.3.159openalex-snapshot
Fairness and Retaliation: The Economics of Reciprocity
inferredcites →https://doi.org/10.1353/mpq.2006.0029openalex-snapshot
Person-Centered and Variable-Centered Approaches to Longitudinal Data
inferredcites →https://doi.org/10.1353/pbm.2004.0017openalex-snapshot
"What's My DNA Worth, Anyway?" A Response to the Commercialization of Individuals' DNA Information
inferredcites →https://doi.org/10.1515/jibl.2006.012openalex-snapshot
Public Trust, Intellectual Property and Human Genetic Databanks: The Need to Take Benefit Sharing Seriously
inferredcites →https://doi.org/10.2307/2092623openalex-snapshot
The Norm of Reciprocity: A Preliminary Statement
inferredcites →https://doi.org/10.2307/257983openalex-snapshot
The Evolution of Cooperation
inferredcites →https://doi.org/10.2307/3319326openalex-snapshot
Social Behavior: Its Elementary Forms
inferredcites →https://doi.org/10.2307/3528230openalex-snapshot
Homo Economicus Commercialization of Body Tissue in the Age of Biotechnology
inferredcites →https://doi.org/10.25419/rcsi.10770743openalex-snapshot
Public perceptions of biomedical research: a survey of the general population in Ireland

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

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An agenda-setting paper on data sharing platforms: euCanSHare workshop
inferred← citeshttps://doi.org/10.12688/openreseurope.13860.2zenodo-depositor-declared
inferred← citeshttps://doi.org/10.1007/s10308-014-0396-4openalex-snapshot
Publics and biobanks in China and Europe: a comparative perspective
inferred← citeshttps://doi.org/10.1007/s11019-011-9353-9openalex-snapshot
We’re not in it for the money—lay people’s moral intuitions on commercial use of ‘their’ biobank
inferred← citeshttps://doi.org/10.1007/s11019-015-9661-6openalex-snapshot
“You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research
inferred← citeshttps://doi.org/10.1007/s11569-021-00390-yopenalex-snapshot
Manufacturing Life, What Life? Ethical Debates Around Biobanks and Social Robots
inferred← citeshttps://doi.org/10.1007/s12015-013-9445-4openalex-snapshot
The Impact of Commercialisation on Public Perceptions of Stem Cell Research: Exploring Differences Across the Use of Induced Pluripotent Cells, Human and Animal Embryos
inferred← citeshttps://doi.org/10.1016/b978-0-323-91286-0.00012-5openalex-snapshot
Toward a reciprocity-based relational autonomy for population biobanks: advantages and limitations
inferred← citeshttps://doi.org/10.1016/j.gim.2022.01.002openalex-snapshot
Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
inferred← citeshttps://doi.org/10.1016/j.socscimed.2016.06.028openalex-snapshot
Understanding public reactions to commercialization of biobanks and use of biobank resources
inferred← citeshttps://doi.org/10.1017/9781108590600openalex-snapshot
Personalised Medicine, Individual Choice and the Common Good
inferred← citeshttps://doi.org/10.1017/9781108590600.001openalex-snapshot
Introduction
inferred← citeshttps://doi.org/10.1017/9781108590600.002openalex-snapshot
Personalised Medicine and the Politics of Human Nuclear Genome Transfer
inferred← citeshttps://doi.org/10.1017/9781108590600.003openalex-snapshot
Stem Cell-Derived Gametes and Uterus Transplants
inferred← citeshttps://doi.org/10.1017/9781108590600.004openalex-snapshot
Personalising Future Health Risk through ‘Biological Insurance’
inferred← citeshttps://doi.org/10.1017/9781108590600.005openalex-snapshot
Combating the Trade in Organs
inferred← citeshttps://doi.org/10.1017/9781108590600.006openalex-snapshot
When There Is No Cure
inferred← citeshttps://doi.org/10.1017/9781108590600.007openalex-snapshot
Lost and Found
inferred← citeshttps://doi.org/10.1017/9781108590600.008openalex-snapshot
Presuming the Promotion of the Common Good by Large-Scale Health Research: The Cases Of Care Data 2 0 And The 100 000 Genomes Project In The UK
inferred← citeshttps://doi.org/10.1017/9781108590600.009openalex-snapshot
My Genome, My Right
inferred← citeshttps://doi.org/10.1017/9781108590600.010openalex-snapshot
‘The Best Me I Can Possibly Be’
inferred← citeshttps://doi.org/10.1017/9781108590600.011openalex-snapshot
I Run, You Run, We Run
inferred← citeshttps://doi.org/10.1017/9781108590600.012openalex-snapshot
The Molecularised Me
inferred← citeshttps://doi.org/10.1017/9781108590600.013openalex-snapshot
Bibliography
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Index
inferred← citeshttps://doi.org/10.1017/9781108590600.015openalex-snapshot
inferred← citeshttps://doi.org/10.1038/ejhg.2015.191openalex-snapshot
Health professionals’ opinions on supporting a cancer biobank: identification of barriers to combat biobanking pitfalls
inferred← citeshttps://doi.org/10.1038/gim.2012.23openalex-snapshot
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
inferred← citeshttps://doi.org/10.1089/bio.2018.0119openalex-snapshot
Next Chapter of the Taiwan Biobank: Sustainability and Perspectives
inferred← citeshttps://doi.org/10.1093/jlb/lsab018openalex-snapshot
An empirical study of large, human biobanks: intellectual property policies and financial conditions for access
inferred← citeshttps://doi.org/10.1093/jlb/lst004openalex-snapshot
A review of the key issues associated with the commercialization of biobanks
inferred← citeshttps://doi.org/10.1093/oncolo/oyae074openalex-snapshot
From ownership to custodianship of tumor biopsy tissue in genomic testing: a mixed methods study of patient views
inferred← citeshttps://doi.org/10.1111/j.1748-720x.2012.00652.xopenalex-snapshot
Currents in Contemporary Bioethics: Open Access as Benefit Sharing? The Example of Publicly Funded Large-Scale Genomic Databases
inferred← citeshttps://doi.org/10.1159/000336544openalex-snapshot
Consent and Research Governance in Biobanks: Evidence from Focus Groups with Medical Researchers
inferred← citeshttps://doi.org/10.1159/000444478openalex-snapshot
Do Public Involvement Activities in Biomedical Research and Innovation Recruit Representatively? A Systematic Qualitative Review
inferred← citeshttps://doi.org/10.1163/15691497-12341440openalex-snapshot
Resource Extraction Technologies: Is a More Responsible Path of Development Possible?
inferred← citeshttps://doi.org/10.1177/0963662515623925openalex-snapshot
Identifying public expectations of genetic biobanks
inferred← citeshttps://doi.org/10.1177/0963662520948034openalex-snapshot
Examining diversity in public willingness to participate in offshore human biobanking: An Australian mixed methods study
inferred← citeshttps://doi.org/10.1177/09636625241230864openalex-snapshot
A systematic literature review of the ‘commercialisation effect’ on public attitudes towards biobank and genomic data repositories
inferred← citeshttps://doi.org/10.1177/15562646241261848openalex-snapshot
Australian Attitudes Towards Waivers of Consent Within the Context of Genomic Data Sharing
inferred← citeshttps://doi.org/10.1186/s12910-016-0117-1openalex-snapshot
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
inferred← citeshttps://doi.org/10.1186/s12910-021-00671-xopenalex-snapshot
A scoping review of considerations and practices for benefit sharing in biobanking
inferred← citeshttps://doi.org/10.1186/s12910-022-00823-7openalex-snapshot
Better governance starts with better words: why responsible human tissue research demands a change of language
inferred← citeshttps://doi.org/10.1186/s12920-023-01452-8openalex-snapshot
Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.1371/journal.pone.0113274openalex-snapshot
Current Practice of Public Involvement Activities in Biomedical Research and Innovation: A Systematic Qualitative Review
inferred← citeshttps://doi.org/10.1377/hlthaff.2018.0159openalex-snapshot
Encouraging Participation And Transparency In Biobank Research
inferred← citeshttps://doi.org/10.1515/jbcr-2016-0002openalex-snapshot
Biobanks and Public Health: A New Challenge for Public Engagement and Trust
inferred← citeshttps://doi.org/10.1787/11d960b7-enopenalex-snapshot
Building and sustaining collaborative platforms in genomics and biobanks for health innovation
inferred← citeshttps://doi.org/10.2147/bsam.s64577openalex-snapshot
Biobank consent models – are we moving toward increased participant engagement in biobanking?
inferred← citeshttps://doi.org/10.4245/sponge.v7i1.19555openalex-snapshot
Biobank Economics and the “Commercialization Problem”
inferred← citeshttps://doi.org/10.52152/spr/2021.152openalex-snapshot
Assessment of knowledge, concerns and support of physicians towards bio banks in Pakistan, and their willingness to donate
inferred← citeshttps://doi.org/10.52152/spr/2022.170openalex-snapshot
Assessment of knowledge, concerns and support of physicians towards biobanks in Pakistan, and their willingness to donate
inferred← citeshttps://doi.org/10.5772/intechopen.100778openalex-snapshot
Data Integrity and Data Governance
inferred← citeshttps://doi.org/10.5772/intechopen.106940openalex-snapshot
Ethical Considerations for Health Research Data Governance
inferred← citeshttps://doi.org/10.6084/m9.figshare.15064155openalex-snapshot
Additional file 1 of A scoping review of considerations and practices for benefit sharing in biobanking
inferred← citeshttps://doi.org/10.6084/m9.figshare.15064158openalex-snapshot
Additional file 2 of A scoping review of considerations and practices for benefit sharing in biobanking
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579825openalex-snapshot
Additional file 1 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579828openalex-snapshot
Additional file 2 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579831openalex-snapshot
Additional file 3 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579834openalex-snapshot
Additional file 4 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
inferred← citeshttps://doi.org/10.6084/m9.figshare.26579837openalex-snapshot
Additional file 5 of Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
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