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Biobanks in Europe: Prospects for Harmonisation and Networking

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What this work says

Outgoing claims: the papers this work cites, builds on, or argues with.

inferredcites →https://doi.org/10.1007/978-1-4020-5822-6_8openalex-snapshot

Beyond the Rhetoric: Population Genetics and Benefit-Sharing

inferredcites →https://doi.org/10.1007/s11019-005-0397-6openalex-snapshot

The Right to Withdraw Consent to Research on Biobank Samples

inferredcites →https://doi.org/10.1007/s11948-004-0003-yopenalex-snapshot

Strategies for consulting with the community: The cases of four large-scale genetic databases

inferredcites →https://doi.org/10.1016/j.pec.2007.12.003openalex-snapshot

A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes

inferredcites →https://doi.org/10.1016/s0065-2660(07)00418-xopenalex-snapshot

Ethical, Legal, and Social Implications of Biobanks for Genetics Research

inferredcites →https://doi.org/10.1016/s1470-2045(06)70618-0openalex-snapshot

Should donors be allowed to give broad consent to future biobank research?

inferredcites →https://doi.org/10.1038/35066094openalex-snapshot

Solidarity and equity: new ethical frameworks for genetic databases

inferredcites →https://doi.org/10.1038/ejhg.2008.55openalex-snapshot

Population Genomics: The Public Population Project in Genomics (P3G): a proof of concept?

inferredcites →https://doi.org/10.1038/embor.2008.41openalex-snapshot

Banking together

inferredcites →https://doi.org/10.1038/nbt0907-973bopenalex-snapshot

Ethical framework for previously collected biobank samples

inferredcites →https://doi.org/10.1038/ng0503-25bopenalex-snapshot

Assessing the impact of biobanks

inferredcites →https://doi.org/10.1038/nm0704-665openalex-snapshot

Building global networks for human diseases: genes and populations

inferredcites →https://doi.org/10.1038/nm0803-982bopenalex-snapshot

Japan launches controversial Biobank project

inferredcites →https://doi.org/10.1038/nrg1473openalex-snapshot

The social and ethical issues of post-genomic human biobanks

inferredcites →https://doi.org/10.1038/nrg1505openalex-snapshot

Human genetic research: emerging trends in ethics

inferredcites →https://doi.org/10.1038/sj.bjc.6604795openalex-snapshot

Ethics and biobanks

inferredcites →https://doi.org/10.1038/sj.ejhg.5201007openalex-snapshot

An empirical survey on biobanking of human genetic material and data in six EU countries

inferredcites →https://doi.org/10.1038/sj.ejhg.5201458openalex-snapshot

Potential harms, anonymization, and the right to withdraw consent to biobank research

inferredcites →https://doi.org/10.1038/sj.ejhg.5201530openalex-snapshot

Do we need a uniform regulatory system for biobanks across Europe?

inferredcites →https://doi.org/10.1038/sj.embor.7400740openalex-snapshot

Consent and anonymization in research involving biobanks

inferredcites →https://doi.org/10.1038/sj.tpj.6500372openalex-snapshot

Pharmacogenetic research and data protection – challenges and solutions

inferredcites →https://doi.org/10.1080/09581590500523186openalex-snapshot

A well placed trust?: Public perceptions of the governance of DNA databases

inferredcites →https://doi.org/10.1080/1463677032000069691openalex-snapshot

The governance of human genetics: Policy discourse and constructions of public trust

inferredcites →https://doi.org/10.1080/1463677042000189598openalex-snapshot

Human genetic banking: altruism, benefit and consent

inferredcites →https://doi.org/10.1093/aje/kwi201openalex-snapshot

A Network of Investigator Networks in Human Genome Epidemiology

inferredcites →https://doi.org/10.1093/bib/bbm050openalex-snapshot

Biobanking for Europe

inferredcites →https://doi.org/10.1111/j..2004.00192.xopenalex-snapshot

Willingness to donate blood samples for genetic research: a survey from a community in Singapore

inferredcites →https://doi.org/10.1111/j.1365-2929.2006.02494.xopenalex-snapshot

Biobanks: can they overcome controversy and deliver on their promise to unravel the origins of common diseases?

inferredcites →https://doi.org/10.1111/j.1467-8519.2004.00377.xopenalex-snapshot

Coding and Consent: Moral Challenges of the Database Project in Iceland

inferredcites →https://doi.org/10.1111/j.1748-720x.2005.tb00205.xopenalex-snapshot

Biobanking: International Norms

inferredcites →https://doi.org/10.1111/j.1748-720x.2006.00040.xopenalex-snapshot

Ethical Issues in Secondary Uses of Human Biological Materials from Mass Disasters

inferredcites →https://doi.org/10.1111/j.1748-720x.2008.00266.xopenalex-snapshot

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

inferredcites →https://doi.org/10.1136/bmj.332.7540.544openalex-snapshot

One-time general consent for research on biological samples

inferredcites →https://doi.org/10.1146/annurev.genom.7.080505.115721openalex-snapshot

The Uneasy Ethical and Legal Underpinnings of Large-Scale Genomic Biobanks

inferredcites →https://doi.org/10.1159/000167801openalex-snapshot

Engaging the Public on Biobanks: Outcomes of the BC Biobank Deliberation

inferredcites →https://doi.org/10.1163/1571809054640659openalex-snapshot

Lessons from European Population Genetic Databases: Comparing the Law in Estonia, Iceland, Sweden and the United Kingdom

inferredcites →https://doi.org/10.1183/09031936.00165006openalex-snapshot

Trends in ethical and legal frameworks for the use of human biobanks

inferredcites →https://doi.org/10.1353/ken.2004.0014openalex-snapshot

Chinese Researchers Promote Biomedical Regulations: What Are the Motives of the Biopolitical Dawn in China and Where Are They Heading?

inferredcites →https://doi.org/10.2105/ajph.2004.058933openalex-snapshot

Ethical Goals of Community Consultation in Research

inferredcites →https://doi.org/10.2217/14622416.7.2.219openalex-snapshot

Pharmacogenomic Data Sample Collection and Storage: Ethical Issues and Policy Approaches

inferredcites →https://doi.org/10.2217/14622416.9.2.235openalex-snapshot

Taiwan Biobank: A Project Aiming to Aid Taiwan’s Transition into a Biomedical Island

inferredcites →https://doi.org/10.5281/zenodo.8296647openalex-snapshot

Biobanks as resources for health

inferredcites →https://doi.org/10.7249/mr954openalex-snapshot

Handbook of Human Tissue Sources: A National Resource of Human Tissue Samples

What points at this work

Incoming claims: where this work appears in other papers’ reference lists and arguments.

inferred← citeshttps://doi.org/10.12688/openreseurope.13860.2zenodo-depositor-declared

inferred← citeshttps://doi.org/10.1002/9780470015902.a0022486openalex-snapshot

Biobanking for Genetic Diseases

inferred← citeshttps://doi.org/10.1002/ehf2.13768openalex-snapshot

Models of Cardiovascular Surgery Biobanking to Facilitate Translational Research and Precision Medicine

inferred← citeshttps://doi.org/10.1007/978-3-030-49028-7_10openalex-snapshot

‘Your DNA Is One Click Away’: The GDPR and Direct-to-Consumer Genetic Testing

inferred← citeshttps://doi.org/10.1007/978-3-030-49388-2_8openalex-snapshot

Biobank Oversight and Sanctions Under the General Data Protection Regulation

inferred← citeshttps://doi.org/10.1007/978-3-030-78578-9_5openalex-snapshot

When the Brand Bites Back

inferred← citeshttps://doi.org/10.1007/978-3-319-33525-4_12openalex-snapshot

State Responsibility and Accountability in Managing Big Data in Biobank Research: Tensions and Challenges in the Right of Access to Data

inferred← citeshttps://doi.org/10.1007/978-3-642-33116-9_15openalex-snapshot

Accessing Accessions: Biobanks and Benefit-Sharing

inferred← citeshttps://doi.org/10.1007/978-3-642-33116-9_16openalex-snapshot

Conveying Information, Generating Trust: The Role of Certifications in Biobanking

inferred← citeshttps://doi.org/10.1007/978-3-642-33116-9_7openalex-snapshot

Should Privacy Be Abolished in Genetics and Biobanking?

inferred← citeshttps://doi.org/10.1007/978-81-322-2837-0_1openalex-snapshot

Exigencies of Biomarker Research in the Developing World: A Focus on the Dearth of Biobanking Resources

inferred← citeshttps://doi.org/10.1007/s00439-011-1068-8openalex-snapshot

Biobanking and international interoperability: samples

inferred← citeshttps://doi.org/10.1007/s10551-017-3480-zopenalex-snapshot

Communicating Moral Legitimacy in Controversial Industries: The Trade in Human Tissue

inferred← citeshttps://doi.org/10.1007/s13167-018-0153-7openalex-snapshot

Biobanks in Horizon 2020: sustainability and attractive perspectives

inferred← citeshttps://doi.org/10.1016/j.ciresp.2010.07.014openalex-snapshot

Biobancos y utilización de muestras de origen humano en investigación quirúrgica. Marco normativo actual

inferred← citeshttps://doi.org/10.1016/j.drudis.2024.103947openalex-snapshot

Transitioning biomedical research toward human-centric methodologies: systems-based strategies

inferred← citeshttps://doi.org/10.1016/j.ejmg.2016.04.002openalex-snapshot

A template for broad consent in biobank research. Results and explanation of an evidence and consensus-based development process

inferred← citeshttps://doi.org/10.1016/j.jcf.2020.11.015openalex-snapshot

Organoids for personalized treatment of Cystic Fibrosis: Professional perspectives on the ethics and governance of organoid biobanking

inferred← citeshttps://doi.org/10.1016/s2173-5077(11)70026-6openalex-snapshot

Biobanks and use of samples of human origin for surgical research. Current regulatory framework

inferred← citeshttps://doi.org/10.1017/s0016672313000190openalex-snapshot

Chinese biobanks: present and future

inferred← citeshttps://doi.org/10.1038/nmeth.2142openalex-snapshot

Biobanks, consent and claims of consensus

inferred← citeshttps://doi.org/10.1089/bio.2010.0031openalex-snapshot

Quality Assurance in Cancer Biobanking

inferred← citeshttps://doi.org/10.1089/bio.2014.0034openalex-snapshot

Access to Biobanks: Harmonization Across Biobank Initiatives

inferred← citeshttps://doi.org/10.1089/bio.2016.0008openalex-snapshot

Asian Network of Research Resource Centers

inferred← citeshttps://doi.org/10.1089/bio.2018.0032openalex-snapshot

Usage Data and Scientific Impact of the Prospectively Established Fluid Bioresources at the Hospital-Based MedUni Wien Biobank

inferred← citeshttps://doi.org/10.1089/bio.2019.0092openalex-snapshot

Towards Harmonized Biobanking for Biomonitoring: A Comparison of Human Biomonitoring-Related and Clinical Biorepositories

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.001.0001openalex-snapshot

Protecting Genetic Privacy in Biobanking through Data Protection Law

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.002.0003openalex-snapshot

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.002.0005openalex-snapshot

Abbreviations

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.002.0006openalex-snapshot

Table of Cases and Legislation

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0001openalex-snapshot

Introduction

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0002openalex-snapshot

Genetic Data, Genome Understanding, and Socially Relevant Information

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0003openalex-snapshot

The Context and State of the Art in European Biobanking

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0004openalex-snapshot

Genetic Privacy and Other Interests in Biobanking

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0005openalex-snapshot

The Protection of Genetic Privacy in Biobanking at International Level

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0006openalex-snapshot

Do We Need Data Protection at All?

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0007openalex-snapshot

Testing the GDPR in Relation to Biobanking

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0008openalex-snapshot

Testing the GDPR in Relation to Biobanking

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0009openalex-snapshot

Testing the GDPR in Relation to Biobanking

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0010openalex-snapshot

A Critical Analysis of the Efficacy of the GDPR as a Framework for the Protection of Genetic Privacy in Biobanking

inferred← citeshttps://doi.org/10.1093/oso/9780192896476.003.0011openalex-snapshot

Conclusion

inferred← citeshttps://doi.org/10.1109/hpcsim.2015.7237028openalex-snapshot

A security framework for population-scale genomics analysis

inferred← citeshttps://doi.org/10.1111/jlme.12315openalex-snapshot

Privacy and Biobanking in China: A Case of Policy in Transition

inferred← citeshttps://doi.org/10.1159/000358492openalex-snapshot

The Challenge for a European Network of Biobanks for Rare Diseases Taken up by RD-Connect

inferred← citeshttps://doi.org/10.1177/19475535251369692openalex-snapshot

BEACON: An Artificial Intelligence–Powered Optimized Biobank Sample Management System Leveraging Real-World Data

inferred← citeshttps://doi.org/10.1186/1742-7622-10-12openalex-snapshot

Data harmonization and federated analysis of population-based studies: the BioSHaRE project

inferred← citeshttps://doi.org/10.1186/1746-5354-6-1-33openalex-snapshot

Data Protection and Sample Management in Biobanking - A legal dichotomy

inferred← citeshttps://doi.org/10.1186/1755-8794-6-8openalex-snapshot

Cancer patient perceptions on the ethical and legal issues related to biobanking

inferred← citeshttps://doi.org/10.1186/gm194openalex-snapshot

Stem cell banking: between traceability and identifiability

inferred← citeshttps://doi.org/10.1186/gm556openalex-snapshot

ELSI practices in genomic research in East Asia: implications for research collaboration and public participation

inferred← citeshttps://doi.org/10.1186/s12961-023-00981-zopenalex-snapshot

Gauging innovation and health impact from biomedical research: survey results and interviews with recipients of EU-funding in the fields of Alzheimer’s disease, breast cancer and prostate cancer

inferred← citeshttps://doi.org/10.1186/s12967-019-2122-xopenalex-snapshot

The OncoLifeS data-biobank for oncology: a comprehensive repository of clinical data, biological samples, and the patient’s perspective

inferred← citeshttps://doi.org/10.1186/s13167-016-0053-7openalex-snapshot

Biobanks in the era of personalized medicine: objectives, challenges, and innovation

inferred← citeshttps://doi.org/10.1186/s13690-025-01604-5openalex-snapshot

SARS-CoV-2 genomic contextual data harmonization: recommendations from a mixed methods analysis of COVID-19 case report forms across Canada

inferred← citeshttps://doi.org/10.1186/s40504-015-0024-0openalex-snapshot

Constructing populations in biobanking

inferred← citeshttps://doi.org/10.12688/openreseurope.13860.1openalex-snapshot

An agenda-setting paper on data sharing platforms: euCanSHare workshop

inferred← citeshttps://doi.org/10.14393/ufu.di.2016.432openalex-snapshot

Biobanco do serviço de patologia do Hospital de Clínicas da Universidade Federal de Uberlândia: protocolo de desenvolvimento

inferred← citeshttps://doi.org/10.15388/teise.2014..3908openalex-snapshot

BIOBANKŲ SAMPRATA IR STATUS QUO LIETUVOJE

inferred← citeshttps://doi.org/10.15825/1995-1191-2016-4-123-132openalex-snapshot

BIOBANKS ARE AN ESSENTIAL TOOL FOR TRANSPLANTATION. HISTORY, CURRENT STATE, PERSPECTIVES

inferred← citeshttps://doi.org/10.17803/2313-5395.2021.1.15.003-035openalex-snapshot

Genetic Research Application in the Study of Pharmaceuticals

inferred← citeshttps://doi.org/10.1787/5k3v0hljnnlr-enopenalex-snapshot

Toward New Models for Innovative Governance of Biomedicine and Health Technologies

inferred← citeshttps://doi.org/10.18273/revsal.v48n1-2016011openalex-snapshot

Biobanco: Herramienta fundamental para la investigación biomédica actual

inferred← citeshttps://doi.org/10.2147/bsam.s64578openalex-snapshot

Biobanking strategies and regulative approaches in the EU: recent perspectives

inferred← citeshttps://doi.org/10.2147/clep.s314959openalex-snapshot

Nordic Health Registry-Based Research: A Review of Health Care Systems and Key Registries

inferred← citeshttps://doi.org/10.23889/suthesis.64845openalex-snapshot

Biobank participation of persons with epilepsy in South Wales

inferred← citeshttps://doi.org/10.31373/ejtcm/134676openalex-snapshot

Survey design method – the key component of building the Polish Biobanking Network

inferred← citeshttps://doi.org/10.31577/ppfar.2021.13.001openalex-snapshot

IDENTIFICATION OF DEVELOPMENT TRENDS OF BIOBANKING AND ITS POTENTIAL FOR FURTHER PROGRESS

inferred← citeshttps://doi.org/10.3389/fgene.2013.00240openalex-snapshot

Practice variation across consent templates for biobank research. a survey of German biobanks

inferred← citeshttps://doi.org/10.37394/23207.2021.18.121openalex-snapshot

Rise of Biobanking in the EU: Evidence from the Framework Programmes

inferred← citeshttps://doi.org/10.3999/jscpt.48.95openalex-snapshot

Feasibility of Converting Data of National Center Biobank Network Catalog to Analysis Data Model

inferred← citeshttps://doi.org/10.5808/gi.2011.9.1.037openalex-snapshot

ManBIF: a Program for Mining and Managing Biobank Impact Factor Data

inferred← citeshttps://doi.org/10.6000/2292-2598.2015.03.02.4openalex-snapshot

Intellectual Developmental Disability Bio-Banking: Public Support from the European Union

inferred← citeshttps://doi.org/10.7868/s0026898417050020openalex-snapshot

БИОБАНКИ КАК ОДНА ИЗ ОСНОВ РАЗВИТИЯ БИОМЕДИЦИНЫ: СОВРЕМЕННОЕ СОСТОЯНИЕ И?ПЕРСПЕКТИВЫ, "Молекулярная биология"

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